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The Most Annoying Thing About Celiac Is...

GFreeMO

By GFreeMO
in Coping with Celiac Disease

Recommended Posts

mushroom Proficient
mushroom
Posted

Well, obviously if eating gluten free is not the entire solution and it does not appear to be other intolerances, then further investigation is required, which would probably include scoping. But the scoping can be done independent of celiac testing.

I agree with your order of investigation: blood test first - if negative, gluten free; if still problems, further investigation possibly including scope. And quit talking about "allergies" when you are referring to celiac :blink::P

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  • Replies 59
  • Created
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Rebecca92 Apprentice
Rebecca92
Posted

The delicious smell of all your old favorite gluteny foods and knowing you cant have them

Meatballman Rookie
Meatballman
Posted

Watching friends and family enjoy foods that I used to.Having friends and family appologize to me while enjoying the foods i used to.

Poppi Enthusiast
Poppi
Posted

Being scared to travel.

My husband and I have dreamed for many years of travelling extensively in Asia. Our oldest kids will be leaving home soon and we had hoped to start travelling with (or without) the two youngest in the next few years. I've realized that eating in Asia will be so difficult. No street food, huge language barrier, ingredients in CJK characters... and so on and so forth.

We hope to take cruises and travel in Europe instead so I can run a better chance of not getting sick but it's hard to let that lifelong dream go.

lovesaceliac Newbie
lovesaceliac
Posted

Please give some advice Meatballman to me, the gluten-eating wife of a super-sensitive celiac...I find myself on occasion apologizing to him when I eat gluten in front of him. I can't help it! I know he wishes he could share...what's more annoying - me turning down his suggestion that I have that cinnamon roll (becuase he feels guilty if I don't eat what I can) or me eating it in front of him (then I feel guitly while I do.)

Meatballman Rookie
Meatballman
Posted

Please give some advice Meatballman to me, the gluten-eating wife of a super-sensitive celiac...I find myself on occasion apologizing to him when I eat gluten in front of him. I can't help it! I know he wishes he could share...what's more annoying - me turning down his suggestion that I have that cinnamon roll (becuase he feels guilty if I don't eat what I can) or me eating it in front of him (then I feel guitly while I do.)

I guess for me.I wish it could just be like it used to be.I didnt know I had this until I was 41.I was a big guy with a huge appetite.Now I feel weak and like everyone is always trying to please me.Sounds silly but I wish everyone including my gluten eating wife and daughters would just eat stop saying they are sorry.I cant speak for your husband.If he is like me Im sure he knows you are sorry and support him.I think he would want you to enjoy that cinnamon roll.To answer your question the annoying part are the apologies.Just act like you always have and eat what you must.I think drawing attention to it all the time frustrates me.Possibly he may feel the same.Anyway Im rambling now.Hope I helped.

misslexi Apprentice
misslexi
Posted

That sometimes you have to lie and say you have a wheat allergy just to get people to take you seriously.

People calling gluten free diets/gluten free products in grocery stores just a "fad".

When the person closest to you in the whole entire world doesn't take you seriously and says you'll grow out of it. Despite already being an adult.

How so many products on the shelves out there are full of weird stuff. Sometimes you just want a brownie to taste like a brownie, not a fig newton.

When people buy you gluten free stuff without being asked. And then expect you to give them money for it.

Maybe this isn't an annoying thing exactly, but coming to the realization that the majority of the people in the food services industry know so little about the food they are serving you it should make everyone run screaming for the hills.

And I could go on lol. I can't pick a most annoying thing.

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Googles Community Regular
Googles
Posted

I hope it's okay that I add another one.

Other people's pity when they are eating and you can't, and the look they give you.

mushroom Proficient
mushroom
Posted

When someone thinks that just because it is gluten free you can eat it :ph34r:

Laurentru Newbie
Laurentru
Posted

Losing my chance to be a humanitarian aid worker in third world countries.

T.H. Community Regular
T.H.
Posted

I ate boring food while everyone around me was able to enjoy a better meal, and I STILL got sick.

My child has to fight tooth and nail to keep her food safe, because the in-laws can't seem to understand cc and simply brush the gluten crumbs away from her food, insisting it'll be 'fine.' (...and they wonder why I won't let them babysit anymore :rolleyes: )

My kids are in pain and it's because I made the wrong decision about the safety of the food I allowed them to eat. :(

Poppi Enthusiast
Poppi
Posted

I do have another pet peeve actually.

I would like to go to the store and buy some gluten free cookies/bread/cereal/cake mix/snacks/frozen meals. Not gluten free, corn free, dairy free, egg free, organic, vegan, fat free, peanut free, seed free and fair trade.

It's not that any of those other things are bad but I get annoyed when all the "special diet/allergy" groups are lumped together into one really expensive and substandard product.

I like eggs and dairy and nuts and meat and fat in my food.

Same goes for cookbooks.

lynnelise Apprentice
lynnelise
Posted

Constant planning.

Not wanting to cook but being bored to death of the 3 places I can safely eat.

How my in-laws put ritz crackers in EVERYTHING and then act like they "forgot" I couldn't eat this or that.

AVR1962 Collaborator
AVR1962
Posted

Having to always ask questions, read labels and being so careful. I miss being able to eat anything I wanted without thinking about it!!

Celtic Queen Explorer
Celtic Queen
Posted

Paying twice as much for a box of gluten free bisquick that's 2/3 the size of a regular box.

Worrying about what I'm going to eat at social event or if I can eat anything at all.

Having to become a high-maintenance person when I go out to eat. I'm not that way at all. It's hard having to be particular about things.

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

I do have another pet peeve actually.

I would like to go to the store and buy some gluten free cookies/bread/cereal/cake mix/snacks/frozen meals. Not gluten free, corn free, dairy free, egg free, organic, vegan, fat free, peanut free, seed free and fair trade.

It's not that any of those other things are bad but I get annoyed when all the "special diet/allergy" groups are lumped together into one really expensive and substandard product.

I like eggs and dairy and nuts and meat and fat in my food.

Same goes for cookbooks.

I hate going to the store and finding delicious-looking gluten-free things that either contain soya, contain dairy, or are CC'd with soya/dairy. :(

Poppi Enthusiast
Poppi
Posted

I hate going to the store and finding delicious-looking gluten-free things that either contain soya, contain dairy, or are CC'd with soya/dairy. :(

Fair enough. When I'm looking at the everything-free cookies that cost $7 for a box of 6 I try to remind myself that there are people who are extremely thankful that these cookies exist for their kids (or themselves).

It's a petty pet peeve especially since I am able to make pretty much everything from scratch anyway. I should just be thankful I can have soy and dairy.

Di2011 Enthusiast
Di2011
Posted

itching

Di2011 Enthusiast
Di2011
Posted

eating rice, again :lol:

ladymiss Rookie
ladymiss
Posted

thinking and over thinking.

thinking.....

-can i eat it?

-what can i eat? here? now? at that store? at that restaurant? at his/her house? at the party? at the event? on vacation? on the road? in the car? as a snack?

-planning ahead....hmmmm what/how/when will i be able to eat?

-if i eat it, will i... be sick? from what? and for how long? will i have an allergic reaction? is my allergic reaction 'real' or psychosomatic? is the anxiety a reaction to the food i've just consumed or to the state of mind i've put myself thinking about eating the food i've just consumed....

-what will they think? im a hypochondriac? a health nut? a nut job? telling the truth?

-how do i tell them i can't/won't/don't want to eat the food they've prepared?

-how will i find a compromise in this scenario...(fill in the blank)....and not draw too much attention to myself, feel comfortable, help others to feel comfortable, not be rude AND find something to eat!!! :rolleyes:

too much thinking.....

GottaSki Mentor
GottaSki
Posted

Hands down...watching my teen-aged sons struggle with the "oh goodness that pizza looks and smells great" while hanging with friends. I got so sick that I'm grateful for health and being in control of my food....yet for my kids the symptoms are bad but not incapacitating...very tough to stick to it in social situations.

Katrala Contributor
Katrala
Posted

I do have another pet peeve actually.

I would like to go to the store and buy some gluten free cookies/bread/cereal/cake mix/snacks/frozen meals. Not gluten free, corn free, dairy free, egg free, organic, vegan, fat free, peanut free, seed free and fair trade.

It's not that any of those other things are bad but I get annoyed when all the "special diet/allergy" groups are lumped together into one really expensive and substandard product.

I like eggs and dairy and nuts and meat and fat in my food.

Same goes for cookbooks.

I'm with you.

I know there are people who appreciate these things, but it annoys me to have dietary needs lumped in with dietary choices.

I don't have a problem with anyone who wants to eat Vegan, Organic, etc. - that is their personal choice - but I don't want to be grouped in the same category.

GlutenDude Newbie
GlutenDude
Posted

The death of spontaneity when it comes to eating.

luvs2eat Collaborator
luvs2eat
Posted

That you cannot eat gluten...c'mon...this was obvious. :)

I'm w/ you Chad. It's a no brainer.

How simple my life was before celiac and there are some foods and activities I miss so terribly...

My mom's thanksgiving stuffing

My love of baking

Eating out w/o difficulty

etc, etc, etc.

mushroom Proficient
mushroom
Posted

Always having to be the food preparer, even when you are "going out" to eat.

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      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
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      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
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