Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Symptoms Suddenly?


tehjrow

Recommended Posts

tehjrow Rookie

A year and a half ago I was diagnosed with Celiac disease. You can read my story/symptoms here:

I have remained religiously gluten free since then, just wanting to feel good, and I have felt AMAZING.

About a month ago I went to a friends house and ate some chili, assuming it was made from chili powder and not a mix. After eating it, I was talking to him and he said it was made from a mix. After closer inspection of the wrapper, it contained wheat flour. I raced home, knowing it was coming.... but it never did. So I wrote that off as lucky and moved on.

A few weeks ago I went to a sushi place I hadn't been to. I ordered some rolls that contained no soy sauce/fried things/imitation crab. Halfway through eating them I looked and saw that they did, indeed, have imitation crab in them. I forgot that some restaurants refer to crab as kanikama. I only had a few rolls left so I figured, I'm gonna be sick either way, so I finished them. I got home and waited..... nothing.

Last night I became curious and wanted to test my gluten tolerance (if there is such a thing ) and ate one of these:

Ferrero Rocher Hazelnut Chocolates

Wheat flour is clearly in the ingredient list. It's been about 12 hours.... nothing.

How can my symptoms go from completely immobilizing me to nothing? Does anyone here have a small amount they can eat with no symptoms? Should I continue to experiment?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lynnelise Apprentice

In short no I would not keep experimenting with eating gluten. You are diagnosed celiac so you know it's harming you in some way whether you feel it or not. I would say that after being strict for a year and half you've had a lot of healing so your symptoms are naturally not as bad. However damage is being done and could be substantial by the time you exhibit symptoms! Don't play with fire! ;)

CR5442 Contributor

It is possible that your villi are sufficiently recovered to not have the symptoms you previously had during your diagnosis... however that does not mean, as the above poster says, that it isn't doing your gut some harm! I would steer as clear as you can but perhaps heave a sigh of relief that if you do get accidentally glutened you won't exhibit horrid glutening symptoms! keep looking after your gut, it's the only one you've got!

domesticactivist Collaborator

Anecdotally, I am doing a gluten challenge after a year gluten free and then on GAPS and am having 20 g of gluten a day... My son is has severe gluten problems soI went gluten-free in solidarity but now want to get tested. At first I had no symptoms but a bit over a week in and they are starting to pile up. It could be that it hasn't hit yet or added up to enough damage that you feel it. If you ever had positive blood work or biopsy I'd not mess around with that.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,228
    • Most Online (within 30 mins)
      7,748

    CindyNR
    Newest Member
    CindyNR
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.