Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions Regarding Supplements


basilicious

Recommended Posts

basilicious Explorer

Hi all,

I am waiting for my endo/biopsy results, and I have been researching ways to promote healing in my gut. (At a minimum, I have intestinal permeability and gluten sensitivity, so going gluten-free for six months is a definite.)

Dr. Weil recommends the following as a natural treatment for those with celiac (link is: Open Original Shared Link):

"In addition to avoiding gluten, Dr. Weil recommends treating the leaky gut symptoms often associated with the body's response to these proteins. Moderate use, if not avoidance, of alcohol and non-steroidal anti-inflammatories (like Ibuprofen and Naproxen) is important. Also, make sure you're eating plenty of fiber. Take a probiotic supplement containing Lactobacillus GG or Bacillus coagulens. And follow an anti-inflammatory diet, including essential fatty acids like fish oil and GLA, and minus any gluten-containing foods, of course.

In addition, you might try supplementing with glutamine, an amino acid that helps maintain intestinal metabolism and function and seems to benefit patients who have had intestinal injury from serious insults such as chemotherapy and radiation."

My question is this: has anyone taken glutamine? If so, have you noticed any benefits? I'm a little nervous about taking it, because I'm afraid that I may have celiac-related liver damage, and the packaging says that those with cirrhosis of the liver should not take it. Now, there's no way I have cirrhosis of the liver, but since I'm concerned that intestinal permeability leads to liver damage, I'm curious about anyone's take on this or their experience.

Also, does anyone have any thoughts on taking gluten enzymes? While I realize they are in no way a substitute for a gluten-free diet, since I'm coming off the gluten challenge, I'm curious if they might assist with digestion of the lingering gluten in my system. Also, it seems like those with celiac use enzymes to assist when they eat out and fear they may have been glutened. Any thoughts on that?

Thank you so much for any insight you may be able to offer!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

Hi all,

I am waiting for my endo/biopsy results, and I have been researching ways to promote healing in my gut. (At a minimum, I have intestinal permeability and gluten sensitivity, so going gluten-free for six months is a definite.)

Dr. Weil recommends the following as a natural treatment for those with celiac (link is: Open Original Shared Link):

"In addition to avoiding gluten, Dr. Weil recommends treating the leaky gut symptoms often associated with the body's response to these proteins. Moderate use, if not avoidance, of alcohol and non-steroidal anti-inflammatories (like Ibuprofen and Naproxen) is important. Also, make sure you're eating plenty of fiber. Take a probiotic supplement containing Lactobacillus GG or Bacillus coagulens. And follow an anti-inflammatory diet, including essential fatty acids like fish oil and GLA, and minus any gluten-containing foods, of course.

In addition, you might try supplementing with glutamine, an amino acid that helps maintain intestinal metabolism and function and seems to benefit patients who have had intestinal injury from serious insults such as chemotherapy and radiation."

My question is this: has anyone taken glutamine? If so, have you noticed any benefits? I'm a little nervous about taking it, because I'm afraid that I may have celiac-related liver damage, and the packaging says that those with cirrhosis of the liver should not take it. Now, there's no way I have cirrhosis of the liver, but since I'm concerned that intestinal permeability leads to liver damage, I'm curious about anyone's take on this or their experience.

Also, does anyone have any thoughts on taking gluten enzymes? While I realize they are in no way a substitute for a gluten-free diet, since I'm coming off the gluten challenge, I'm curious if they might assist with digestion of the lingering gluten in my system. Also, it seems like those with celiac use enzymes to assist when they eat out and fear they may have been glutened. Any thoughts on that?

Thank you so much for any insight you may be able to offer!

I don't know if this will add insight or not, but this is my experience. I bought Solgar brand L-Glutamine 500 mg tabs shortly after I went gluten-free. I've used them sporadically, even though I'm diligent about taking my calcium and Multi-V. I started taking them more regularly in the past few months.

I've had a ton of blood work done in the past two years. Some of the results were pretty whacky when I first went gluten-free. Everything seemeed to simmer down with time with the diet. (For awhile there, I got used to doctors referring me to more and more specialists based on my blood work.

I just picked up results from a routine blood draw ordered by my PCP (CBC with Dif and Basic Metabolic Panel) and my AST was off the chart along with another result. I googled a question about the results and it came up with liver disease! The only other possible explanation, apparently, is being allergic to the medications you're on. (I'm not on any.) I didn't get hyper about the results because nobody called me from the doctor's office telling me I had to go to a nephrologist, and I'm SO used to having weird blood test results.

For me, I'm axing the L-Glutamine. My experience could be totally different than your experience though.

The bottle says "Natural Muscle Food, Promotes GI Health". Argg.

Thanks for your post, I'll take the L-Glutamine 500 mg tabs with me to my next visit with the Dr. She'll notice the elevated levels and be surprised nobody called me. (That's health care where I live.)

Thank you for your post. I think I learned more from you than you did from me. In the event you want to try some, P.M. me, I'll send them on, but I think your initial qualms were well justified.

basilicious Explorer

Thanks for sharing your experience, Marilyn. I previously tried asking my gastro about glutamine, and she said I was on my own since it's not FDA regulated. Not terribly surprising but still disappointing.

sa1937 Community Regular

I did take one bottle of Bluebonnet L-Glutamine (500 mg) and frankly couldn't tell if it made a difference or not.

One thing that did help a lot was a probiotic, specifically Culturelle Digestive Health, which contains 10 billion Lactobacillus GG, which I can buy at my local Wal-Mart. I started taking it last fall when I was 18 months gluten-free as I was still having issues at that time. The difference it made was significant.

basilicious Explorer

Thanks a lot, Sylvia. I am on liquid acidophilus right now but need to explore other probiotic options. I will definitely check out Culturelle!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,003
    • Most Online (within 30 mins)
      7,748

    JoEllen Ball
    Newest Member
    JoEllen Ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.