Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Hunger....

Rachel--24

Recommended Posts

Rachel--24 Collaborator
Rachel--24
Posted

Lately I've been experiencing something new. All of a sudden I'll feel REALLY hungry...I get a little lightheaded and kinda shaky. I'll feel like I need food badly...RIGHT NOW. I could've just eaten 1/2 hour earlier but you'd think I hadn't eaten in days. I'm eating alot more now than I was before my dx when I was just eating meat, veggies and fish (candida diet). I had this feeling a few times before I went on the candida diet..back when I was still eating gluten...but it went away until now. What could be causing it? I still have malabsorption...my stools are abnormally huge.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Danijela Contributor
Danijela
Posted

I have enperiences the same thing. It usually happens to me right after I eat or after a period of fasting. I get this oerwhelming feeling that I need to eat right NOW!!! I get shaky and my mind gets kind of foggy. It makes sence to me that thats from malabsorbtion. A person feels hungry when they have burned off the calories or energy from their last meal. If your body is not absorbing nutrients properly that could be the reason.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Thanks Danijela,

I just answered your topic question with pretty much the same response. He-He

Too bad we couldn't just condense the 2 topics since they are almost identical. :P

BTW....Welcome to the board! :D

jknnej Collaborator
jknnej
Posted

I had this for the first two or three months after going gluten-free. It went away, though. I've been gluten-free for 9 months now and I no longer have this problem.

It was not a fun problem-I'm glad it's gone. How long have you been gluten-free?

Wandering Hermit Contributor
Wandering Hermit
Posted

gluten-free since April and I feel the same way pretty much every day. Does not always coincide with a feeling of hunger, though.

I just keep hoping that someday this gluten-free diet is going to pay off and I will start feeling like a normal person again with no fatigue, dizziness, and bizzare stools. At least the d has stopped.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I had this for the first two or three months after going gluten-free. It went away, though. I've been gluten-free for 9 months now and I no longer have this problem.

It was not a fun problem-I'm glad it's gone. How long have you been gluten-free?

<{POST_SNAPBACK}>

I was probably 95% gluten-free since April but only got dxd a couple weeks ago. I've swtiched all my products to gluten-free now but I've had a couple slip-ups already cuz of contamination. I'm wondering if maybe my body is starting to heal and the hunger attacks mean it wants more food/nutrients since its trying to heal? Just a guess..

Guest Viola
Guest Viola
Posted

I think part of it is physiological. Before we were diagnosed we thought about food only when it was meal time, or time to cook. Now that we have been diagnosed we spend all our time and effort thinking of food in one way or another. Checking ingredients, calling companies, worrying about going out, thinking about what we can take out etc. In other words most of our lives is all of a sudden tied up with food. It's only natural that our stomach follows our brain waves sometimes. :lol:

I find if I am out doing something I don't have to eat at all ... as soon as I come in, or sit at the computer it keeps saying feed me, feed me, I know there's ice cream in the fridge. :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
  • Author
  I find if I am out doing something I don't have to eat at all ... as soon as I come in, or sit at the computer it keeps saying feed me, feed me, I know there's ice cream in the fridge.  :rolleyes:

<{POST_SNAPBACK}>

LOL...I think I'm actually the opposite in that I think about food alot LESS since getting dxd. I thought I'd had candida so I was constantly worried about "feeding" the candida or getting sick...paranoid everyday...but I never had these hunger attacks...I was eating way less also. Now I know all my food is gluten-free and I know the candida is not going to "get" me so I just stick to stuff I know is safe and I'm not too worried about food anymore. But my body is REALLY hungry.

mandigirl1 Enthusiast
mandigirl1
Posted

HI!!!!

I have the same symptoms that you described. Ive had celiac disease for 6 yrs. Usually I get extreme hunger after having an attack from gluten. Its a killer BM, then I feel sooooo hungry, I eat everything in site (gluten-free of course).

To feel full, I think you need to eat more protein with carbs like potato or rice. I went to a top, high priced Manhattan nutritionist, and thats what he told me. Also told me to stay away from sugar (Avoid it like the plague, he used to say). Finally, take your vitamins. I never enjoyed better health in my life until I followed a strict regime of vitamins. I felt like I had the energy of a 10 yr old (Im 32).

BTW, what is "candida"??? Never heard of it before.

Good luck, and if you have questions, ask!!! I may be able to help!!

:):):):):):):)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
HI!!!!

I have the same symptoms that you described. Ive had celiac disease for 6 yrs. Usually I get extreme hunger after having an attack from gluten. Its a killer BM, then I feel sooooo hungry, I eat everything in site (gluten-free of course).

To feel full, I think you need to eat more protein with carbs like potato or rice. I went to a top, high priced Manhattan nutritionist, and thats what he told me. Also told me to stay away from sugar (Avoid it like the plague, he used to say). Finally, take your vitamins. I never enjoyed better health in my life until I followed a strict regime of vitamins. I felt like I had the energy of a 10 yr old (Im 32).

BTW, what is "candida"??? Never heard of it before.

Good luck, and if you have questions, ask!!!  I may be able to help!!

:)  :)  :)  :)  :)  :)  :)

<{POST_SNAPBACK}>

After I get glutened I'm NOT hungry at all for a few days. The attacks come about a week later when I start to feel a little better and my appetite is good. All of a sudden I'm starving and even though I've eaten I'll get a hunger attack. Come to think of it its usually after I've eaten something high in sugar. :blink: Why would that be? As soon as I eat something it goes away.

Candida is a yeast overgrowth in the intestines. Its a very controversial condition to say the least.

Oh yeah...what vitamins do you take? I'm not taking any right now cuz I wasnt sure if mine were making me feel worse. I'll try them one more time but if anything bad happens I'm done with them. They are a liquid gluten-free multivitamin.

mandigirl1 Enthusiast
mandigirl1
Posted

I get my vitamins from Freeda Vitamins in NYC. You can look them up online to order or request a catalog. I think every single vitamin they make is gluten-free.....so you should be safe. I take the Multi Vitamin, calcium, b6/12/, folic acid, and a few others. Ive never gotten sick from them.

Sugar makes you hungry. Once Ive had sugar, Im on a sugar "high" and eat and eat and eat. Its best to avoid sugar, if you can.

Just curious, if you dont mind, is candida a female condition????

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Just curious, if you dont mind, is candida a female condition????

<{POST_SNAPBACK}>

Thanks for the info. on the vitamins. :)

Nope....Candida can affect anyone male or female. We all have candida in our guts...its a bacteria. We also have "good bacteria" as well. If there is an upset in the balance between good/bad bacteria (numerous things can cause this) the candida will grow and can sometimes cause problems. The *extent* of damage it can cause is what is debateable and controversial.

Carriefaith Enthusiast
Carriefaith
Posted
Lately I've been experiencing something new. All of a sudden I'll feel REALLY hungry...I get a little lightheaded and kinda shaky. I'll feel like I need food badly...RIGHT NOW. I could've just eaten 1/2 hour earlier but you'd think I hadn't eaten in days.
I also feel like that sometimes, it's really annoying and I don't know for sure what causes it. For me, it happened really bad after I started the gluten-free diet and now it happens about a week or so after I've been glutened. I get so hungrey that I feel like I am going to faint if I don't eat something. It may be that food isn't absorbing proporly (due to gluten) and the body reacts by telling itself that it needs more food. But that is just a guess.
thomas3000 Rookie
thomas3000
Posted

Candida is caused by chronic infection or overuse of antibiotics.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I also feel like that sometimes, it's really annoying and I don't know for sure what causes it. For me, it happened really bad after I started the gluten-free diet and now it happens about a week or so after I've been glutened. I get so hungrey that I feel like I am going to faint if I don't eat something.  It may be that food isn't absorbing proporly (due to gluten) and the body reacts by telling itself that it needs more food. But that is just a guess.

<{POST_SNAPBACK}>

Yup Carrie...that is *exactly* whats happening to me. Its about 1 week after getting glutened. When it happens I feel a little faint and shaky. Once when it happened I was luckily near a Whole Foods so I stopped and got some Envirokidz bars and some blueberries. I worry what will happen if I'm somewhere where there is no gluten-free food I can eat. Will I pass out? :blink: Maybe I should just carry around snack bars in case. :)

tarnalberry Community Regular
tarnalberry
Posted
Lately I've been experiencing something new. All of a sudden I'll feel REALLY hungry...I get a little lightheaded and kinda shaky. I'll feel like I need food badly...RIGHT NOW. I could've just eaten 1/2 hour earlier but you'd think I hadn't eaten in days. I'm eating alot more now than I was before my dx when I was just eating meat, veggies and fish (candida diet). I had this feeling a few times before I went on the candida diet..back when I was still eating gluten...but it went away until now. What could be causing it? I still have malabsorption...my stools are abnormally huge.

<{POST_SNAPBACK}>

That sounds like a fairly standard hypoglycemic response. Have you been tested for that? (And I'm sorry if I already asked you this one... I feel like I might have, but I just can't remember.)

jknnej Collaborator
jknnej
Posted

When I had this problem someone on this board told me that without gluten there is a massive change in stomach volume contents. Plus, our bodies go through gluten withdrawl.

Give it some time; what helped me out was eating every hour or so, just something small. Even today I eat very little at each meal so I can eat many times a day. It really does help.

It will go away and get better!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
That sounds like a fairly standard hypoglycemic response.  Have you been tested for that?  (And I'm sorry if I already asked you this one... I feel like I might have, but I just can't remember.)

<{POST_SNAPBACK}>

Nope...you never asked me. I'm sure I've been tested since in the beginning they ran a million tests. I know I got tested for diabetes 4 times in the first year! I'll be leaving my HMO soon so I'm requesting all my records. I'll be able to see all that was done....I'll ask my doc as well.

tarnalberry Community Regular
tarnalberry
Posted
I'm sure I've been tested since in the beginning they ran a million tests. I know I got tested for diabetes 4 times in the first year!

<{POST_SNAPBACK}>

Meh... tests aren't that great. And I don't think the standard diabetes tests cover testing for hypoglycemia very well (but I could well be wrong about that). My tests all come out fine too, but my doctor noted that a lot of people she sees (particularly women) find that they are just more sensitive to the effects than what the lab tests say is "okay" and "not okay". The only way to know for sure is to try the treatment (a more balanced meal (at every meal) and significantly less in the way of refined, high-glycemic load carbs). I'm sure, however, there are other things that could be going on as well.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
  My tests all come out fine too, but my doctor noted that a lot of people she sees (particularly women) find that they are just more sensitive to the effects than what the lab tests say is "okay" and "not okay".

<{POST_SNAPBACK}>

I know this to be true with thyroid testing so I'm sure the same things goes for most tests. I think since it's only happening after a glutening it may just be something my body's going through as it tries to recover. If it continues to happen in the absence of gluten I may have to ask you for some meal advice. ;)

aikiducky Apprentice
aikiducky
Posted

This happens to me, too, and also about a week after being glutened. I try to always take some nuts and raisins or a banana with me, especially when I'm recovering from a glutening. And eat some protein at every meal. Gluten is a protein after all, if you leave it out, I figure something has to come in it's place.

Pauliina

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Thanks,

Well noones said I could pass out from one of these episodes so thats a relief. :D

I'll just keep munchies with me if I leave the house.

mandigirl1 Enthusiast
mandigirl1
Posted

Where is the chronic infection in the body? Like having a whole body like flu or in a specific area???????

I also feel faint and dizzy and very hungry. I had that yesterday, during the day, and immediately devoured the closest thing to me, which happened to have been a bag of baked lays doritos !!!! Then a baskin robbins pistachio/mint choc. chip ice cream (and I never eat this way because I like to stay thin)

The idea that maybe youve been glutened and arent absorbing nutrients properly makes sense.

Best Advice: Just 'hang in there' like the rest of us Celiacs do!!!!!! ;)

mandigirl1 Enthusiast
mandigirl1
Posted

Oh yeah, I just remembered, it always helps to keep a stash of gluten-free food, with you if you go out. I find that when I dont bring a snack I get ravenous, faint and very irritable!!!!

My boyfriend always makes sure wherever we go that I have my chocolate rice cakes on hand. This does help. He knows if I dont have something quick I get crazy.......as a matter of fact he calls it "crazy food". So if we go on a vacation, he'll ask, Hon, did u pack your crazy food?????? :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Where is the chronic infection in the body? Like having a whole body like flu or in a specific area???????

<{POST_SNAPBACK}>

Mandigirl,

He's talking about chronic conditions which may leave the immune system weakened and vulnerable to bacteria overgrowth. Any undiagnosed condition I suppose could lead to this. It would be most dangerous to a person with a very compromised immune system though...such as an AIDS patient.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748
    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.