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When Someone Asks, "how Can I Get That [Celiac]?"

Finally-45

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Victoria6102 Contributor
Victoria6102
Posted

I've been both overweight and underweight. I must say, I liked being skinny and fitting into cute clothes, and being able to eat as much as I want without gaining weight. I hate being overweight and not fitting into very much, wishing I was back in the skinny body. No matter how hard I try, I can't lose weight. In my opinion, it was way better to be underweight than overweight. Lots of people who are overweight are trying to be as skinny as you but can't. Don't get mad at them! Sure, maybe they don't understand celiac but did you understand it before you went gluten free? I sure didn't!:P us chubby people have it hard too!:( :'(

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dani nero Community Regular
dani nero
Posted

Face it guys and gals.. Those who are fatter want to get thinner, and those thinner want to get fatter! Those who are neither thin nor fat probably don't like their bodies either haha :-)

I would say "let's all just be happy about our looks and be thankful of what we have", but then I would be a hypocrite!

Jestgar Rising Star
Jestgar
Posted

Face it guys and gals.. Those who are fatter want to get thinner, and those thinner want to get fatter! Those who are neither thin nor fat probably don't like their bodies either haha :-)

I would say "let's all just be happy about our looks and be thankful of what we have", but then I would be a hypocrite!

Yep. And if they do like their bodies, then they have issues with their hair

or nose

or something else

....

cougie23 Explorer
cougie23
Posted

Take some Biotin for the floppy girls. ;)

My girls seemed to think after feeding two kids they were headed south for retirement. Started taking Biotin for hair/ nail growth and they perked back up. :D :D

:lol::lol::lol: Yay!!!...Biotin shall be the shovel to shore up my LANDSLIDE...LOL!!! :P THANKYOU....My nails and hair have been suffering as well and I had NO idea what to do :blink: ...seriously...THANKYOU for this advice!!! :lol:

( and when you gain a few and your kids are hiting thier teens and twenties....THATS A LOT OF SLIDEN goin on...LOL!!!)Time to PUSH those girls backup the hill!...I'm exagerating...its not THAT bad! will be soon ...definatly no time like the present for previntitive measures though!)Anymore secrets of YOUTH you ladies want to share? LOL :P

IrishHeart Veteran
IrishHeart
Posted

Yep. And if they do like their bodies, then they have issues with their hair

or nose

or something else

....

Yep. It's what keeps plastic surgeons in Jaguars and beach front vacation homes.

It is a rare one who is "comfy" in her own skin,

realizing she is beautiful, just as she is.

Marilyn R Community Regular
Marilyn R
Posted

What do you say to comments like that? Once someone said that I have good will power. I replied, "No, I have a constant reminder of the painful consequences of going off the diet. It's not like I feel satisfied from eating...[gluten]...almost immediately I feel sick to my stomach...." That seemed to be a good reply.

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

I was always normal weight as a kid, and even as a teenager. I lost weight (20 lbs) when I was 15, but that was totally intentional. At the time, i did the South Beach Diet, which is pretty much a gluten-free diet in the first stages, which is where I lost most of the weight. I kept it off because I started swimming 5x a week, after I added bread/wheat again, but I started getting sick. I never went to "walking skeleton" stage, thankfully.

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notme Experienced
notme
Posted

Take some Biotin for the floppy girls. ;)

My girls seemed to think after feeding two kids they were headed south for retirement. Started taking Biotin for hair/ nail growth and they perked back up. :D :D

:) thanx ! i will take all the help i can get :D

since i have been recovering, i have started a "mini" (and i do mean MINI) itty bitty (i don't even think you could call it a workout..) set of exercises just to improve my muscle tone. it is working surprisingly well. i start with 'boob ups' - take a scrunchy or anything elastic and hold it in both hands out in front of you with elbows level with your shoulders. then i just stretch and hold for 10 10 second reps. you will know you're doing it right when you feel the muscles under your boobs tightening up. i have noticed perkiness improvement :) <husband too lolz ;)

as i have been re-gaining healthy weight, it needs to be managed! i never had to do this when i was younger. doing sit-ups on the bed holding my legs straight out and trying to hold with abdominal muscles. i didn't think it was doing me any good until i stopped doing them. i do as many as i can of those. and i do leg lifts (10 per side) - now - i know some of us are easily fatigued and even this will be tiring to some. but if it helps to tone a little and makes some happy endorphins, that works for me. it takes like 5 minutes and if i skip a day, i feel 'floppy' my 28 year old daughter can't do the sit-ups hahahaaa so it is definitely making a difference and they are getting easier.

i still smoke cigarettes and i am hoping to quit and replace them with exercise endorphins..... just........ not today...... :)

IH, you might not be up to this yet - i am 21 months into recovery since dx.

oh, and for all the people who love to comment on how wonderful it is that i can stay so skinny: i had an upper respiratory infection last week and lost 4 lbs in 5 days. i posted it on my fb and everybody was "horrified" - WAY TO PAY ATTENTION, FRIENDS AND FAMILY.... your concern is a little late ;)

squirmingitch Veteran
squirmingitch
Posted

I'm one of those that Irish mentioned. Oh, I would like to gain a few pounds but if it doesn't happen --- cest la vie! Other people have always had more problems with my weight (or lack of) than I. I am happy with my hair including the color --- well the grey coming in is getting a little weary. I've always liked my nose. I'm happy with my legs -- even though they're short --- they are a great shape. I like my eyes & my chin. And even though some things are changing with aging, such as my disappearing cheekbones; that's aging pure & simple. I live in my own skin & I'm content. I'm darned lucky!!!!!! I am who I am & what's inside me is far more important than what the outside looks like. I'm getting wrinkled & varicose veins & when you look at me you can read the story of my life. I have dh & I wear shots & short sleeves & I have scars. Another chapter in the story of my life.

I look at other people & I look into their eyes; into their faces as we speak. I honestly couldn't tell you what they were wearing b/c I'm not examining them for flaws or for comparison purposes. I'm looking inside them where what they are wearing inside their body is the important part.

And after all these years & all this living I still am shocked to the core when people put so much emphasis on what the outside of people look like.

IrishHeart Veteran
IrishHeart
Posted

i still smoke cigarettes and i am hoping to quit and replace them with exercise endorphins..... just........ not today...... :)

IH, you might not be up to this yet - i am 21 months into recovery since dx.

Your story is encouraging :) Good for you!

You can do anything! (even quit smoking) ;)

and yes, thanks, I am slowly getting there, too. I can walk 20 minutes without gasping for breath and I do 10 bicep curls & 10 tricep curls with 2 lbs. weights. Not bad for a girl who could not open a jar or use a wire whisk for a while there!

Stay strong and happy ta-tas lifting.

I'm going to do those too. :lol:

cougie23 Explorer
cougie23
Posted

I'm 43, have 4 kids, and wear a size 2 (0 at Gap). Lost about 15 pounds after going gluten free and figuring out my multiple food intolerances. I'd love to add a few pounds, but I honestly struggle to keep my weight where it is. Sometimes I wish I could post on FB "So excited! Gained a pound back! Only took a week this time instead of 2!" or "So frustrated. Took a trip and lost 2 pounds" but I know that wouldn't be well received...

When I tell people I have to work hard to maintain my weight, I hear "That must be a good problem to have!" I am SO tired of hearing this! If it's someone I think I'll end up friending, I tell them more. Then I tell them how bad I feel when I drop under a certain weight and how it isn't fun to have to force eat more corn pasta with olive oil or potatoes (no dairy) or peanut butter. I tell them what I can't eat and how hard it is to eat out. After all that I usually hear "Wow! That must be hard."

One friend I hadn't seen in 20 years asked how I stayed so slim at the beginning of our conversation. I said "autoimmune disease." LOL! Not sure i'd do that with a stranger.

Can you eat HONEY?...If you can...google "health benifits of honey"...wonderful antioxident...great for healing the intestinal track...and its FATTENING! LOL!

Dates have great HEALING properties as well! AND will help you gain!...google dates!

They TASTE great as well! there is so many ways to put honey and /or dates into your food...or just srtait!

mix'em with stuff!yummy way to get healthy...AND gain a little cusion! :P

(and personally...at this point I WOULD make the AUTOIMUNE disease comment to a stranger...it would serve them right for saying something! Thats just rude of them...how would they like it!LOL! :blink::rolleyes::D

Example:

1)chopped dates and honey in your veggtable stirfry

2)chopped dates in your salad (fruit or regular veggie type salad)

Chopp your raw chicken up and cook it in a pan with chopped dates(maybe some mushrooms, a little garlic or some onion....celantro...Whatever sounds good,have fun with it) and a little honey...

I use it when I cook as flavoing....for my veggies,stirfry,meat :P (insted of bbq sauce or OTHER sauses that I can't have now!)

I use it on my chicken with a little Trader Joes parmesian(gluten-free) in the broiler after I'm done cooking it fora carmelized bbq effect!REAL YUMMY...and ITS HEALTHY!

I even carmelize apples dates and bannanas(bananas and dates atthe last minute) with cinnimon and HONEY...when my tummy hurts and I can't eat anything ELSE! :unsure::blink::lol:

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    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
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