Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cannot Cope Anymore, Physically Or Mentally.

charlotte-hall

Recommended Posts

charlotte-hall Apprentice
charlotte-hall
Posted

6 months of feeling ill, every single day. Nausea, tiredness, swollen throat, stomach pain, generally feeling rubbish. Missing loads of school and exams..

It's starting to effect me a lot now, I just feel like there's is no point in life anymore..just getting up to feel ill.

After 4 months gluten free still have a TTG level of 229 (normal is under 10)

No hope left anymore, starting to get depressed, and scared..I have massive emetophobia so feeling nauseous 24/7 is not a good thing at all!

Went to A&E, hospital said they couldnt do anything so got sent home..

Just really cannot cope.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dani nero Community Regular
dani nero
Posted

You haven't mentioned much about your lifestyle.. like what do you usually eat, what precautions have you taken to make sure you're completely gluten-free.

The way you're feeling now is directly related to your health situation, believe me! Depression and feelings of hopelessness are caused by whatever is making you feel ill. We'll need more details to be able to find out what is making you feel ill though :-)

cahill Collaborator
cahill
Posted

6 months of feeling ill, every single day. Nausea, tiredness, swollen throat, stomach pain, generally feeling rubbish. Missing loads of school and exams..

It's starting to effect me a lot now, I just feel like there's is no point in life anymore..just getting up to feel ill.

After 4 months gluten free still have a TTG level of 229 (normal is under 10)

No hope left anymore, starting to get depressed, and scared..I have massive emetophobia so feeling nauseous 24/7 is not a good thing at all!

Went to A&E, hospital said they couldnt do anything so got sent home..

Just really cannot cope.

You are 14 years old,, are your parents gluten free??

charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I'm 15, but no my house isn't gluten free

charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I usually eat toast on a morning, with butter from my own butter, no cross contamination there, and with my own toaster. Gluten free bread obviously. Then usually at school, a sandwhich, yet again with gluten-free bread and my own butter and usually cheese or chicken. Then for tea..meat and vegetables, keeping it simple.

Maggie Mermaid Apprentice
Maggie Mermaid
Posted

I usually eat toast on a morning, with butter from my own butter, no cross contamination there, and with my own toaster. Gluten free bread obviously. Then usually at school, a sandwhich, yet again with gluten-free bread and my own butter and usually cheese or chicken. Then for tea..meat and vegetables, keeping it simple.

How about giving up any type of bread-like product for a weekend and see how you feel? For breakfast, you could have eggs or fruit with yogurt.

Sounds like some hidden cross-contamination somewhere. Maybe toothpaste, mouthwash, or lip balm/lipstick products are not 100% gluten-free?

kareng Grand Master
kareng
Posted

I'm Curious.... what do your parents say about this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I'm Curious.... what do your parents say about this?

Just struggling what to do, there seems to be no answer

kareng Grand Master
kareng
Posted

Just struggling what to do, there seems to be no answer

I meant, are they OK with the gluten-free thing? Do they keep any gluten in one place, away from your foods? Use separate colanders for your gluten-free pasta or fruit? No one in the house thinks its stupid and puts flour in your food? Have they checked any medications you take for gluten? No oats?

I'm trying to think of the things that have happened to others.

charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I have oats cut out totally, I have seperate pans and my own cutlery etc. And no, they all realise the seriousness so I dont think someone doing it on purpose would be the case

MitziG Enthusiast
MitziG
Posted

I am so sorry you are going through that. My daughter is 13 and has similar issues, and like you, major phobia of vomiting, which unfortunately, she does a lot. I would reccomend an elimination diet for now. Stick with very bland things- rice, chicken, fruit and veggies. Avoid dairy 100%. This can allow your gut to heal, and then you can try adding back one thing at a time. I promise you, this can get better!

As for the nausea, get some Braggs apple cider vinegar. Put a teaspoon in a glass of water and drink when your stomach hurts. It gives almost instant relief and really helps when my daughter is throwing up.

I know it is hard not to be discouraged, but it really will get better. Hang in there!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,814
    • Most Online (within 30 mins)
      7,748
    JaneD
    Newest Member
    JaneD
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.