Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Even My Mom Can Be Rude About Celiac

Kimbalou

Recommended Posts

Kimbalou Enthusiast
Kimbalou
Posted

I am celebrating Mother's Day with my family next weekend because I had to work today. We decided we don't want to cook. So, my mom told me she would get pizza. I reminded her I couldn't eat pizza. She said "well, we can get it for the people who can eat it." (huh? What about me?!) Then I said we could get Chinese food and she menitoned Panda Express. I have told gher before that panda is not gluten free. I told her we could get chinese from a regular restaurant and I would make sure it was gluten free. She sounded so frustrated and just said "well, maybe you should just bring your own food!" I told her it really isn't that hard to find a place with gluten-free food. Since I am a mother too, I felt like it was only fair to have food I could eat. She makes me feel like a burden when I have to eat gluten-free. She refuses to get tested for it, and that bugs me too...but it's her life.

I just think it's rude to mention getting pizza as the first choice! I told her, pizza would be ok if she had a gluten-free pizza place near her (I live an hour away where we have some gluten-free pizza places.) She said she didn't know if they had any gluten-free pizza places near her...and I know she won't call to find any.\

Thanks for letting me vent. I just think when there's not a plan in place for the food to begin with, it's ok for her to figure out a place that I can eat at too. Even my own mom doesn't get it:(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dani nero Community Regular
dani nero
Posted

Life really sucks for us sometimes. Maybe a little more than sometimes :-( Sorry you had to put up with that type of attitude. For me it's my dad who can be awful.. he acts as if the food I eat is uneatable.

*hug hug hug*

Ninja Contributor
Ninja
Posted

On Mother's day?! :( That sounds awful, I'm so sorry you had to deal with that on your day. I get it. My dad likes to make dinner for us on the weekends, however he doesn't take the necessary precautions as he is the gluten eater in the family) to keep things free of cc. He gets frustrated when I begin to tell him what he needs to do to keep things safe (washing hands, etc), but he doesn't want to learn it himself, either. It really is the truth that if you don't have to deal with it you don't understand.

Hugs,

~Laura

Mnicole1981 Enthusiast
Mnicole1981
Posted

I understand your frustration. This is new for me and we had dinner at my Grandma's and she did not seem to understand that some things will make me sick. I ate what she cooked and I got the left side pain, cramping, and nausea.

1desperateladysaved Proficient
1desperateladysaved
Posted

This is my life every day. I live with 5 people that cannot eat gluten free. I am hoping that one day it will be different. It already has gotten better as people have discovered that is much easier to make one meal which Mom can eat.

We must do what we must do. Hopefully, we are rewarded for it; I know I am.

ravenwoodglass Mentor
ravenwoodglass
Posted

Kim, something that might work for you all is to put the name of your Mom's city and the words 'gluten free restaurants' in a search engine. See what comes up and then suggest a couple that she could pick her favorite from. That might work better than asking her where she wants to go. People don't understand how difficult it is for us and it can be hard for them when the suggestions they make have to be nixed by us. That makes both parties frustrated. I hope you can find a good safe and acceptable solution that will keep you safe and also be good for the rest of the family.

Carebear Apprentice
Carebear
Posted

Ugh that sounds so frustrating!!! My family likes to pretend I don't have dietary restrictions and continues to try and make me plates full of allergens and whatnot around the holidays.

I try my best to make sure I'm the first one to suggest a place to eat when we go out, and always google and call some gluten free places around my parents when I'm in town.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

We understand that some family membes can't get gluten-free.. I think when a Mom doesn't get it it becomes hurtful... As we think of our Mom as our rock & pillar to turn too...My Mom is gone but she always understood so I was very lucky.

But for other family gatherings I take my own food, always. I never expect anyone who is not gluten-free to understand the risks of being gluten-free.. Just easier to take my own & enjoy the friendship part of the day....and not be sick after.If I know what the food is going to be then I'll match it & I always take extras for others who dare to taste gluten-free..I have been asked to bring gluten-free foods to gatherings because the gluten eaters enjoyed the food..Once they find out our food is good , then we have won part of the battle...

hugs

MikeOhio Rookie
MikeOhio
Posted

Sorry to hear that. My mom's usually pretty good about eating out although I have to eat a lot of french fries and salads and dairy products sometimes. I live in a rural area myself so there's no gluten free restaurants here. I'm thinking about maybe getting some pepper steak from the local Chinese restaurant sometimes. I don't know if I recommend that for you though, but you may be able to find something from a Chinese place. One would hope that with the choice of a gluten free restaurant available your mother could accommodate you

ravenwoodglass Mentor
ravenwoodglass
Posted

Sorry to hear that. My mom's usually pretty good about eating out although I have to eat a lot of french fries and salads and dairy products sometimes. I live in a rural area myself so there's no gluten free restaurants here. I'm thinking about maybe getting some pepper steak from the local Chinese restaurant sometimes. I don't know if I recommend that for you though, but you may be able to find something from a Chinese place. One would hope that with the choice of a gluten free restaurant available your mother could accommodate you

Do make sure to ask if they marinate the meat with soy sauce. Regular soy sauce has wheat so you would want to avoid that.

MikeOhio Rookie
MikeOhio
Posted

Do make sure to ask if they marinate the meat with soy sauce. Regular soy sauce has wheat so you would want to avoid that.

darn, I think you're right about that. I hope I can find something. Thanks for the info.

Jetamio Apprentice
Jetamio
Posted

Aw I'm sorry you had that happen on Mother's Day! I find mixed responses in my family. My daughter has been fantastic about it. My mom is trying to understand it more but won't get tested herself (she has IBS, MS and Fibromyalgia). So far the only real response she gives is a grunt and a "that sucks" when I explain what gluten free means. Hang in there and take care of you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748
    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.