Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Just Want Some Virtual Hugs


aquaholical

Recommended Posts

aquaholical Apprentice

I have Lyme Disease and the Celiac symptoms started last September. Officially diagnosed Celiac end of this last March. The last 6 months have been a blur of unbearable pain. As we all well know, going completely gluten free has a steep learning curve and I feel like I am always either accidentally glutening myself or having a lyme flare-up. Always in such debilitating pain and it's starting to get to me. So difficult to cook for/take care of yourself when you're in crippling pain. Trying to decide if I want to take some time off work. Luckily, I have a very understanding/supportive job & co-workers and short term disability available. It's looking more appealing each day, esp on ones like today when I'm incapable anything other than lying in bed..

I just want some hugs.

<3


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Oscar Apprentice

{{{Hug}}} {{{Hug}}} {{{Hug}}} :wub:

See, I'm not really such a grouch after all. ;)

psawyer Proficient

During my journey through celiac hell, which lasted about five years, I had many days like that. I don't share the Lyme issue, so my experience may not be the same as yours. The descent took several years; the rise didn't happen overnight. Although I saw some improvement quickly, it was about four months before I felt normal, and I still had some symptoms for another few months. Coming up on twelve years gluten-free, I have never felt better!

Oh, and you asked for ((((HUGS)))) - there you go!

cahill Collaborator

((((HUGS))))

alex11602 Collaborator

(((((((((((HUGS)))))))))))

aquaholical Apprentice

Thank you!!!! {{{{{{HUGS BACK AT YA}}}}}

squirmingitch Veteran

Here come some more (((((HUGS)))))!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beachbirdie Contributor

I have Lyme Disease and the Celiac symptoms started last September. Officially diagnosed Celiac end of this last March. The last 6 months have been a blur of unbearable pain. As we all well know, going completely gluten free has a steep learning curve and I feel like I am always either accidentally glutening myself or having a lyme flare-up. Always in such debilitating pain and it's starting to get to me. So difficult to cook for/take care of yourself when you're in crippling pain. Trying to decide if I want to take some time off work. Luckily, I have a very understanding/supportive job & co-workers and short term disability available. It's looking more appealing each day, esp on ones like today when I'm incapable anything other than lying in bed..

I just want some hugs.

<3

Lyme is no fun. You have a double-barreled challenge going on right now.

{{{{{{{{{HUGS}}}}}}}}}

MitziG Enthusiast

Many hugs to you! If you have the benefit, take advantage of that. Rest and reducing stress does much good towards helping your body recover!

farmer jennings Newbie

Many hugs from us here including my silkie chickens- great snugglers. I know what it is like to have multiple problems. Remember we are all here to support you. I will keep prayers going for you. God Bless!!!

dani nero Community Regular

*Really giant big fat hug* :-D

jeanzdyn Apprentice

(((HUGS))) for you aquaholical.

I really feel bad for those with celiac disease who have other afflictions as well --makes it so much tougher.

And I am greatful that I have not been terribly sick. I have had symptoms that can be attributed to celiac disease since about 1977. I did a lot of research on my own to find 'cures' for various ailments, or, if not cures, then relief in some form. The result was that, long before I was diagnosed with celiac disease, I had eliminated many foods from my diet. So that part has been easier for me.

Anyway, I feel for you! more (((HUGS))) to you.

bartfull Rising Star

Having to deal with constant pain while you are going through this is almost too much for anyone to deal with. Yet you are doing it. You must be a very strong person, and are to be admired for still working. If you think taking time off would help, do it. If you think continuing to work will keep your mind occupied so you have something else to think about besides the pain, do that.

But in the meantime, here's a great big (((((HUG))))) from me, and one from my kitty, Grommit (((((PURR)))))

JNBunnie1 Community Regular

But in the meantime, here's a great big (((((HUG))))) from me, and one from my kitty, Grommit (((((PURR)))))

This is a great idea! Virtual hugs for everyone!!!

Also, do you have any friends with gentle pets? Pet hugs work really good. Also, a Netflix subscription! Lots of comedy that will at least make you laugh, which is very good for your hugs needs!

Bubba's Mom Enthusiast

Lyme disease AND Celiac? :blink:

I don't know how you hold it together!

(((HUGS)))

squirmingitch Veteran

Lyme disease AND Celiac? :blink:

I don't know how you hold it together!

(((HUGS)))

Makes the rest of us look like wusses doesn't it?unsure.gif

jigsawfallingintoplace Newbie

Awwww (((hugs))

i have just come out of a bad glutening after being symptom free for just over 2 months. Its a rocky road that is for sure but someone once saod to me that 'the most difficult paths lead to the most wonderful views'

You are right to feel low - pain in crippling and takes over every waking moment when you are poorly so be gentle and kind to yourself and hold on to the fact that you will come through this and get even stronger. and in the meantime keep coming back here where there is a lot of love and understanding for you sweetie - you are work in progress and you will get there - do whatever it takes to nurture your health and aid your recovery xx

cait Apprentice

Right there with you. Coming up on 11 years with Lyme. Recently determined it is still active infection, but no good way of treating it since I didn't really respond to years of antibiotics and other fun treatment. Continually adjusting my diet to see if I can get anywhere near how I felt right after going gluten-free. No luck. Exhausted, so exhausted. Pain. Can't keep up with my life. Don't want this to be my life. Don't know what to do.

I feel your pain. Big hugs.

mamaupupup Contributor

Hugs Hugs Hugs!

  • 11 months later...
Loey Rising Star

Lyme is no fun. You have a double-barreled challenge going on right now.

 

{{{{{{{{{HUGS}}}}}}}}}

 

 

Sending lots of healing (((hugs))))

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.