Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Imunovir

SLHW

Recommended Posts

SLHW Newbie
SLHW
Posted

Hi, I was prescribed Imunovir from Canada because my Celiac disease has caused me to also have extreme chronic fatigue. After receiving it today I saw that it contained wheat starch. After contacting the company I was told that it is in such a small amount (wheat) that it is still considered gluten-free. Well, I don't think I trust that! Just wondered if anyone had any experience with the medication. For chronic fatigue, my Dr. considers it a "last resort" medication. I sure was hoping, but now I am severely depressed as my last resort may not be an option. I appreciate any help on the matter.

Thank you so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


FernW Rookie
FernW
Posted

I have never heard of that drug, I also have Chronic Fatigue to where I am no longer able to work. Also have depression, nothing works for that either. Even got a dog, thought it would help, and she does some but I still sleep all day. I sleep about 15-20 hours a day. Not much time for anything. Been going on 4 years now. The fatigue came before the depression. Anyway you said the drug has small amounts of wheat in it. Well I only need a small amount to set off my celiacs. I would not take any drug with wheat. Might make you feel even worse. I am very interested in this drug and if you decide to take it let me know if it works. I will keep track of this thread. Thanks. Good Luck.

VydorScope Proficient
VydorScope
Posted

Hi, I was prescribed Imunovir from Canada because my Celiac disease has caused me to also have extreme chronic fatigue. After receiving it today I saw that it contained wheat starch. After contacting the company I was told that it is in such a small amount (wheat) that it is still considered gluten-free. Well, I don't think I trust that! Just wondered if anyone had any experience with the medication. For chronic fatigue, my Dr. considers it a "last resort" medication. I sure was hoping, but now I am severely depressed as my last resort may not be an option. I appreciate any help on the matter.

Thank you so much!

How long have you been gluten-free for? If the chronic fatigue is due to Celiac, then just being gluten-free for a while should clear that up with out drugs. I am not in a position to tell you to not take a drug that your doctor prescribed, but I would at least tell you to call him and ask him about it. Perhaps he has a different one he could offer? I will say this, if that drug was prescribed for my son, I would say "No, thanks."

SLHW Newbie
SLHW
Posted
  • Author

Thanks to you both for replying. You echoed my thoughts. A tiny bit of wheat each day seems like a terrible idea. I have been gluten-free for over 5 years. The fatigue party comes from celiac but partly from other things like high levels of Epstein Barr and other viruses. I can't even think of all the things I have going on. I have been going to a fatigue and Fibromyalgia clinic/doctor for 2 years and she is the one who prescribed this medicine. It is from Canada and not FDA approved. A friend of mine with similar fatigue has had some improvement with the drug, so I was hopeful but not after I found out about the wheat.

Thanks again for your help and opinions. I will post again if I have anything else on the matter after I call my doctor tomorrow.

SLHW

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,796
    • Most Online (within 30 mins)
      7,748
    Mary hopper
    Newest Member
    Mary hopper
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      Build muscle back feeling weak?

      By Rogol72 · Posted

      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
    • Scott Adams
      What apps or tech tools help you manage celiac disease?

      By Scott Adams · Posted

      I am just sharing this newly launched app:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.