Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Esophagogastroduodenoscopy

roxieb73

Recommended Posts

roxieb73 Contributor
roxieb73
Posted

Any tips? I know with my double DQ1 status chances that it is shows anything are slim but I have other reasons to have it done like vomiting blood. So wish me luck.

Roxie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

You have all the luck I can throw your way. I hope it solves some of your issues. Be well.

MitziG Enthusiast
MitziG
Posted

EGD is a piece of cake. (Gluten free cake cuz if it was real cake it would be enjoyable!)

But it is no big deal- be over before you know it. I didn't even have a sore throat after. I did have a lot of belly pain for a few days though (irritated duodenum I was told when I went to the ER)

Make sure to confirm the number of biopsy samples the GI will take before you go under! Bare minimum of 4- 8-16 is recommended. Most only do 1 or 2, and a few think they can just "look around" and rule out celiac. (Mine was one of those. I grudgingly got him to agree to take 4 samples IN the OR! He told me he cud dx celiac by looking! As it turned out, in my case he cud. But when he did my daughters, he was shocked because her intestines looked perfect, but the biopsies I forced him to do showed celiac. Ha! Vindication!)

Anyway...just don't be afraid to be firm about what he is going to do. You would be shocked how many people go under for a celiac check and the doc ends up not doing it cuz he thinks he finds out "the real probblem" this happened to both my nieces and a good friend! So they had surgery for nothing and ended up on PPI's because the doc dx barretts esophagus in all of them. Duh! Celiac can cause Barretts!

Anyway...hope yours goes very well and they get to the bottom of your problem!

Cara in Boston Enthusiast
Cara in Boston
Posted

Bring someone with you to talk to the doctor when you are done.

I was a babbling idiot after the sedative wore off so I have no idea what I said to the doctor and not really sure what he told me . . . I had to call back the next day to get information/instructions, etc.

Cara

squirmingitch Veteran
squirmingitch
Posted

And Roxie, between now & then gorge yourself on all the gluteny things you love the best. Make a total pig of yourself! Maybe it will make you so sick of those food items that when you go gluten-free you'll never miss them & will in fact gag at the very thought of them.smile.gif

A little psychological warfare never hurt anyone.laugh.giflaugh.giflaugh.gif

roxieb73 Contributor
roxieb73
Posted
  • Author

You have all the luck I can throw your way. I hope it solves some of your issues. Be well.

Me too thank you so much! :D

roxieb73 Contributor
roxieb73
Posted
  • Author

EGD is a piece of cake. (Gluten free cake cuz if it was real cake it would be enjoyable!)

But it is no big deal- be over before you know it. I didn't even have a sore throat after. I did have a lot of belly pain for a few days though (irritated duodenum I was told when I went to the ER)

Make sure to confirm the number of biopsy samples the GI will take before you go under! Bare minimum of 4- 8-16 is recommended. Most only do 1 or 2, and a few think they can just "look around" and rule out celiac. (Mine was one of those. I grudgingly got him to agree to take 4 samples IN the OR! He told me he cud dx celiac by looking! As it turned out, in my case he cud. But when he did my daughters, he was shocked because her intestines looked perfect, but the biopsies I forced him to do showed celiac. Ha! Vindication!)

Anyway...just don't be afraid to be firm about what he is going to do. You would be shocked how many people go under for a celiac check and the doc ends up not doing it cuz he thinks he finds out "the real probblem" this happened to both my nieces and a good friend! So they had surgery for nothing and ended up on PPI's because the doc dx barretts esophagus in all of them. Duh! Celiac can cause Barretts!

Anyway...hope yours goes very well and they get to the bottom of your problem!

That is great advice. Thank you for sharing your story too. I really don't expect the biopsies to turn up anything. From what I have read it is VERY RARE for a DQ1 to have villi damage.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


roxieb73 Contributor
roxieb73
Posted
  • Author

Bring someone with you to talk to the doctor when you are done.

I was a babbling idiot after the sedative wore off so I have no idea what I said to the doctor and not really sure what he told me . . . I had to call back the next day to get information/instructions, etc.

Cara

Hahaha :D Thanks Cara got it covered my mom is a nurse and she is taking me. ;)

roxieb73 Contributor
roxieb73
Posted
  • Author

And Roxie, between now & then gorge yourself on all the gluteny things you love the best. Make a total pig of yourself! Maybe it will make you so sick of those food items that when you go gluten-free you'll never miss them & will in fact gag at the very thought of them.smile.gif

A little psychological warfare never hurt anyone.laugh.giflaugh.giflaugh.gif

This I will definately do! :P Going to say my goodbyes to my favorite Lo Mein tonight. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,594
    • Most Online (within 30 mins)
      7,748
    Deborah Walker
    Newest Member
    Deborah Walker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • amantelchi
      Stomach hurts with movement

      By amantelchi · Posted

      I'd like to clarify: Is the pain you describe in the area just below your chest constant, or does it only appear when you start moving?
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.