Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Confused Than Ever


bkjkc

Recommended Posts

bkjkc Newbie

My husband has been pretty sick the last 3 weeks with major explosive gas and diarrhea. Been to a few different docs and ruled out parasites and other infections. Doc ran a celiac panel. Here are the results:

Tissue Transglutaminase IgA: 11

Anti Gliadin Deamidated IGG AB: 2

Anti Gliadin Deamidated IGA AB: 7

Immunoglobulin IgA: 287

I am so confused. The doc said possible celiac but these numbers confuse me. He had a colonoscopy last Friday so we are waiting for those results. Thoughts? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I don't know about the blood test results...I think you need to know the range...from the lab.

But I do know that it takes an endoscopy that goes through the mouth and stomach to test for Celiac disease. The colonoscopy can diagnose other things but not Celiac. Others who know more about testing will answer you soon I am sure. Welcome and good luck to both of you.

bkjkc Newbie

I don't know about the blood test results...I think you need to know the range...from the lab.

But I do know that it takes an endoscopy that goes through the mouth and stomach to test for Celiac disease. The colonoscopy can diagnose other things but not Celiac. Others who know more about testing will answer you soon I am sure. Welcome and good luck to both of you.

Sorry. I should have posted the ranges. The first three say normal range is 0-19. The last test says 71-263. There are so many differing opinions it is hard to know what is really "normal". The doc said he also biopsied a part of the small intestine during the colonoscopy so we shall see. Appt Thursday afternoon. Thanks, all.

MitziG Enthusiast

All of his test were within normal range, nothing to indicate celiac there. A full celiac panel was not done however, and it is possible for the other tests to be positive still.

Colonoscopy biopsies can NOT show celiac. It is a common misconception among doctors that they can for some reason. The opposite end of intestine needs to be biopsies, the duodenum, which is near the top of the small intestine. In order to take biopsies from there, they must do an endoscopy.

Your husbands symptoms certainly could point to celiac however, and kudos to your doc for thinking to check. Most docs are ignorant of the prevalence and will rarely think to test an adult.

Your husband could also have developed non-celiac gluten intolerance. Exact same symptoms, and same treatment. Gluten free for life. Unfortunately, their is no way to "test" for ncgi.

When your husband has all of his tests done, definitely trial a gluten-free diet. He may get significant relief. For now, keep him eating normally. Changing his diet before testing is complete (including endoscopy) can cause a false negative.

I hope you get some answers soon. Welcome to the boards.

MitziG Enthusiast

I correct myself, his total IGA was a bit high. I re-read the ranges. That may or may not be a red flag, but isn't necessarily a marker of celiac.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.