Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Trouble With Soy


ramseyb

Recommended Posts

ramseyb Newbie

Does anyone besides me also have trouble with soy products? These go right through me and cause bloating, gas, pain and diarrhea. This is frustrating in finding gluten free products because so many of them contain soy. What's a girl to do? :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmengert Enthusiast

Yeah, unfortunately I have the same symptoms when I ingest soy. And it's in everything! Even tuna fish that is supposed packed in spring water has soy in it. The bad thing is, too, that a lot of premade gluten-free products are made with soy flour or soy protein. And chocolate, too! Woe is me! I'm getting used to it, though--it just means even more cooking from scratch. I make a lot of baked goods using Pamela's Baking and Pancake mix now because there's no soy in some of her stuff--'Cause You're Special also has several mixes without soy that are great, if you're looking for good dessert items, which is where I mostly see soy in products.

burdee Enthusiast

I also learned I have soy intolerance after I substituted soy milk, etc. for dairy products after my Enterolab tests indicated casein (dairy) intolerance. My soy contamination symptoms are similar to my gluten symptoms (bits of broken glass in my intestines, bloating and gas) and to my dairy symptoms (cramping pain like menstrual cramps), but only milder. I encourage anybody with soy intolerance to SCRUPULOUSLY read labels. Anything that's dairy and gluten free usually has soy. Many gluten free products have soy. YUP, fish canned in 'water pack' often includes soy in that water.

I have a great cookbook by Connie Saros entitled "Special Foods for Special Diets" which describes how to make gluten/dairy/soy (or whatever intolerance you have) substitutions for all her recipes. She also lists all the words which mean 'soy' ingredients.

After over a year w/o chocolate I FINALLY found a gluten/dairy/soy free chocolate bar made by Elite (a company in Isreal) especially for passover. The kosher department manager of a local grocer special ordered a case for me. They have a sugar free version and the bittersweet (sugar sweetened) version which I use because I can't tolerate any sorbitol type of sweetner. EnjoyLifeFoods makes gluten-free/df/sf chocolate chips and cookes. Ener-G Foods also makes chocolate chips (available October-May) and chocolate chip cookies.

Soy intolerance in addition to gluten and dairy intolerance is a challenge, but abstaining sure beats those painful contamination reaction episodes!!! :lol:

BURDEE

jenvan Collaborator

I can have issues with soy too...but there are some good brands out there that are soy free:

Namaste: Open Original Shared Link

Enjoylife: www.enjoylife.com

These are two off the top of my head...but there are more.

Merika Contributor

oh yeah! soy is a HUGE problem for us - especially my son age 3 who gets major behavioral problems from it as well.

There are lots of soy free and gluten-free products out there, including chocolate :) Whole Foods 365 brand sells a decent chocolate bar. Look out for my post on Pamela's chocolate cake mix, though, they claim to be soy free, but I'm just not sure it is.

IMO, soy is harder to avoid than gluten. Having been gluten-free for 1 1/2 yrs now, and in the past year adding a bunch of other things I've found I'm allergic to that I now avoid - I can say that if my only dietary restriction were gluten, almost the whole world of food would be open to me, lol. It would be sooo easy by comparison to what I do now.

Soy goes under other names as well, you may want to search the archives here, I could try to list them all , but i ususally forget a few. One of these days, maybe soon, I am going to post them all on my website for easy referral.

Merika

tarnalberry Community Regular

I seem to have gas problems from too much soy. I can have a little bit, and not every day, but too much makes me gassy. :-(

kabowman Explorer

EnjoyLife foods has a dairy free/soy free chocolate chip that can be added to (I forget the name of the brand) brownie mix that tastes just like normal if you don't mind spending a small fortune that I have no problems with and I am very sensitve to soy. I even found it in one of my hand lotions and had to give that up.

Watch out for soups - only homemade now with only homemade broths.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mandigirl1 Enthusiast
I also learned I have soy intolerance after I substituted soy milk, etc. for dairy products after my Enterolab tests indicated casein (dairy) intolerance.  My soy contamination symptoms are similar to my gluten symptoms (bits of broken glass in my intestines, bloating and gas) and to my dairy symptoms (cramping pain like menstrual cramps), but only milder.  I encourage anybody with soy intolerance to SCRUPULOUSLY read labels.  Anything that's dairy and gluten free usually has soy.  Many gluten free products have soy.  YUP, fish canned in 'water pack' often includes soy in that water. 

I have a great cookbook by Connie Saros entitled "Special Foods for Special Diets" which describes how to make gluten/dairy/soy (or whatever intolerance you have) substitutions for all her recipes.  She also lists all the words which mean 'soy' ingredients.

After over a year w/o chocolate I FINALLY found a gluten/dairy/soy free chocolate bar made by Elite (a company in Isreal) especially for passover.  The kosher department manager of a local grocer special ordered a case for me.  They have a sugar free version and the bittersweet (sugar sweetened) version which I use because I can't tolerate any sorbitol type of sweetner.  EnjoyLifeFoods makes gluten-free/df/sf chocolate chips and cookes.  Ener-G Foods also makes chocolate chips (available October-May) and chocolate chip cookies. 

Soy intolerance in addition to gluten and dairy intolerance is a challenge, but abstaining sure beats those painful contamination reaction episodes!!! :lol:

BURDEE

<{POST_SNAPBACK}>

Could you please send me information on how to buy those chocolate bars from Isreal (Elite). Do they make any other products that are gluten-free???? I love finding new products....it makes it so much easier to deal with celiac disease.....I hate getting bored or being addicted to one type of food....

Thanks!!!! :D

burdee Enthusiast

Hi Mandigirl:

I'm not sure if you wanted a gluten/soy/dairy free chocolate or just a different kind of chocolate. If soy doesn't bother you, Tropical Source makes a gluten/dairy free chocolate bar in many different flavors (w/ almonds or hazelnuts or raspberry or mint or dark expresso), but all contain soy lecithin. If you really need a gluten/soy/dairy free chocolate BAR (rather than chips which you can get from Enjoylifefoods and Ener-G Foods), Elite is the only gluten-free/sf/df brand I have found, but it wasn't easy. The kosher dept. of my local Quality Foods Company (OFC) also Kroeger carried them just during passover. However another celiac friend found them, liked them and recommended them to me when she heard I needed gluten-free/sf/df chocolate. So we had to ask the kosher manager to special order them again.

Here's more info: The front label is dark brown with a picture of a cow in an off white oval and says: Elite Bittersweet Chocolate Net wt. 1.5 oz. Ingredients: sugar, chocolate liquor, cocoa butter, emulsifier (PGPR) artificial flavor (vanillin) salt, chocolate contains: cocoa solids 444% mini. KOSHER PARVE FOR PASSOVER, KITNIOT FREE LECITHIN FREE UNDER THE SUPERVISION OF NAZARETH-ILLIT RABBINATE. Produced by Elite Confectionery LTD. Nazareth-Illit, Israel. The UPC code on that variety is 0 77245 10269 1. Elite makes other varieties, including a sugar free (mannitol sweetened) and regular milk chocolate (includes dairy), as well as one which contains soy lecithin. So you probably need to provide that UPC code when you order it from a local grocer.

BURDEE

cdford Contributor

According to my doc, soy in celiac disease patients can also be a contributing factor in neurological symptoms. I know mine get much worse when I ingest soy.

kvogt Rookie

Soy causes me brain fog to the extreme. Can form sentences.

  • 3 months later...
Linda Macomber Newbie

Does anyone besides me also have trouble with soy products? These go right through me and cause bloating, gas, pain and diarrhea. This is frustrating in finding gluten free products because so many of them contain soy. What's a girl to do? :unsure:

Yes, I have the exact same symptoms.

lonewolf Collaborator

I can't tolerate soy at all, except for soy lecithin. I avoided even it for several years, but then got information from the Food Allergy and Anaphylaxis Network that many people who are allergic to soy can tolerate the lecithin. I don't even try soybean oil, even though it is supposedly safe too. There's a lot of evidence/research that shows that soy isn't really good for anyone, unless it's fermented, which breaks down something called phytates, which is what can cause symptoms like you've described.

Liz

Jen H Contributor

Hey guys,

How did you discover you are intolerant to soy? Was it allergy testing or trial and error? Also, what other symptoms do you get?

:)

cornbread Explorer

www.enterolab.com now do stool tests for soy (and eggs and yeast). I figured out I had a soy problem just from symptoms after eating it, and this was confirmed with a positive enterolab test. Soy (and yeast) produce elevevated IgA antibodies in me, just the same as gluten and casein. I get varying degrees brain fog, fatigue, depression and gastric problems from them all. Dr Fine believes that anything that causes these elevated antibodies could do the same damage as gluten, so I avoid all 4 items with the same vigour. It ain't easy, but I don't see the point in being vigilant about gluten then going ahead and poisoning myself with soy (or yeast/casein).

lonewolf Collaborator
Hey guys,

How did you discover you are intolerant to soy? Was it allergy testing or trial and error? Also, what other symptoms do you get?

:)

I tried drinking soy milk when I suspected I was allergic to cow's milk. Big mistake. I reacted with worsening joint pain (I already had arthritis), upset stomach and just feeling yucky. When I did an ELISA (Great Smokies Lab) test for IgG food sensitivities several weeks later soy was the 2nd highest reaction, next to gluten. That was almost 10 years ago and I still don't tolerate it well, although most of my soy consumption has been in the form of soy sauce, which I didn't stop to think contained gluten until recently.

Liz

Jen H Contributor

Thanks, I was just wondering how you found about your soy intolerance. I am in the middle of allergy testing and found out I am also intolerant to soy. It's been incredibly hard to keep it out of my diet. I have been very nauseous and have had stomach pain as well. I'm hoping it's just gluten and soy that I have to stop eating. How long did it take for you to feel better?

  • 1 year later...
Marlet Newbie

Hi

Nobody's mentioned that most soy milks, cheese et al, have casein which is a dairy product that alot

of people are alergic to.

  • 1 month later...
dally099 Contributor

hmmmm, im finding this interesting as i have been not eating any soy for the last year as it causes me hives and severe facial and throat swelling, well i dedided this week to see about re introducing it and have found that soy lectin does not seem to be a problem, however i had something with soybean oil in it for lunch and im finding that my lower lip has swollen. so it makes me think that the lectin may be okay, and i did some reading online and there are allergy sites that state that the lectins are a very broken down form of the protein and for most people they are tolerable, it states this about soybean oil as well but again i have swelling from that any thoughts?

Juliebove Rising Star

My daughter is allergic to soy. Soy protein or soy flour send her to the bathroom, doubled over in pain. She does not seem to react to soy lecithin, and although I generally do not allow her to have soybean oil, she does get it occasionally in restaurants and doesn't seem to react to it.

dally099 Contributor

i find this most interesting because sure enough i woke up this morning and my lips were a little more swollen and soybean oil was in what i ate yesterday. so im going to give a couple of days to get out of my system and then start eating the lectin. it would sure be nice as at least the lectin would open up my food options a little bit.

hathor Contributor

There are other soyfree, dairyfree, glutenfree chocolate bars out there. Such as:

Green & Black -- Dark 85%

Dagoba -- Conacado

Art Bar -- Dark; Dark with Coconut

Sweet Earth -- many products

Rapunzel -- Semisweet varieties

I've purchased bars at Trader Joe's too. I can't remember precisely, but I think it was a house brand.

I know this subject has come up repeatedly on this forum, so you might search for some other possibilities. I know someone mentioned a chocolate I wanted to order, but now I can't find the link or remember the name :(

Also realize that most people who react to soy do not react to soy lecithin. If you are in this category, lots more chocolate possibilities open up :D

Kaycee Collaborator

I guess I am the unusal one. I gave up soy on a whim, and I personally don't like the thought of soy, like wheat, it is in nearly everything. I knew something else was bothering me after being gluten free for 6 months, so I thought I would do an elimination diet, and I did stop eating soy along with dairy and peanuts. But it made no difference, so I bought all the other products back in, except for soy, as I thought it was just my stomach and that it would never be normal again, or still needed to settle down, and it did come right after another couple of months all on its own.

I haven't gone back to eating soy, not even soy sauce. I just prefer to go without, so it has been just over a year a minimal soy intake, mainly in my daily yoghurt which has soy lecthtin and some chocolates on occassion, it doesn't seem to bother me. For what I thought was just a personal choice I kept avoiding soy. This goes back to a few years ago when some birds down the road were given soy and they died on it, or had horrible deformities, can't remember which, that thought has stuck in the back of my mind. I think there was a reference to that on another thread.

The other day, I couldn't find my normal soy and gluten-free pasta, thinking that maybe I have been too stringent on myself, I tried one with soy in it. I was sick for the next three days, sore stomach, wind and nearly diarrhoea. So I am beginning to think maybe I was right in the first place to avoid soy and that yes it looks like I do have a problem with it.

Cathy, just my personal experience

  • 2 months later...
cellina Newbie

:( I am so bummed. I think I am reacting to soy as well now. I thought it was just the gluten. Ditto - what IS a girl to do? So tired!

Does anyone besides me also have trouble with soy products? These go right through me and cause bloating, gas, pain and diarrhea. This is frustrating in finding gluten free products because so many of them contain soy. What's a girl to do? :unsure:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.