Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shouldn't I Be Better By Now?


Cait701

Recommended Posts

Cait701 Newbie

Hi there everybody! I'm new to this whole gluten free thing and could use a bit of advice from seasoned veterans.

I started going gluten free about 6 weeks ago and felt fantastic almost instantly. My stomach felt great (who knew that was what normal felt like?!), my energy and confidence were through the roof, life was grand. I didn't get tested for anything, but it seemed obvious that gluten was the culprit.

Then, about 10 days ago, I think I got glutenated. Within a few hours my stomach was churning, and I had the mother of all headaches the next day. What I'm concerned about is that I haven't started to feel much better yet. I'm still having major digestive issues, I can barely stay awake, my anxiety is back, and I'm just plain grouchy. If I felt better quickly after initially cutting gluten, shouldn't I expect the same recovery time when I accidentally slip up?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Two things:

After giving up gluten it is perfectly normal to have a worse response to it if you eat it again, even cc. Consider it your body telling you in no uncertain terms not to do that again :ph34r:

And, you could now be experiencing a delayed reaction to the withdrawal from gluten, the same kind of withdrawal that smokers and drug addicts go through. This will definitely make you grouchy and feel bad.

Give it a couple of weeks and you will probably be a box of birds again. :)

  • 3 weeks later...
Lolli Newbie

I've been told this could take two years and that it would get worse before it got better. Also, as has been stated, that, after going gluten free, glutening would hurt worse than before gluten-free.

bartfull Rising Star

When I first went gluten-free, by about three weeks I started feeling fantastic. Then it all went downhill. I think that's fairly common from what I have read here. It took over a year before I really started feeling good again. I know a year sounds like a long time, but it will go by quicker than you can imagine.

What happened with me and quite a few others is this: my intolerance to gluten and damage to my gut caused my body to "think" other things (like corn, soy, nightshades, and salicylates) were actually gluten. I was, as my nutritionist put it, in "hyperdrive". I was even reacting to pesticide and chemical fertilizer residues. I went stricktly organic for a while, and remained stricktly gluten-free, corn, soy, nightshade and salicylate free.

After a while, I healed. Now I am adding back all of those other foods successfully (so far). But in the meantime, I am actually grateful for all of it. I lived on junkfood. My diet was as unhealthy as could be. Now, even if they found a magic bullet that cured celiac, I would never go back to eating the way I did. I am eating and enjoying a healthy diet, and honestly, I feel better than I felt even before I got celiac.

So give it some time. Keep a food diary. Start with as few foods as you think you can get away with, and once you start feeling good, slowly add one food at a time back.

Also, check all of your medications and supplements. For some reason we tend to forget them, and a lot of times they are the culprit.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,896
    • Most Online (within 30 mins)
      7,748

    Judy M
    Newest Member
    Judy M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.