Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Day 8...still Glutened


kittty

Recommended Posts

kittty Contributor

This is really frustrating. I was glutened last Tuesday and I'm still having symptoms today. They are also getting worse instead of better! I was up all night with stomach cramps, D and nausea, and still have lingering anxiety.

When I first went gluten-free I was also lactose intolerant, but overcame that after a month or so. Is it possible that being glutened has left me temporarily lactose intolerant again? That could explain the stomach issues, because I ate some cheese last night.

As for the anxiety, I called my doctor this morning and asked for a prescription of Xanax. It took the edge off a little bit when dealing with anxiety before (or at least it helped me sleep). I usually get the generic alprazolam. Does anyone know if this medication is really gluten free? I did a search on past posts on this board and there were people who strongly claimed it wasn't gluten free, and others who strongly claimed it was gluten free. I'm really confused!

I have a hard time overcoming the anxiety, because it sort of self-perpetuates and I can't shake those anxious feelings very well on my own. But, I don't want to take something for it only to continue being glutened and ending up in a loop.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Xanax is listed at glutenfreedrugs.com as gluten-free in all forms but an't say about the generic. And here are the gluten-free ones listed for the generic -- Alprazolam (Geneva, Greenstone, Mylan, Novapharm, Sandoz) Alprazolam XR (Geneva, Greenstone, Mylan, Novapharm, Sandoz). Of course formulations can change, but the VAST majority of medications are gluten-free. It's really quite rare to find a prescription med that isn't.

If you're taking the generic, the only way to know for certain is to find out who makes it and call them. Even then you might get the CYA routine.

richard

kittty Contributor

Thanks for the response! It makes me feel better than this medication is gluten free.

However, I called the doctors office and they won't give me a refill. I need to make an appointment first, and the earliest they can get me in is next Thursday afternoon. :(

Oh well. I'll have to stick it out until then. Hopefully the glutening will be over by then anyway. I am feeling less consistently anxious at the moment, but it comes and goes.

  • 2 weeks later...
quincy Contributor

Thanks for the response! It makes me feel better than this medication is gluten free.

However, I called the doctors office and they won't give me a refill. I need to make an appointment first, and the earliest they can get me in is next Thursday afternoon. :(

Oh well. I'll have to stick it out until then. Hopefully the glutening will be over by then anyway. I am feeling less consistently anxious at the moment, but it comes and goes.

Klonapin is also a benzo drug like Xanax but it is more effective for longer term use. Xanax can cause very bad rebound anxiety so you wind up having to take it every 6 hours indefinitely or you will get awful rebound anxiety worse than the initial anxiety.

Xanax works for the night terrors and panic attacks, but you really don't want to use it more than an attack here and there. Klonapin allows you to take a dose and it will keep the anxiety awayall day pretty much. I am very sensitive to meds to .5 mgs really works for me. I take it at night before bed if I have to, but thankfully my most recent bout with anxeity depression passed with minimal klonapin use.

kittty Contributor

Klonapin is also a benzo drug like Xanax but it is more effective for longer term use. Xanax can cause very bad rebound anxiety so you wind up having to take it every 6 hours indefinitely or you will get awful rebound anxiety worse than the initial anxiety.

Xanax works for the night terrors and panic attacks, but you really don't want to use it more than an attack here and there. Klonapin allows you to take a dose and it will keep the anxiety awayall day pretty much. I am very sensitive to meds to .5 mgs really works for me. I take it at night before bed if I have to, but thankfully my most recent bout with anxeity depression passed with minimal klonapin use.

I haven't noticed any rebound anxiety with Xanax, probably because the dose is only 0.25, and I cut those in half. I'm also not on it long term - just when the anxiety is really bad.

Mateto Enthusiast

How about soy, or any nuts? Maybe it's not just lactose but casein as well?

I know exactly how you feel.

I'd suggest an elimination diet and see what happens. Of course I'm only new to this myself, so don't take my word as prescription!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...