Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back After Being Gone A While

txplowgirl

By txplowgirl
in Coping with Celiac Disease

Recommended Posts

txplowgirl Enthusiast
txplowgirl
Posted

Hidy everbody,

Well, i'm back, i've been gone awhile, a liitle over a year and I came back because i'

m having some issues and i'm alittle ashamed because I knew better.

Oh man, lets see if I can get all yall up to speed.

Was a truck driver battling Fibromyalgia, Chronic fatigue and supersensitive gluten issues. Well, it got down to where a little over a year ago I had to come off the truck due to back problems as well as the Fibro and found out that I have not 1, not 2, not 3 but 6 bulging discs in my neck and back. Can anyone say OWWW? Lol

3 in my neck with a bone spur and 3 in my lower back. Been seeing a Chiropractor, also I have an appointment in a couple of weeks with a nuerologist. See what he has to say and discuss whether or not if I should try for disability and blah, blah blah, on that.

Made the mistake of having the Celiac test due to family bugging me and of course it was negative which I totally expected but shouldn't have done because you can guess what happened next.

Yep, went back on the gluten and here I am right back where I was where I started. Have gained back 25 lbs of the 50 I lost, back on blood pressure meds, back on anti depressants, anemic again and feeling like crap on top of everything else.

So, gearing up to do this again and I plan on being gluten free from now on no matter what anybody says. So, I came back for the great moral support.

To help with this I ordered the Nutribullet to help get me started, (was wondering if anyone here has tried it?) Now, just gonna wait until it comes in, doing research and pysching myself up to do this.

Oh, and I got married to the ole Goat about 3 months ago. (Ducking behind the couch). I'm a glutton for punishment ain't I? :P

So, how's everyone doing? :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tom Contributor
tom
Posted

The ole goat lol. I remember you tx tho we didn't talk much. You've really had a lot goin on. Welcome back.

justlisa Apprentice
justlisa
Posted

Hi there!

Sorry you're having so much trouble! I hope you can get some relief for your neck and back...

Tell the Ol' Goat that you know best...it's been proven now...you have to be gluten free... ;)

flowerqueen Community Regular
flowerqueen
Posted

Sorry you are having such a bad time. Can I just ask, when you had a test for Coeliacs disease, was it a blood test or a biopsy? (As the blood tests are not reliable) presumably you were eating gluten in your diet prior to the test also?

Hidy everbody,

Well, i'm back, i've been gone awhile, a liitle over a year and I came back because i'

m having some issues and i'm alittle ashamed because I knew better.

Oh man, lets see if I can get all yall up to speed.

Was a truck driver battling Fibromyalgia, Chronic fatigue and supersensitive gluten issues. Well, it got down to where a little over a year ago I had to come off the truck due to back problems as well as the Fibro and found out that I have not 1, not 2, not 3 but 6 bulging discs in my neck and back. Can anyone say OWWW? Lol

3 in my neck with a bone spur and 3 in my lower back. Been seeing a Chiropractor, also I have an appointment in a couple of weeks with a nuerologist. See what he has to say and discuss whether or not if I should try for disability and blah, blah blah, on that.

Made the mistake of having the Celiac test due to family bugging me and of course it was negative which I totally expected but shouldn't have done because you can guess what happened next.

Yep, went back on the gluten and here I am right back where I was where I started. Have gained back 25 lbs of the 50 I lost, back on blood pressure meds, back on anti depressants, anemic again and feeling like crap on top of everything else.

So, gearing up to do this again and I plan on being gluten free from now on no matter what anybody says. So, I came back for the great moral support.

To help with this I ordered the Nutribullet to help get me started, (was wondering if anyone here has tried it?) Now, just gonna wait until it comes in, doing research and pysching myself up to do this.

Oh, and I got married to the ole Goat about 3 months ago. (Ducking behind the couch). I'm a glutton for punishment ain't I? :P

So, how's everyone doing? :D

1desperateladysaved Proficient
1desperateladysaved
Posted

There is nothing like desperation to help keep one in line. Sorry about the pressure that was on you. I am experiecing some of that, but it is starting to change. I feel better enough for others to notice since I have been gluten free 6 months and grain free 4.

You have some rather observeable problems. I can't wait to hear about them resolving.

Diana

psawyer Proficient
psawyer
Posted

Welcome back, Vicky!

kareng Grand Master
kareng
Posted

Hey Vicky! I guess it wasn't a gluten-free wedding cake? :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Hey Girl! yeehaw!

I wondered where you went off to. I missed you!

Congrats to you and the old goat. :)

Glad to see you back on the gluten-free wagon and back on the forum.

...and you know what you need to do--it's just like riding a bike (or in your case, driving a big truck)

Cheers, IH

jerseyangel Proficient
jerseyangel
Posted

Welcome back!

txplowgirl Enthusiast
txplowgirl
Posted
  • Author

Thanks everyone for the welcomes. I appreciate it.

Yes, I ate for gluten a good 2 months before the bloodtests. 2 cheeseburgers a day for 2 months plus Macaronie and cheese. The more gluteny the better and it didn't work. Just felt like crap and visiting the bathroom a lot.

And no, it wasn't a gluten free cake, but knowing how I would react I restricted the gluten stuff a couple days before and for the big day so wouldn't have a problem.

Anyway, back here to do the research again and get back on the bandwagon so to speak. It'll be easier to do this time I hope because I know to expect the withdrawals and cravings and everything that goes with it.

I've been spending a lot of my time the last year on a preparedness site. Getting prepared to try to live through an economical colapse, or even maybe the grid going down. Very interesting people.

Anyway good to be back and looking forward to a better life. So tired of feeling like crap. Hopefully, once i get my inner self working again my back and Fibro will settle down some also.

kareng Grand Master
kareng
Posted

My neighbor's doc tests his fibro patients for Celiac. But even if they test negative, he has them eat gluten free/lite (take the burger off the bun style gluten-free). He says it really helps the fibro.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.