Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy On Monday


karinp

Recommended Posts

karinp Rookie

Hello. I have hashimoto's and also was having a lot of bloating. My endo ran some celiac labs and my tgg iga was 37 and my ttg igg was 39. Greater than 10 is positive.

I have my endoscopy on monday. What should i talk to the gastro about prior to the procedure eg. How many biopsies, etc. Thank you!!!!!"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

For best results ask for 6 or more, and from the duodenal bulb.

Also, ensure the doctor takes samples, even if damage isn't visible to the eye. Some will NOT take samples if they don't see it, which is stupid, since they are looking for microscopic villi damage.

1974girl Enthusiast

Everything she just said.

karinp Rookie

Thank you all!! I plan on talking with the doctor before and making sure she takes six biopsies. Leaving soon, i'm nervous!!!!

Jodster72 Rookie

Im not sure the number of biopsy's they should take as I am fairly new to this myself.

Just wanted to wish you good luck and keep us posted xoxo

Jody

karinp Rookie

Well it's done!!! Was super easy, completely knocked out so didn't know what was going on. I guess my intestine looked normal but she took six biopsies. She also said where my esophagus meets my stomach was a bit abnormal so she took a biopsy to check for barrets disease.

I asked about what if my biopsy was negative but my labs positive. She said they could check another blood test, i think the genetic one and i also could try a gluten free diet to see if the ttg iga comes down.

archaeo in FL Apprentice

Karinp, my GI told me that my intestines looked totally normal after my procedure and made a follow-up three month appointment. They mailed a copy of the initial results, which showed inflammation.

Two weeks later her nurse called and said the biopsied showed Celiac, and to start a gluten-free diet. They sent a very not-helpful three-page photocopied pamphlet indicating what is and is not generally gluten-free. When I asked if I should come in for a follow-up sooner, the nurse said no, and that I couldn't anyway - the GI takes the whole summer off!

So... it may take a while, but your biopsy results should be helpful. And I'm glad you're done - it's a good feeling!

In the meantime, now that your tests are done, I'll recommend what folks here recommended to me - no reason not to go ahead and start the gluten-free diet now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...