Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Found Something For Inflammation

AVR1962

By AVR1962
in Coping with Celiac Disease

Recommended Posts

IrishHeart Veteran
IrishHeart
Posted

I know....sigh, but I do have the GEM of a lifetime GI doc in my corner now!

and even HE said it was okay to "indulge in moderation" and it was better than taking NSAIDS, muscle relaxers or narcotic pain meds. ;)

Seriously, going out to get the Tart Cherry juice tomorrow. Patti's idea is a good one.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 137
  • Created
  • Last Reply
kareng Grand Master
kareng
Posted

I was thinking of putting it in the tea or lemonade or lime soda? Perhaps a cherry margarita!

Have a "check-up" tomorrow. Not sure I will mention the tea. She may be pissed that I had the lab tech change what lab tests I got. :ph34r:

IrishHeart Veteran
IrishHeart
Posted

I was thinking of putting it in the tea or lemonade or lime soda? Perhaps a cherry margarita!

Have a "check-up" tomorrow. Not sure I will mention the tea. She may be pissed that I had the lab tech change what lab tests I got. :ph34r:

Good luck, K. Hope all's well.

No need to mention drinking herbal tea--- unless it is contraindicated with a prescription drug. For example, green tea can cause some issues.

"Do not use green tea without first talking to your doctor if you have

heart problems or high blood pressure,

kidney disease,

an overactive thyroid (hyperthyroidism),

an anxiety or nervous disorder, or

a bleeding or blood clotting disorder or if you take a blood thinner such as warfarin (Coumadin).

Green tea contains a large amount of caffeine and may be problematic if used by people with any of the conditions listed above. You may not be able to use green tea, or your doctor or health care provider may recommend a lower dose or special monitoring."

of course, there are these warnings too:

"Because stinging nettles can produce side effects and interact with other drugs and natural treatments, consult your healthcare practitioner before using it.

Learn more: Open Original Shared Link

hmmm.... cherry margarita..

kareng Grand Master
kareng
Posted

Good luck, K. Hope all's well. (No need to mention drinking herbal tea unless it is contraindicated with a prescription drug. For example, green tea can cause some issues).

hmmm. cherry margarita..

If I have a perscription, I would have to figure that out anyway. A doc wouldn't know.

GFinDC Veteran
GFinDC
Posted

I still haven't tried it yet. I am waiting a bit to see if the nettle tea drinkers all mysteriously stop posting. Total thread silence could be a warning better than on a pill bottle. :blink::unsure::ph34r:

As long as you all are self-experimenting like Halloween mad scientists, you might want to try some rodiola rosea too. It has a rep for making one feel more energetic and positive. Or mullein tea, which has a rep for, dang I think it was GI symptom relief or something like that.

Luckily we all live far enough away from each other that a self sustaining fission reaction isn't likely to develop. I hope. :blink:

IrishHeart Veteran
IrishHeart
Posted

If I have a perscription, I would have to figure that out anyway. A doc wouldn't know.

exactly.

jerseyangel Proficient
jerseyangel
Posted

As long as you all are self-experimenting like Halloween mad scientists, you might want to try some rodiola rosea too.

I did try that, and it gave me insomnia. It is supposed to be very good, though--unfortunately I had that side effect.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

As long as you all are self-experimenting like Halloween mad scientists

I did everything suggested by an ND and an "integrative MD" for 2 years pre-DX. THAT baloney was "experimenting like a Mad scientist" <_<

Drinking this one herbal tea (that has minimal side effects) is easily controlled and monitored.

"stinging nettle has possible side effects, including retaining water and upsetting your stomach. Avoid stinging nettle if you are pregnant, as it can possibly cause a miscarriage. It can also change a woman's menstrual cycle."

I'm not seeing how any of these is an issue for me.

GottaSki Mentor
GottaSki
Posted

"stinging nettle has possible side effects, including retaining water"

LOL...the reading I did before I joined this experiment said nettle tea is used to remedy water retention :P

mushroom Proficient
mushroom
Posted

LOL...the reading I did before I joined this experiment said nettle tea is used to remedy water retention :P

Sounds just like all the other medical advice we receive - what's true yesterday is false tomorrow!! I wonder if doctors ever take true/false tests on exams?? T'would be tricky. :blink: Of course, they don't study much of this stuff. :D

ETA: I once took a class where I had to put in my notes "IB" for "instructor believes" so I could get the T/F questions right :lol:

mushroom Proficient
mushroom
Posted

Something else that can be tried for inflammation - the thread is so long I don't know if it has already been mentioned -- but I found this on another forum I frequent:

Open Original Shared Link

Jackie Burgess' recipe for ginger tea:

"Be sure you buy organic ginger root...and I'd avoid anything grown in China even if marked organic.

Slice into "coins" about 2 - 3 inches of organic ginger root which has been thoroughly scrubbed and washed.

Add that to a quart of purified (non-tap) water and simmer just under boiling for about 30 minutes.

It will continue to steep and the flavor will intensify as it sits in the pan.

I add a 3"stick of cinnamon along with the ginger root.

Eventually, the cinnamon adds a dark color to the tea.

Sometimes I also add 3 - 4 whole cloves just for interest.

This is great either hot or iced. Store in the refrigerator. "

I have not tried this myself yet, but intend to. :)

jerseyangel Proficient
jerseyangel
Posted

Shroom, that sounds delicious. Let us know if you try it. I'll bet it's good for a stomach ache too.

GottaSki Mentor
GottaSki
Posted

I've used ginger tea for stomach aches since ginger ale stopped working for me...it works great :)

Haven't added cinnamon - but will do next time - thanks for sharing Neroli!

GFinDC Veteran
GFinDC
Posted

I did try that, and it gave me insomnia. It is supposed to be very good, though--unfortunately I had that side effect.

Did that for me too Patti-cakes, insomnia city. This time I am going to try it every other day instead of daily. I ahve 700 MG capsules. Maybe every two days just to see what it does.

I did everything suggested by an ND and an "integrative MD" for 2 years pre-DX. THAT baloney was "experimenting like a Mad scientist" dry.gif

Drinking this one herbal tea (that has minimal side effects) is easily controlled and monitored.

"stinging nettle has possible side effects, including retaining water and upsetting your stomach. Avoid stinging nettle if you are pregnant, as it can possibly cause a miscarriage. It can also change a woman's menstrual cycle."

I'm not seeing how any of these is an issue for me.

Me too really,. stomach upset? I can't imagine that happening to any of us. Sounds wildly implausible. :D

I picked mullein today and am going to try making some tea with it. Just for the heck of it really. It is easy to find along roadways and such. It has very soft, velvety leaves. They say to put it in tea bag or cloth to filter out the fuzziness before drinking the tea. Or the fuzziness (hairs) can be irritating.

Has anyone tried Goat's rue? It is supposed to be good for blood sugar control and making milk flow in mommies. There is a commercial med made from Goat's Rue for controlling diabetes, I think it is called Metformin.

Open Original Shared Link

rekua Newbie
rekua
Posted

Hey Everyone,

Ginger tea is the best! I drink it with lemon and honey.

About the nettle - I don't know if you can find it in the US but when I got bored of the taste of nettle tea, I started to take it in pill form..

AVR1962 Collaborator
AVR1962
Posted
  • Author

Here's my unscientific results so far:

I have had 1 cup a day (from tea bags). I was noticing that some stiffness in joints seemed less. Yesterday, I didn't have any. Woke up several times with pain in hips and shoulders. My feet and fingers are stiff this morning.

I'm drinking some right now!

YAY!!!!!! My daughter also has trouble with inflammation especially from corn. Recently she ate something with corn, started feeling the inflammation, drank the nettle tea and it went away!!!

AVR1962 Collaborator
AVR1962
Posted
  • Author

Trying to follow the thread best I could. It's good to hear some of you all have had good results. I ran out of my initial box I bought from the US and found a couple diffrent types here in Germany. Neither were as strong or as effective. My husband noticed the same, his cramps in the arches of his feet came back. So I have more from the US on order. Glad some of you are getting some relief from symptoms, and I will try the ginger tea myself.

pricklypear1971 Community Regular
pricklypear1971
Posted

Hi everyone. I've only just picked up on this thread as I haven't been active for a while. I'll be shortly heading to the store to pick up some nettle tea to test out...

Inflammation is definitely a problem for me. Before I went gluten free I had no celiac antibodies, but did have a very high ESR (100), and a few other blood abnormalities including a highish TSH. Going gluten free brought the ESR and TSH down to decent levels, and the worst of my symptoms (frequent episodes of migraine, vomiting and D, skin rashes, itchy and burning skin) improved, some quickly and some gradually over about 6 months. However I did still have lingering abdominal pain, head and muscle aches, fatigue and brain fog. An endoscopy after 6 months on the diet confirmed ongoing gut inflammation.

8 months further on with these dragging symptoms, despite eating a strict diet mainly free of unprocessed foods I finally understood a way to manage the problems (although I don't really understand why this should be so). I realised that the brain fog was caused by the paracetamol and codiene painkillers I was frequently using to control the head and body pains (I had not been taking more than the allowed daily dose, but did take them on most days). My brain fog cleared within about two weeks of stopping the medication, and the headaches and body pains also reduced significantly - a sure sign of their overuse!

Once that was out of the way, I could see that the headaches or body aches started only if I ate grains, with rice being the major culprit. Going grain free (with a little corn now and again) has stopped the headaches and body pains immediately, my gut was more comfortable and behaved better, and within a few weeks my energy levels soared. Evidence of finally getting the remaining inflammation under control.

Finally, for me, the inflammation may be allergy-related in some way. Since ditching the painkillers and the rice, I have discovered that any headache or gut pain is alleviated by taking an anti-histamine. It doesn't seem to matter which one, I take either Zantac (and H2) or Piriton (an H1). They both work extremely well for me. I would be really interested to hear if this works for anyone else.

Thanks for reading. I'm now off to buy some nettle tea!

Antihistimines can suppress AI symptoms.

It could also be an allergy...

Antihistimines give me relief after a glutening, and I don't appear to have an allergy to glutenous grains.

IrishHeart Veteran
IrishHeart
Posted

No supplements, teas, or herbs (or making sacrifices to the gods) seem to help me.

I have decided to just do it full throttle --after doing is "sort of", I went full paleo 4 days ago.

No grains, dairy, legumes, sugar , soy (those last three were easy--I don't eat soy at all, sugar whips me up like a 3 year old

on Christmas Eve and causes insomnia and except for chili and soups, beans are not a big part of my diet. Hate peas. Peanuts are not a big deal to me either). Cheese, rice, white potatoes--these are tough to sacrifice. sigh.

But anyone who has gone full paleo --AVR included--has reported a reduction in inflammation, so I have to do it. The pain is maddening.

I'll keep you posted. (..........but cavemen drank gin, right? :unsure: )

firecracker Newbie
firecracker
Posted

Thank-you i'am going to try!

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Well IH, I am sure cavemen must have at least eaten juniper berries, so maybe that counts?

I had to give up alcohol (and survived). Gin was my fave too.

Well done on going paleo, let us know how it goes. I am thinking about it...

Mw

IrishHeart Veteran
IrishHeart
Posted

Well IH, I am sure cavemen must have at least eaten juniper berries, so maybe that counts?

I had to give up alcohol (and survived). Gin was my fave too.

Well done on going paleo, let us know how it goes. I am thinking about it...

Mw

I can give it up, no prob.....I had to do it for almost 3 years when I was sick, but I am not going to like it much, I am sure. :lol:

yeah, Mw.... I used the juniper berry excuse in my head, then I tried potato vodka yesterday (it's a tuber, right), but let's face it, I'm just making excuses.... and come off sounding like a boozy tart at this point.

Adalaide Mentor
Adalaide
Posted

I keep doing the on again off again tea. I get out my pot, get my nettles in it and pour in the water. I'll have a cup and have a cup left for the next day to warm up. Then, I'll forget for a day or two to make some. I'm so absent minded lately. Of course, now that I pretty much can't eat anything maybe I'll just make the tea and then eat the warm soupy nettles. At least I can have those.

Some days I'm less achy, some days more. I don't know if it helps or not, I suppose maybe I should try harder to drink it every day.

dreacakes Rookie
dreacakes
Posted

I LOVE Nettle!! I drink it in an infusion. I get the leaves from a local herbalist, then dump about half a cup in a mason jar, pour boiling water over it, then let it steep in the fridge for at least 24 hours. Then I strain out the leaves, and drink a gulp of it every day. Infusions are more potent than teas. It always makes me feel great! :)

IrishHeart Veteran
IrishHeart
Posted

. Then, I'll forget for a day or two to make some. I'm so absent minded lately. Of course, now that I pretty much can't eat anything .

Oh honey! you were accidentally glutened recently, right? You are not absent-minded! it's just damn "gluten head" I am so sorry, Addy, ((hugs))

Some people think drinking this tea helps with that gluten head.

I usually double my probiotics, drink extra water to hydrate, take digestive enzymes with meals for a few days, some B complex with coenzymes (Country Life is gluten-free) and wait for it to pass. Hope you feel better soon!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.