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- knitty kitty replied to ChrisDun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7Intermittent Fatigue
There are thirteen essential vitamins: eight B vitamins, four fat soluble vitamins, and Vitamin C. They all work together. If you are deficient in one, you are probably low in the other dozen. Celiac Disease affects the absorption of all the vitamins, and the dozen or so essential minerals, as well. Cobalamine Vitamin B12, needs Folate B9 and Pyridoxine... -
- Jane07 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0any advice would be helpful
i have been gluten free for about 2 yrs i had a ttg recently done my blood test was .7 higher then last time. i must be doing something wrong im still not in the normal range. What advice would anyone give? -
- Michelle Amirault-Packard replied to ChrisDun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7Intermittent Fatigue
He should definitely have his vitamin D and Vitamin B12 checked. I have celiac and i always felt tired, sometimes i described it as dopy.My vitamin D is always low at times extremely low which can affect you. But I also did some research and contacted my doctor to see if she checked my Vitamin B12 and She said she didn’t check my vitamin B-12 because a... -
- ShariW commented on Scott Adams's article in Additional Concerns7Is Domino's Gluten-Free Pizza Safe for Celiac Disease? (+Video)
This was Domino's gluten-free pizza. I do not have problems with corn, rice, oats or dairy.- celiac disease
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By knitty kitty · Posted
There are thirteen essential vitamins: eight B vitamins, four fat soluble vitamins, and Vitamin C. They all work together. If you are deficient in one, you are probably low in the other dozen. Celiac Disease affects the absorption of all the vitamins, and the dozen or so essential minerals, as well. Cobalamine Vitamin B12, needs Folate B9 and Pyridoxine B6 to function properly. Pyridoxine B6 needs Riboflavin B2. Vitamin C is needed to interact with B12 as well. Thiamine B1 and Niacin B3 are also needed to provide the energy for these vitamins to function properly. If one is also low in Folate and Pyridoxine, B12 Cobalamine is not going to be able to function properly and the body doesn't bother to absorb it. Vitamin D is safe even in high doses. Vitamin D3 should be supplemented. Vitamin D2 is not as well utilized because it's synthetic, not a form the body can utilize easily. Vitamin D must be activated by Thiamine Vitamin B1. Insufficient Thiamine B1 will make one feel "dopey". Thiamine is needed for brain function. The brain uses as much energy just thinking as your muscles do while running a marathon. Multivitamins do not contain sufficient amounts of essential vitamins to correct nutritional deficiencies. Supplementing with ALL eight B vitamins, extra Thiamine (don't use the form thiamine mononitrate because it's not absorbed nor utilized well), Vitamin C and the four fat soluble vitamins will be more beneficial than just supplementing one or two vitamins by themselves. With sufficient amounts of essential vitamins, the immune system gets regulated and becomes less reactive to other things like pollen, molds and animal dander. Sleep apnea is frequently found in Thiamine insufficiency. The eight essential B vitamins are water soluble and easily excreted if not needed. The B vitamins all work together. Supplement them together. Thiamine deficiency disorders: a clinical perspective https://pubmed.ncbi.nlm.nih.gov/33305487/ -
i have been gluten free for about 2 yrs i had a ttg recently done my blood test was .7 higher then last time. i must be doing something wrong im still not in the normal range. What advice would anyone give?
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By Michelle Amirault-Packard · Posted
He should definitely have his vitamin D and Vitamin B12 checked. I have celiac and i always felt tired, sometimes i described it as dopy.My vitamin D is always low at times extremely low which can affect you. But I also did some research and contacted my doctor to see if she checked my Vitamin B12 and She said she didn’t check my vitamin B-12 because a wasn’t Anemic and the normal protocol is , if you are not Anemic they don’t test for B-12. She had no problem doing the test for me and it came back super super deficient . So I was given a shot of B12 once a week for 4 weeks and I give myself 1 shot intramuscular once a month now for 18 years. Once your B12 is low it can take a long time to bring it back up and sustain it. I think it took about 6 months to get a decent number and about a year to get it right. I do get my Vitamin D checked but not yearly more like every other year because it is a more expensive test and I tend to always be low. I do take a vitamin D supplement but I would talk to your doctor before taking a supplement to make sure you don’t take too much especially if you are already taking a multivitamin. Because too much D can also have some bad side effects. Celiacs tend to be able to take a higher dose due to our digestive and malabsorption issues but always talk to your doctor before taking. Other things could be making him feel extremely tired like new allergies like pollens, animals, molds etc.. sleep apnea is a huge one( cause extreme fatigue) and some medications. Just other things he can have checked! Good luck -
By knitty kitty · Posted
I suggest you eliminate dairy from your son's diet next. Cow's milk protein, Casein, can trigger tTg IgA antibody production, the same as gluten, because casein contains segments of proteins that resemble gluten protein segments. Mucosal reactivity to cow's milk protein in coeliac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/ I cannot consume dairy products. Some people find they can tolerate A2 dairy without a reaction. Corn is another frequently hard to tolerate food because the protein zein in corn also resembles the protein structure of gluten. Do research in Dr. Derrick Lonsdale and TTFD thiamine. Taking TTFD really can make a dramatic difference, speaking from personal experience. https://hormonesmatter.com/energy-deficiency-asd/ Keep us posted on your progress! -
By Scott Adams · Posted
It sounds like you're doing everything right with your gluten-free diet, yet still experiencing significant discomfort, which must be frustrating. Since your stool sample came back normal but symptoms persist, pushing for further investigation—like a colonoscopy or biopsy—is a reasonable next step. You might also want to discuss the possibility of additional conditions, such as IBS, microscopic colitis, or other inflammatory issues, with your doctor. Tracking your symptoms, diet, and triggers in detail could help identify patterns. Don’t hesitate to advocate for yourself—if your current doctor isn’t addressing your concerns, seeking a second opinion or a referral to a gastroenterologist could be beneficial. You’re right to seek answers, and I hope you find relief soon. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:
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