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Gemini

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Everything posted by Gemini

  1. Gemini

    ARCHIVED Dentist

    Gemini replied to Lexi's topic in Coping with Celiac Disease

    This post really begs a response.....I have a pretty savvy dentist and have done reams of research on dental products only to find that I couldn't find any which contain gluten. I am at the dentist every 3 months for cleanings and am currently having 2 dental implants done and have never once gotten sick from a gluten hit. Most dental products use gluten...
  2. Gemini
    Dental implants are not that bad to have done but the whole process takes about a year and half to complete. I had to have bone grafting done also as I had bone loss in my jaw bone from Celiac. It sounds gross but it's not that bad....really. You are numb up to the gills. If you need bone grafting, then you have to wait 6 months for it to take and then...
  3. Gemini
    I think that is called synchronicity (sp?)! Another mystery solved! I had a typical gluten type reaction within 15 minutes of leaving the office. My stomach distended and blew up and I had severe abdominal pain, only I had to drive 40 miles home. It wasn't pretty! I just don't digest gums well, if I have a larger hit. I really researched it and the...
  4. Gemini
    Celiacs have sensitive stomachs to begin with so many will experience problems after eating something that is 100% gluten-free. Even after healing, some foods or supplements will cause a problem. I reacted very badly to the gums used in dental impression material, which is 100% gluten-free. I did a week of research, calling manufacturing reps, etc. to track...
  5. Gemini
    Digest Gold are one the best enzymes out there and they are 100% gluten-free. I hate to see everyone jump on the bandwagon and trash these because they do not contain any gluten. Not feeling well can come from many other reasons so don't always assume it's from ingesting gluten. I am an extremely sensitive Celiac who will get ill from a few crumbs.....
  6. Gemini
    For another fix for the problem....take a warm to hot bath. Soak in warm water as this equalizes the pressure and the pain will be relieved. After a little bit, things will start to pass! Really..it works!
  7. Gemini
    If you are still eating gluten and do have Celiac, then yes, your thyroid function could be getting worse. TSH is not linear in how people respond. Some can get as high as 25 and feel bad, but not horrible while others will be as sluggish as a turtle with a TSH of 6. If you have been taking thyroid supplement, that could be helping to keep your numbers a...
  8. Gemini
    Vitamin B complex will most definitely turn urine that neon yellow color and that's what it's supposed to do. If you receive B complex via an IV, the same thing will happen. I take digestive enzymes, which work really well for me, yet my urine is still neon after taking the B vitamins. I don't think the lack of enzyme theory is accurate. Do you know if...
  9. Gemini
    That was my first thought, Jestgar. Sounds like someone has a major chip on their shoulder and maybe thinks officially diagnosed Celiacs are superior to those who don't have a diagnosis? I am officially diagnosed, yet it took 25 years to get there. Then, I figured it out as I was wasting away at home, unable to go to work because I was so deathly ill...
  10. Gemini

    ARCHIVED Too Hot

    Gemini replied to nmthommy's topic in Coping with Celiac Disease

    Hi Cass.....it took me 5 years to accomplish this. Kind of a long time and I despaired along the way that it would never happen. I was 46 at time of diagnosis for Celiac so I was in the older camp. The Hashi's started in my early 30's so that is how long I was poisoning myself with gluten and how long it was affecting my thyroid. I had Celiac symptoms...
  11. Gemini

    ARCHIVED Too Hot

    Gemini replied to nmthommy's topic in Coping with Celiac Disease

    Not everyone with thyroid disease needs to avoid soy. I have Hashi's and I was able to get my antibody level down from an all time high of 1200 (when 40 or below is considered normal range) to 35, by going gluten-free alone. I have also cut my "meds" in half. I eat soy of all kinds but I don't overload on it..just normal amounts. Soy is not good for those...
  12. Gemini

    ARCHIVED Too Hot

    Gemini replied to nmthommy's topic in Coping with Celiac Disease

    For me, soy is not the issue. I have been like this from the time I was a small child and back in the 60's and 70's, soy products were not marketed like they are today and people were not consuming them, for the most part. I am also post-menopausal, and my hormone bank is empty so the soy should actually help with that and it has not. There is no difference...
  13. Gemini

    ARCHIVED Too Hot

    Gemini replied to nmthommy's topic in Coping with Celiac Disease

    You've just met your twin! I have always been this way, pretty much from birth. Even as a kid, when the weather got hot, I went indoors to escape the heat or had to go swimming to stay cool. I am on the other side of menopause and have hot flashes, which makes the problem worse. I think it has little to do with Celiac but was told by a person versed in...
  14. Gemini
    I, too, only opted to use gluten-free lipstick and hand cream. I am a very, very sensitive Celiac, officially diagnosed and was severely malnourished and sick when diagnosed. What you have to ask yourself is whether or not you can use topical products without ingesting them? I do not find this hard at all...I mean, who wants to swallow shampoo? It isn't healthy...
  15. Gemini
    I eat this chocolate everyday and I am as sensitive a celiac as they come and have never had the slightest reaction. They are an extremely open company about their products. I usually do not eat from any shared lines but after speaking with a rep there, I was confident they do a good job with the small amount of barley they use and not letting it contaminate...
  16. Gemini
    I highly commend your husband for recognizing he has a problem yet wants to take the steps to stop. It's not easy but he can do this. He may not want to hear this but I would highly recommend he seek help with it from a doctor specializing in alcohol related recovery. Whether you drink a lot or enough that you cannot sleep without many beers is something...
  17. Gemini

    ARCHIVED Dry Eyes, Too?

    Gemini replied to MEH's topic in Coping with Celiac Disease

    Yes and no. If you have full blown Sjogren's Syndrome and went years without a diagnosis, then the dry eye problem most likely will not be affected by the gluten-free diet. Many people have dry eye but it's not autoimmune based, like Sjogren's. I have Sjogren's and went years before I knew why my eyes were so screwed up. Every other autoimmune problem I...
  18. Gemini

    ARCHIVED Lupus?

    Gemini replied to twinkle-toez's topic in Related Issues & Disorders

    I am happy that you have a diagnosis, although it's not a diagnosis anyone would rejoice over. However, like myself, you have realized that not every diagnosis is a disaster and that life can and will go on and you most likely will be able to do the things that bring you joy in life. I think there is a certain amount of soldiering on you have to do when...
  19. Gemini
    Don't beat yourself up....you are going through that tough time many here have lived through...myself included. I also have Hashi's and Celiac so know what you speak of with regards to the fatigue. Let's see if I can explain things well....Hashi's can raise tTg, however, all of these issues you have been diagnosed with can result from undiagnosed Celiac....
  20. Gemini
    You most likely have a topical skin allergy to wheat/barley or whatever flours you were using which caused the rash. Many people have topical allergies and very sensitive skin. Unless you have DH and you ingested some of the flour you baked with, the rash is probably an allergy. You usually break out in a rash more immediately with a skin allergy. Have you...
  21. Gemini
    Peter put forth a pretty good explanation of what may cause a reaction, aside from a gluten hit. I also have had this experience with gums used as thickeners. There is no gluten in gums and they are completely safe for Celiacs yet I have some of the worst reactions to gums I have ever had. So, assuming that breads and other gluten-free foods are contaminated...
  22. Gemini

    ARCHIVED Lupus?

    Gemini replied to twinkle-toez's topic in Related Issues & Disorders

    The last one is Reynaud's Syndrome and it was particularly bad the last year before dx of Celiac. I am happy to report that the Reynaud's has vastly improved since going gluten-free and, as I live in New England and we have real winters here, it still has not bothered me that much at all. I can shop for food in the frozen foods department and not wear gloves...
  23. Gemini

    ARCHIVED Lupus?

    Gemini replied to twinkle-toez's topic in Related Issues & Disorders

    An elevated ANA does not mean you have lupus. I am wondering if you may have fibromyalgia (sp?), as your symptoms sound common to that disease. To show you how screwy this can all be, my most recent ANA titer was 1:1280, which is an improvement over the 1:2530 I had 3 years ago. I have absolutely zero symptoms of RA or lupus so have refused a referral...
  24. Gemini
    Thanks for those links! I am going to take a look at them tomorrow. I love Lundberg products so am very interested in seeing them. A question I have, and this is before looking at the links, is if they use oats and they aren't exposed to other grains, the oats would be gluten free? This is really going deep but I am interested in how they do things...
  25. Gemini
    This is the post of the day! What an excellent attitude you have! Your last paragraph is beautifully put, although I must admit, I might be a bit angry if I were in a wheelchair.....I really like to hike and walk. That would bother me more than not eating. That is the reason I don't mind Celiac all that much because it isn't a disability but an inconvenience...
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