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Gemini

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Everything posted by Gemini

  1. I think that if you feel fine after eating your delicious gluten free bread, then don't worry about it. If one day you overdose on bread and don't feel so good after, then you have your answer but keep in mind that eating too much of anything can cause problems for a number of reasons. Eating too much chocolate, for me, will wire me out but it has nothing...
  2. I did not say the corn crop is always contaminated with gluten either so please stop with the word games...save that for the other forum you frequent. If someone is buying certified gluten free grains, then this issue is not even a concern. Most grains, if not all, are contaminated from processing and storage issues with gluten containing grains, which...
  3. Cutting back on caffeine may be causing some of the extended Brain Frog visit! Coffee is actually good for mental clarity.......2 cups and no more every day works wonders for me.
  4. I have to agree with the 3 of the smartest ladies on this forum.......corn is hard to digest and contains a lot of sugar, which can be problematic to a healing gut. That is most likely the reason for some of the problems experienced by some here. And to make it clear to anyone reading this thread......the corn crop is not cross contaminated with gluten...
  5. A comment on your impending trip........HAVE A GREAT TIME!!!!!!! I will be crossing the Pond at the end of September so am right on your heels. Are you going to Bath to satisfy the Jane Austin fan? Here is a restaurant that I have dined at about 5-6 times over a number of trips and I have never gotten sick.....not even an inkling of trouble. They...
  6. All of Laura's advice was excellent but also check to see if the coverage included Trip Interruption Insurance because that's the coverage needed for cutting a trip short. I have also found that having a problem from a pre-existing conditon is never covered. I collected on trip insurance earlier this year from a cancelled trip last fall and learned 2 things...
  7. ...and if I were next to you, I would hug you back and give you a cookie! You said it in a nutshell....your doctor doesn't know squat about Celiac and that is far too common, I am afraid. I was sick for 30 years and ended up down to 94 wobbly pounds and wasting away before I figured it out and requested the blood panel. I had symptoms out the whazoo...
  8. Any time you ask a GI doctor, they are going to respond that you need a biopsy for diagnosis. I think part of it is liability driven and the other part money. In some circumstances, a person might need to move on to a biopsy if their blood work was inconclusive and came back as a weak positive and then the biopsy can be used as a back up diagnosis, if you...
  9. Icelandgirl.....take a deep breath and relax! Here is what you can also consider......if a person has positive blood work for Celiac Disease, they do not need a biopsy for diagnostic purposes. Forgive me but I cannot remember what tests you had done and how positive they were but you say you had positive blood work and then went gluten free. This is the...
  10. How about buying a good quality wine and drink it and stop worrying about what may or may not be lurking in it, courtesy of all those evil wine makers out to get us? ...
  11. In reality, a person does not have to have 100% functioning,healed villi to be healthy. There is overlap in the small intestine of areas that absorb different nutrients, meaning that if there is damage to one area that absorbs iron, there are other areas that absorb iron also. Is it optimal that you have the whole thing working well? Sure...but it isn't...
  12. Gemini

    ARCHIVED Disability

    You know, Beth, many of your symptoms from Celiac will abate and go away with time on the diet. Many of us were at death's door and made a complete recovery, after many years of suffering. It is possible that you will recover well enough that you can work eventually. It sounds like you need short term disability as opposed to SSI disability. Does SSI offer...
  13. Hi HavaneseMom! This is the best iron supplement I have ever taken and the one I always take when needed. I prefer liquid supplements for iron because of the better absorption and this one does not seem to cause constipation. I have to admit that I have never been constipated...it is just not something I suffer from but I mentioned that because I know...
  14. That is great! Sounds like you found an enlightened doctor. Hold onto her because they aren't as common as the biopsy driven crowd.
  15. New England is such a gluten-free friendly place, isn't it? It may be crazy in other ways but food? We take eating very seriously here and most restaurants worth their salt do a really good job of serving a safe meal. Legal Seafoods gluten-free menu is top notch! To the OP.......I would have just gotten up politely and, after speaking with the manager...
  16. But we are not talking about nursing home care as it exists today but what will be in place down the road. Many of the posters here are pretty young and have many, many years to go before this will become an issue. And I will state this again because sometimes people need to hear it twice, younger people have many, many more food issues to deal with than...
  17. Once you learn how to read labels correctly, things will become much easier. You are new to this so expect a learning curve. There is really no "hidden gluten" in foods. If you are reading a can of black beans, it usually states 2-3 ingredients, none of which usually contain gluten. Refried beans can contain wheat but not whole beans. Then you read the...
  18. Jules......those numbers after 4 months gluten-free, might not be because you are eating gluten but it could be that your numbers were extremely high and they have come down to what you got as results on your testing. When they don't give you an absolute number to begin with, you have no idea how high the numbers actually were. But yes, cc is serious so...
  19. Your results are far from weak! With a positive IgA/tTg and EMA, the odds that you have Celiac are around 98%, according to what I have read from doctor research. I failed all the tests in the panel by huge numbers so there was no doubt for me, either. I was also losing 1 pound per day the week I hit the wall with it so going gluten-free was imperative...
  20. It is not easy to increase ferritin and iron. Iron is hard to absorb. Some important information......do not take any iron supplement within 1-2 hours of drinking tea, coffee or alcohol. These interfere with absorption. Take iron with a meal or some food as that makes it easier to be absorbed. Take a Vitamin C supplement with your iron because this enhances...
  21. If your blood test results were high and you failed a number of or all of the tests on the Celiac panel, then you have a diagnosis, whether or not your doctor says you do or don't. It's funny because I was also diagnosed via blood work and I did gene testing and have a double Celiac gene. I did not find my present doctor until 3 years after diagnosis and...
  22. Joann......you have been gluten-free since February? You could have your doctor re-run the blood work but if you have been doing the diet correctly, the numbers should be lower than at diagnosis because you've been eating gluten-free. They may not drop a lot or they might.....everyone is different in how they respond to the diet. But if you are looking...
  23. Welcome Joann.....if you had positive blood work and feel that much better on the gluten-free diet, there is not need to go further unless you want to. Positive blood work is a diagnosis, especially if you did the dietary trial and had major improvements. I did the same thing because I was too sick at diagnosis to even fathom the biopsy procedure. I have...
  24. ksue....read what kareng posted. Maybe she is right and it's just too hard for some people to understand. You do not refer to the FDA on safe choices for Celiac Disease. Rememeber, these are the people who approve a drug one day and then recall it after people die from it. You refer to celiac experts. They do not include this type of cc in their warnings...
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