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ravenwoodglass

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass
    Some folks will also get their hair frosted to disguise the growth. My hair is too dark to do that though.
  2. ravenwoodglass
    Are you the only one in your family that ate the corn? If others ate it and didn't get sick then that would likely rule out food poisoning. Was it roasted on a grill that may have had gluten foods cooked on it previously? Did they have lots of straw bales around for decoration or to sit on? So many possibilities. I hope you feel better soon.
  3. ravenwoodglass
    I used a root coverup and then a temporay color and when it had grown out enough I got my hair cut short.
  4. ravenwoodglass
    His diabetes educator is not an expert in celiac. IMHO the lets wait 3 months is cruel and unneeded. Ask his GP if he will give the 'formal' diagnosis if you put him on the diet and those numbers go down with retesting in a few months. Or ask for an immediate referral to a GI doctor knowledgeable in celiac. With numbers like that there really is no doubt...
  5. ravenwoodglass
    You finally know what has been slowly and painfully killing you. Recovery will not be quick but it will come. You will find yourself running up the stairs in 6 months and will sit sobbing at the top for half an hour. It will be about 5 years and lots of PT before you will walk normally again but not long ago you remodeled the bathroom because you were told...
  6. ravenwoodglass
    Has he had any of the other celiac blood screening tests? While another AI disease can cause a false positive those false positives are not that high. I am so sorry he is having to deal with both but the gluten free diet may help him keep his diabetes under better control.
  7. ravenwoodglass
    With his bloods coming back that high there is no chance he is not celiac. The gene test is not diagnostic. There are rare cases of celiacs that don't have one of the two most common genes. You may want to go ahead and get the biopsy done if you are choosing to do one. Some doctors will diagnose based on relief of symptoms and decrease in antibodies after...
  8. ravenwoodglass
    Please if you do cook bacon or fish in your microwave leave a generous tip for the maid. He/she will have to spend quite a bit of time getting the smell and grease out for the next guest. Can you guess what my present occupation is?
  9. ravenwoodglass
    If you are celiac you HAVE to be gluten free no matter how inconvienent it may seem to you. Your body is clearly telling you to stop cheating on the gluten free lifestyle. If you need help with identifying where you can improve we are here to help in any way we can. You need to go and read the Newbie 101 thread at the top of the Coping section. It has a...
  10. ravenwoodglass
    I don't think there would be a problem with the traveling part. However the hotel may be a different matter. Let the toaster cool then tuck it back in your luggage or put the do not disturb sign on your door. Also many hotels will have a microwave in your room. I carried a microwave safe bowl and bought safe microwaveable foods rather than risking CC from...
  11. ravenwoodglass
    No corn or grains of any kind in their items that I have found. I get them at my local Wegmans and don't know if they are available where you are. Chebe mixes are also grain free. I used them a lot when first diagnosed. They are also tapioca based.
  12. ravenwoodglass
    That company is good as far as being gluten free goes however they use a lot of soy protein or flour in their items. When first diagnosed I thought I was being glutened by many gluten free foods that were made in dedicated facilities. It took my doing a food and symptom log to realize the common ingredient that was in all those products was soy protein or...
  13. ravenwoodglass
    That's a possibility but I would advise looking carefully at the ingredients on Aveno products as many contain oats.
  14. ravenwoodglass
    I am a fan of Grainless Baker products. Their French bread loaves are great for subs or just eating with cheese and pepperoni. They are tapioca based. I use Pamelas baking mix for things like muffins and Tom Sawyer is a fave for scalloped potatoes.
  15. ravenwoodglass
    With 4 of 6 celiac panel tests positive she has celiac. Since she has had the endo she can start the diet. You don't have to wait on the results. Damage from celiac can be patchy and easily missed so even if the biopsies do come back negative that doesn't mean she isn't celiac.
  16. ravenwoodglass
    Welcome to the board. Could you be getting cross contamination somewhere? Sharing stuff like nut butters, jellies, mayo, butter etc can cross contaminate you. Whole unprocessed foods are the safest. Eating in restaurants or in other folks homes can also be an issue as can simply kissing someone who eats gluten. Do you have your own toaster? Checked all...
  17. ravenwoodglass
    Folks with DH often have to be quite strict with the gluten free lifestyle. You need to get your own toaster and tighten up on avoiding CC. If you are Catholic you will have to forgo the host. God will understand. If your religion allows you can bring in a gluten free cracker or bread. You are keeping your antibodies active and that is not a good thing...
  18. ravenwoodglass
    Cccbaker, welcome to the board. I began developing ataxia at around 5 or so. Gluten can pretty much attack anywhere and the diagnosis process can be so frustrating. There is some thinking amoung doctors that with children if the panel levels come down and the child improves on the diet that can be considered diagnostic. You may want to ask your doctor if...
  19. ravenwoodglass
    That if you don't have one of the most common genes you can't be celiac even if blood tests and biopsy were positive. That if you have positive blood work but negative biopsy, or vice versa, that the positive tests were false positives.
  20. ravenwoodglass
    Welcome to the board. I am very sensitive and have used Dawn and Palmolive since diagnosis and have had no issues. Do check out the Newbie 101 thread at the top of the Coping section for a lot of good info and do feeel free to ask any other questions you need. I hope you heal quickly.
  21. ravenwoodglass
    You need to take this up the chain of command. Go immediately to your chaplin who will be able to assist you in this process. Make sure you bring the records from the GI doctor with you along with a letter from him/her detailing the seriousness of your condition and the need to be gluten free. You need to be aware that the Navy will likely have 2 options...
  22. ravenwoodglass
    I agree they are extremely helpful for anxiety. I take them when needed for PTSD and never would have overcome agoraphobia without them. I was simply worried that with brain fog being the big worry for the interview that they might make things worse.
  23. ravenwoodglass
    It sounds like you are doing agood job keeping yourself safe. It can be hard at first but your diligence is obviously paying off. Good work.
  24. ravenwoodglass
    I would advise against taking this right before the interview since they could increase your brain fog and space you out even more than the gluten reaction does. If anxious they might help you get a good nights sleep if you take a minimal dose before bed the night before IF you can get a doctor to prescribe one.
  25. ravenwoodglass
    No one glutening isn't going to destroy your villi. If it did we wouldn't need to do gluten challenges for weeks for testing. When destroyed they do regrow fairly quickly but I think the inflammation and other effects on the GI tract can impact folks for longer. Myself I get a growling tummy within hours and very painful D 3 days later but then the GI issues...
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