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ravenwoodglass

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass
    Interesting. Not surprising to me that they found a higher percentage than they thouught. I think that percentage would be even higher if they tested older folks in their research.
  2. ravenwoodglass
    Some non-toxic glues do have gluten but Elmers is safe. Their finger paints are not safe though. I looked up Elmers because they are one of the most commonly used glues in school. From their web site- "Is Elmer's glue gluten free? All of our products are gluten free except for the Elmer's Finger Paints. The finger paints contain wheat...
  3. ravenwoodglass
    I was thought to have MS prediagnosis but a spinal tap ruled it out and I was told my brain lesions (UBO's) were normal. They aren't normal they are seen with celiac that is attacking the brain and nervous system. It sounds like your daughters presentation is about the same as mine was early on before the horrible daily and nightly gut wrenching D set in...
  4. ravenwoodglass
    Both these techniques work well with Rice Tortillas also.
  5. ravenwoodglass
    My suggestion would be to substitute something else for the trail mix. See if that helps. What I do when my system acts up and I have to go somewhere is to take Immodium. It helped prevent accidents for years before diagnosis and after. If dropping the trail mix doesn't help look to something you may be eating or doing on the weekends. Reactions can...
  6. ravenwoodglass
    You are in one of the best places there is to ask any questions you need about a gluten challenge. You might find it helpful to do a new topic to get input from those of us who have gone through it.
  7. ravenwoodglass
    I have said since diagnosis that there are two places that I never want to be in for fear I would die from what they would feed me. One is a hospital and the other is jail. Fresh or frozen fruits, veggies, fresh meats, eggs, cheeses etc are also the same proce for us as for anyone who isn't celiac. The specialty gluten free baked goods and convience foods...
  8. ravenwoodglass
    You may want to ask your doctor for a celiac panel. That would be a good start. The biopsy needs to be done next to an active lesion and they need to be looking for DH. Unfortunately it can take a while for DH to be diagnosed because many doctors are not very knowledgeable in the skin form of celiac. Keep eating gluten until all celiac related testing is...
  9. ravenwoodglass
    If this continues for more than another day or so get to your doctor. Go now if you are showing signs of dehydration. Hospitals are full of nasty bacteria and viruses you need to make sure that you haven't picked up something. I hope this resolves for you soon.
  10. ravenwoodglass
    There is special transparent paint that you can get for glass. You should be able to find it in a good craft or hobby store. If you use that the window can be enjoyed from both sides. You could also use acrylic paint. That would not be transparent. I avoid Tempra and poster type paints. You could also use clear plastic and markers. If you did that...
  11. ravenwoodglass
    When we have DH (the skin form of celiac) and neuro impact (depression and anxiety) we have to be very strict for those problems to resolve. The rash can take a long time to clear as the antibodies take time to clear out of the skin. Many also have to avoid iodine. I only had to avoid iodized salt but some have to also avoid high iodine foods. After the rash...
  12. ravenwoodglass
    I was browsing on QVC this morning and found they have a bread machine on sale. It has a gluten free setting. Remember someone asking about them not too long ago so thought I would post a link to the item. Be sure to read the questions and answers at the bottom of the ad. It is on sale for about $100 http://www.qvc.com/Breadman-2lb-Multi-Function...
  13. ravenwoodglass
    It works much better for me but everyone is different. I have a physical job and sometimes get lower back pain. A hot shower and an Aleve will usually relieve it. It's worth your giving it a try.
  14. ravenwoodglass
    I am so sorry you have been suffering so much for so long. Yes you do need to eating gluten for celiac related testing. There is a lot we have to do to be safe. While gluten free have you been using things like a seperate toaster, dedicated condiments, butters,jams etc? have you been baking with wheat flour for others? What is your diet typically like? I...
  15. ravenwoodglass
    Your doctor should have told you not to stop eating gluten until after your blood work. You need to go back on it for a bit if you have been gluten free for more than a week or two you should do a couple months back on gluten before having the blood drawn. It isn't unusual for celiac GI issues to not be a constant thing. At least in earlier stages. For...
  16. ravenwoodglass
    Yea. I hope she isn't like one of my blood and biopsy diagnosed relatives who then had a gene test that showed she didn't have one of those 2 most common genes. She was then told it was a misdiagnosis and went back to eating gluten. She is young so she could also be in what they call the 'Honeymoon' period that used to cause doctors to think celiac...
  17. ravenwoodglass
    I take Aleve or the generic that I get at Wegmans. I haven't had any issues with it and only need to take one for relief. I should note that it is not something I take on a daily basis. I usually only need it a couple times a month.
  18. ravenwoodglass
    Welcome. I remember that pain all too well. It is excrutiating. I haven't had it since I was diagnosed, thank goodness. Being woken in the night by abdominal pain can be a sign of glutening. My GI said that if he know that was happening I could have been diagnosed much sooner. I did tell him but he didn't listen. You say you had little symptoms prediagnosis...
  19. ravenwoodglass
    Welcome to the board. Many of us keep safe gluten free snacks on hand for times when we are away from home. In addition to what Karen mentioned fruits, nuts, hard boiled eggs etc. If it is a long trip a cooler can keep stuff fresh for you and they make ones that you can plug into your car. How were you diagnosed? Many folks carry the genes but don't...
  20. ravenwoodglass
    Interesting article. I do wonder how she was 'misdiagnosed' though and how she came to the conclusion she wasn't celiac.
  21. ravenwoodglass
    Try dropping the oats for while and see if that helps. Some of us, myself included, react to even the ones that are certified as gluten free.
  22. ravenwoodglass
    When items have multiple ingredients it can be hard to tell to which we are reacting. That gluten reactions can be delayed can also make it difficult and at times confusing. I would have random reactions at first and keeping a food and symptom diary helped a great deal. For myself the common item was soy but it took a few weeks to realize that was what was...
  23. ravenwoodglass
    So sorry you are going through this set back. You say you are getting glutened from random uncontrollable cross contamination. What are the things that you think you are getting CC from? Are you consuming oats? If so you may want to drop those for a bit. Are you drinking distilled gluten grain alcohols (safe for most but some of us will react) or some of...
  24. ravenwoodglass
    Good to hear you tapered with your doctors assistance. Many drugs are very dangerous to stop suddenly and not just in terms of the withdrawl. I tapered off all meds also at diagnosis and have only had to add back in my 'as needed' Alprazolam. I take that for something not celiac related though. Things can be up and down for a bit when we go gluten free...
  25. ravenwoodglass
    I can definately identify with this. I half-laughingly refer to myself as an 'elder orphan'. I can't afford anything like a secret santa but would love the opportunity to exchange holiday cards with others here. It is comforting in a way to realize that I am not the only person who is isolated but kind of sad to know that there are others in the same boat...
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