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ravenwoodglass

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Latest Celiac Disease News & Research:

Everything posted by ravenwoodglass

  1. ravenwoodglass
    Celiac often appears after a severe physical or emotional stress. Have they at least blood tested you for celiac? If not call your doctors office and demand the blood test. Do not go gluten free until you have had all the testing you feel is needed as that will negate the tests. False negatives also are not uncommon so if the test results are negative...
  2. ravenwoodglass
    First I am glad to hear that your DD is responding well to the diet. I hope it helps her depressive issues enough to be able to avoid the meds. If she is responding well do make that clear to the psychiatrist when you see them and it might be a good idea to bring in some peer reviewed articles on celiac and depression. If you do a search you should be...
  3. ravenwoodglass
    I personally wouldn't touch it but I don't tolerate distilled gluten. What I would suggest you do is to challenge it. Drink it three days in a row without consuming anything else risky and check for a reaction. Many of us can tolerate distilled gluten grains but some of us cannot.
  4. ravenwoodglass
    I have been gluten free for 7 years. I was glutened a lot the first couple of years. I never eat out and most of my glutenings come from CC undeclared on labels and occasionally from my craft supplies or from having to do home repairs I can't afford to hire anyone else to do. I now get glutened maybe 4 or 5 times a year, not counting the times soy sneaks...
  5. ravenwoodglass
    The canned veggies will be okay. The Progresso soup, well....I do know they are good at labeling but do make sure to read every ingredient. This used to be gluten free but I haven't used it since I had to avoid soy. They should have a phone number or a web site on the can which may give you more info. They do make a lot of nongluten free soups so I would...
  6. ravenwoodglass
    If you are talking about Enterolabs stool testing they say they can pick up antibodies for about a year after someone begins the diet.
  7. ravenwoodglass
    I have also had issues with Bob's Red Mill products. Before you go through the daunting prospect of checking for other intoelrance you may want to try some other brands. Gluten Free Pantry makes some good bread mixes and a great chocolate cake mix. Pamela's is also good if you can tolerate dairy.
  8. ravenwoodglass
    My loud stomach was gone within the first couple of weeks. It started for me in childhood and was so loud I would carry a sweater or jacket to ball up on my tummy if I had to be somewhere quiet like a theather or a school class. The only time it growls now is if I injest gluten or large amounts of dairy. The same goes for gas, with the exception of if...
  9. ravenwoodglass
    First and very important, do not go gluten free until after your endoscopy. To do so may cause a false negative and those are common enough even on a full gluten diet. As far as toiletries go Suave and Dove and Garneir will clearly label gluten ingredients. You need to watch out for the usual wheat, rye, barley and oats plus question any added vitamin...
  10. ravenwoodglass
    I agree it is time to see a doctor. Before you go gluten free it is best to at least have a blood test for it. Once you are gluten free the blood tests are worthless. As stated there are particular signs that would be looked for if you are experiencing appendicitis attacks. The sort of pain you are describing could be from any number of things, including...
  11. ravenwoodglass
    Heinz distilled vinegar is fine as it is derived from corn. It is the only one I use. I am one of those who are sensitive to distilled gluten grains in vinegar and alcohol. I always check it distilled vinegar is listed as an ingredient.
  12. ravenwoodglass
    I had kind of the reverse happen. Before I was diagnosed I caught every bug there was and most minor colds quickly developed into broncitis. My antibodies were so busy killing me that they didn't have the time to go after any viruses. That would be my guess anyway. I have been gluten free now for 7 years and haven't caught anything at all in that time...
  13. ravenwoodglass
    For your coworker, I agree with what the others have pointed out. Instead of trying to bake something perhaps on the days you bake for others you could bring in packaged cookies and or perhaps some fruit. There a quite a few available from Kinnickinnicks chocolate and vanilla sandwich style cooking to no-oatmeal oatmeal from Enjoy Life to Pamelas brand...
  14. ravenwoodglass
    It sounds like you are doing a good job of eliminating what you need to eliminate. It sounds like it has been about 3 months since her last blood test. Since there are other blood levels that you want to have accessed it won't be a bad idea to go ahead and check them at the same time. She should have her B12, folate, iron, D, and IMHO any other vitamin...
  15. ravenwoodglass
    Listen to your body, it has given you the answer. A two week challenge is often not long enough to redo enough damage for a doctor to deem you to have celiac if you have had some healing. The challenges are usualy 6 weeks to 3 months. Even then false negatives are not uncommon for a varitey of reasons. You body is much happier without gluten and has...
  16. ravenwoodglass
    Hope you have a wonderful day!
  17. ravenwoodglass
    If you have been gluten free for a couple weeks you may have a more intense reaction when you add it back in. If you should become severely ill from the challenge do let your doctor know. Some will have you stop the challenge. A dietary challenge is another valid tool in the road to diagnosis. Some doctors recognize this and some don't.
  18. ravenwoodglass
    I love big yellow labs and he is a cutie. He got my vote.
  19. ravenwoodglass
    First welcome to the board. What your Mom is experiencing is not unusual. For some of us gluten is a neurotoxin and it can have nasty effects on the brain. It is also not unusual to have a more severe reaction after you have been gluten free. The body is trying to basically keep you from doing it again. There are some things she can do, first double...
  20. ravenwoodglass
    A postive test result means it is likely that you do have celiac. If you plan on having a biopsy keep eating gluten. If your not having a biopsy then start the diet.
  21. ravenwoodglass
    Does the brand your taking say it is gluten free? I would perhaps try a different brand.
  22. ravenwoodglass
    This is true. It stems from the times before it was regulated and some companies would add grains to bulk up the meat. If a grain is ground up and added it must be declared. BUT if the barley is in the form of malt it is then considered a flavoring agent and it does not need to be declared on the label it can hide under natural flavors in the broth just...
  23. ravenwoodglass
    Not when it is in the form of barley malt, it is then considered a flavoring and flavorings do not have to be disclosed. If it was ground up and added as a filler then it would need to be declared but used as a flavoring it doesn't.
  24. ravenwoodglass
    Jason as someone who also suffers from panic attacks I can realy identify with how you feel about this. You have to fight this otherwise you are going to end up basically living in a box watching others do things you really wish you could. It can be a very lonely box and the longer you live in it the smaller the 'air holes' will be. It may not be something...
  25. ravenwoodglass
    Unfortunately they do not have to disclose anything but the wheat. If barley is used in a broth or as a flavoring agent it does not have to be disclosed. Same as with other foods. We have a long way to go for safe labeling regs for those of us with celiac.
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