Jump to content

ravenwoodglass

Advanced Members
 View Profile  See their activity

  • Posts

    14,675

  • Joined

  • Last visited

  • Days Won

    153

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ravenwoodglass

  1. ravenwoodglass
    I wish there was something we could do to speed the antibodies effects out of the system but unfortunately it seems only time takes care of it. I take pepto for the stomach pain, add in some digestive enzymes, try to find a few ways to pamper myself (I get severe anxiety and depression with gluten) and I make 'it is the gluten it will pass' my mantra. I...
  2. ravenwoodglass
    I am glad I never picked up one of those bags. What they are doing is dangerous for us super sensitive folks. I go with Innova Evo, a totally grain free dog and cat food. My pets thrive on it. There are some other for sure gluten-free foods for pets out there, I just look for the ones that are totally grain free. Dogs and cats do not need grains in their...
  3. ravenwoodglass
    My celiac gene, DQ9, in some countries is considered a gene for Psoriasis. I myself have DH, my DD who had to get one copy of my celiac gene as I have two, has psoriasis. Her psoriasis like my DH resolved gluten free. You do want to check and make sure any hair preperations are gluten-free, shampoos, conditioners, hair dye, gels etc.
  4. ravenwoodglass
    Welcome to the board. It does take some getting used to at first but the difference in the way you will feel and the diseases and conditions that you will avoid or that may go into remission if you have them makes it well worth the trouble. Chances are also really good that you are not the only one who is gluten intolerant in your family so please don't...
  5. ravenwoodglass
    The metallic taste is from the blood. Nose bleeds can come from a large variety of reasons. You should mention this to your doctor and at the same time ask him to do a vitamin and mineral panel on you. A simple look inside the nose can sometimes tell a doctor what the reason is and/or if there is a need for a referral to an ear, nose and throat doctor...
  6. ravenwoodglass
    This was from medline: http://www.nlm.nih.gov/MEDLINEPLUS/ency/article/001468.htm Exams and Tests Examination by the health care provider may show: Excess joint laxity and joint hypermobility Soft, thin, or hyperextensible skin Mitral valve prolapse Periodontitis Signs of platelet aggregation failure (platelets do not clump together...
  7. ravenwoodglass
    The idea for a shelf mounted sheet is a great one and would be helpful to a lot of people. I hope the stores pick up on it. You should also make sure to get that sublingual B12. It can help a great deal with memory and alertness and it is not one of the vitamins you need to worry about taking too much of. Even if it doesn't help your eyesight it may...
  8. ravenwoodglass
    I am not sure this is the same thing that your son is experiencing but in my celiac family 2 of us have quite noticeable effects on our eyes. When glutened two if us, my DS and I, both will have one eyelid that droops. In us this is a neuro side effect and before diagnosis my right eye was often almost half closed and I was unable to open it fully. It...
  9. ravenwoodglass
    So glad the pain is over for you. I hope the recital is wonderful and you have a great time.
  10. ravenwoodglass
    It is too bad they won't give you a diagnosis based on the dietary response. I also show up negative on blood tests and it can be frustrating and life threatening when we do. I am so glad you were able to figure out the problem and are on your way to recovery. Doctors really are not a lot of help for most of us at this point. I feel for your frustration...
  11. ravenwoodglass
    To me this seems stupid, they should just concentrate on increasing the use of safe alternatives. The reason why I say this is that as far as I know it is the gluten that gives the wheat the qualities that they want in wheat. If they manage to manipulate the genes is it really still wheat? And what if there is more to celiac reactions than just a reaction...
  12. ravenwoodglass
    I have been under a great deal of stress lately and started getting really severe pains mostly right sided pain even when I just drank water. I don't know if it would help you but I went back to my digestive enzymes and it helped with the first dose. I tried some pepto, the thing I usually take for stomach pain and it didn't help at all that is why I did...
  13. ravenwoodglass
    How much protein are you getting? Whenever you consume something that has a fair amount of carbs you should also get some protein. The protein is metabolised more slowly and will help prevent the steep drop in blood sugar that can cause the shakes. For example if you grab a snack a gluten-free pretzels grab a handful of nuts also. If you have toast make...
  14. ravenwoodglass
    Thanks guys for the clarification. The 0% was reassuring but I was alarmed that I could only see it on mine and thought others could see it also. Life has been throwing more difficulties and hard decisions my way the last couple of weeks and the stupid use of an unchecked hand lotion that smelled so great has me in a not nice place emotionally and physically...
  15. ravenwoodglass
    Until it disappears yes. It makes every post I have made suspect to those who don't know me.
  16. ravenwoodglass
    When I log on today I found a warn icon next to my name and a zero percent with boxes. What the devil is this? I haven't seen it before and if I posted something someone didn't like why wasn't I PM'd or contacted about it? Well I have looked over the board a bit and see this next to noone else's name. I guess I am to assume that the powers that be no...
  17. ravenwoodglass
    Be sure to check out post # 33. I am glad for you that you can consume this with no ill effects but unfortunately it is not the case for all of us.
  18. ravenwoodglass
    Yes. You should wait and challenge them when you are symptom free. Challenge like you would a suspect food, have some daily for a week while consuming nothing else that would be suspect before you decide for sure whether you are someone who can tolerate. I know it sounds like a pain but it is easier in the long run IF you are one of us who reacts to distilled...
  19. ravenwoodglass
    This doctor sounds like a real idiot. Of course gluten will cause IBS in folks that are CELIAC OR GLUTEN INTOLERANT. It sounds like this doc wants to make lots of money off of you. I noticed in your signature that you say you went gluten-free in August and then had a biopsy in December. This virtually ensured the biopsy would be 'negative'. It sounds...
  20. ravenwoodglass
    Welcome to the boards. Yes you should do the diet strictly for a while to see if it helps. The low carb diet you have been on could have resulted in a low positive, although some of us will show negative even at the end stages and eating a full gluten diet on blood testing. Biopsies are hit and miss and not all doctors recognize the changes that are a...
  21. ravenwoodglass
    I am glad you had a good safe cruise but it is too bad you are still struggling with issues. The only thing that struck me was the note in your sig that said you are lactose intolerant. Could you be casien intolerant and not lactose? Casien is in a lot of 'nondairy' items and in many dairy replacement cheeses and that sort of thing. Casien intolerance...
  22. ravenwoodglass
    Hopefully when the tooth is out the pain will be resolved. Having a hot tooth is no fun, I didn't even last 24 hours with the last one I had and you must be in so much pain right now having dealt with it for a few days now. Although your first concern is the pain I do hope the med he gave you was safe and that everything goes smoothly.
  23. ravenwoodglass
    I had extremely bad DH and this was true for me. The outbreaks stopped and the lesions began healing within a week of stopping gluten injestion. It did however take a very very small amount to activate them again. For the first 2 years gluten-free they were the first thing that would appear when I was glutened or got topical exposure. After the first...
  24. ravenwoodglass
    In this country the definition of 'celiac' disease is total villi destruction. Many doctors do not recognize the systemic nature of the condition, in my opinion due to overspecialization and tunnel vision by doctors as far as other systems outside their specialization are concerned. Even celiac knowledgeable GI doctors often don't know that celiac can impact...
  25. ravenwoodglass
    Hi and welcome. Those are positive results as far as I can see. You have come to a good place for info and support and do feel free to ask any questions you need to. Do feel free to just vent also, we have all been through it and do understand the anger and frustration. There is a lot to be learned at first but you will get the hang of it. I hope you...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.