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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by ravenwoodglass
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ARCHIVED Primal Defense
ravenwoodglass replied to KirstySF's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You may want to check out the thread on leaky gut it may be helpful. I haven't been through it throughly but I bet if you post your query there and in Related Disorders you will get some help with this. -
ARCHIVED Urgent - Any Friends Pls Help
ravenwoodglass replied to gfp's topic in Coping with Celiac Disease
Steve, I hope you are doing a bit better. As many others are I am concerned and hope you have been able to find a place for peace. Hope to hear from you soon. -
ARCHIVED Urgent - Any Friends Pls Help
ravenwoodglass replied to gfp's topic in Coping with Celiac Disease
Chatycady, for many of us gluten has a neurotoxic effect. The action of the body trying to protect itself from a toxin that is coursing through the bloodstream can create reactions in any system. In addition there are chemicals in the brain that can be thrown out of wack by gluten. I believe it has something to do with neuroreceptors and transmitters causing... -
ARCHIVED Pocono Buckwheat- Anyone Tried It?
ravenwoodglass replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
I get alot of inflammation and joint, muscle and oddly enough tooth pain when I get glutened so I can really sympathize. The only thing that helps is oddly enough St. Josephs baby asprin. I don't know why such a simple med would do so much, perhaps it acts on the inflammation. I don't know if it would help you but figured I would mention it. I tried it... -
ARCHIVED Lesser Evil Snacks
ravenwoodglass replied to ravenwoodglass's topic in Gluten-Free Foods, Products, Shopping & Medications
They make Cinnamon, I'll have to see if Wegmans will get those too. I think I have a new addiction. -
Welcome You are a good friend and she is lucky to have you. First and formost introduce her to this web site. That alone can be one of the best things she can do to deal with this. There is a lot of information and support available here. It can be a big adjustment and can be accompanied by depression at first. This is normal and for some it is a withdrawl...
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ARCHIVED Pocono Buckwheat- Anyone Tried It?
ravenwoodglass replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
After that length of time unless you are sure you are reglutening yourself you may want to call the doctor and submit some stool samples. It is possible you may have some form of food poisoning. You haven't been eating any of those recalled Pnut butters have you? I managed with a case of salmonella once for almost 3 weeks cause I thought it was my usual... -
ARCHIVED Lesser Evil Snacks
ravenwoodglass posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I just found this stuff at Wegmans, I have tried 2 the Maple Pecan and the Pnut butter and chocolate. These are gluten free with no corn syrup are artificial flavors. If you see them the gluten free is on the side, I almost missed it. They are well worth trying for a little healthier snack attack. -
ARCHIVED Feeling Weak, I Can't Take This Anymore
ravenwoodglass replied to PeaceAngel22's topic in Coping with Celiac Disease
I am sorry you are having such a hard time. Make sure those vitamins and any meds that you take are gluten-free. You could, if you are not already, add some sublingual B12. Have you had a blood check on your vitamin and mineral levels? If you haven't healed yet you may not be absorbing them like you should. Make sure in particular that your folate, iron... -
ARCHIVED For Long-time Strict Gfers With Depression/anxiety
ravenwoodglass replied to eLaurie's topic in Coping with Celiac Disease
I was 'lucky' the depression lifted fairly quickly for me. Within a couple of months my periods of depression and anxiety were gone unless I was glutened. I should mention that my depression was off and on. It seemed to be more like bi-polar (actually a prediagnosis diagnosis until they decided it was seizures), I was either full of energy and lots of... -
ARCHIVED Xanax Not gluten-free
ravenwoodglass replied to bklyn's topic in Gluten-Free Foods, Products, Shopping & Medications
As GFB said, and this can not be stressed enough for folks on this type of drug, do not stop this suddenly on your own. Your doctor can prescribe something else and then perhaps you can try weaning off of them. You may find that without the daily gluten in the Xantax you don't need an antianxiety med any more. No certainty of corse but you never know.... -
ARCHIVED Urgent - Any Friends Pls Help
ravenwoodglass replied to gfp's topic in Coping with Celiac Disease
I know it is hard to do this but I wouldn't even try to explain to people right now what is going on. Can you go to your room and just tell others that you are ill and leave it go at that right now? The less external stimulus right now the better. You should be able to think more clearly soon but for now if you can isolate yourself so that you don't have... -
ARCHIVED Problems Swallowing?
ravenwoodglass replied to kelly z's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Gosh this must be so hard for both of you. I wish I had some answers for you other than the obvious that he HAS to stop consuming soy. If he has a problem with soy, the same as with gluten, a little bit will hurt him. I know it hard but he really needs to listen to the allergist on this one. In addition, and not intending to scare you here, if the allergist... -
ARCHIVED A Strange Symptom I've Not Experienced Before
ravenwoodglass replied to lisalouryan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You could have glutened yourself. For many the GI reaction is delayed so be prepared to perhaps have an upset tummy today or tommorrow. When you have been gluten-free for a while you may notice signs that you were not aware of before that are your body letting you know that you have come into contact with something with gluten. Those signs vary from... -
ARCHIVED Xanax Not gluten-free
ravenwoodglass replied to bklyn's topic in Gluten-Free Foods, Products, Shopping & Medications
Is there any way you could switch to something that is gluten-free? If this med does have gluten it could be contributing to the anxiety. You could be creating a cycle where you are taking the med to relieve symptoms that are then being brought back by the reaction to the binders in the med itself. You may want to get the info that comes with it and call... -
ARCHIVED Does Anyone Else Get Dh At Base Of "crack"
ravenwoodglass replied to capecodda's topic in Dermatitis Herpetiformis
I have to say yes to this. I get that type of rash not just when I eat gluten but also when I use most panty liners. Especially the scented kind. I have had DH since childhood and interestingly enough I also have had consistently negative panels. But I was very serious ill before I knew those panels were wrong. I haven't found anything that helps with... -
ARCHIVED Does It Get Worse Before It Gets Better?
ravenwoodglass replied to moosejaw's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
No truer words could ever be spoken. Early in the diet it is very difficult to weed out all the different sources of gluten. The simpler you can eat the better and many doctors don't tell us about the need to check everything. It took a long time for most of us to get sick enough to finally be diagnosed and it does take a while to heal. If you haven't... -
ARCHIVED Urgent - Any Friends Pls Help
ravenwoodglass replied to gfp's topic in Coping with Celiac Disease
I wish I was there with you, I'd take you into the countryside to a little B&B and let you curl up until your brain is able to control itself again. You know that at this point you can not be rational in your thought processes. You have gotten some great advice from others. In addition it can help if you remind yourself that you are on a 'gluten... -
ARCHIVED Gluten Free Oats Go Main Stream
ravenwoodglass replied to Daxin's topic in Gluten-Free Foods, Products, Shopping & Medications
This is great news for everyone that can tolerate oats. Newbies need to remember though that the protein in oats does have a similar formation to the gluten proteins. Some of us may not be able tolerate it, paticularly those that are recently diagnosed. When adding oats to our diet we need to add it to our diet in a way that we will easily be able to tell... -
They actually do this in a couple countries. I saw some pictures once in a magazine, I think it was National Geographic, of the festival. In the pictures were a number of people in what looked like hazmat suits, covered head to toe complete with helmet. I guess they were the celiacs in the town
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ARCHIVED Need Help With A Diet
ravenwoodglass replied to chatycady's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi and welcome. One thing you may want to add is buckwheat, it is gluten free despite the name. You can get it in a cream of wheat type cereal consistency (add some cinnamon and it will do the blood sugar a lot of good), and also in a more whole grain form that is a good sub for bulgar or couscous. I like to do what I call fast food also, I take some... -
ARCHIVED Pocono Buckwheat- Anyone Tried It?
ravenwoodglass replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
If you tummy is still a bit off and you need some comfort food the cereal with some cinnamon can be nourishing and easy to digest, sometimes that's all I can eat after a day spent in the throne room. If all you have is the kasha with the larger grains a couple seconds whir in the blender or a food processer would give you the consistency for the cereal... -
ARCHIVED Anyone Seen Dannon Commercial?
ravenwoodglass replied to Mtndog's topic in Publications & Publicity
This would make an interesting poll. I myself was bottle fed but my children were breast fed. I wonder how many of the formulas over the years have had large amounts of gluten? Oddly enough it is the one who was breast fed the longest who has the most serious celiac complications, but then again the ped insisted we start giving him cereal at 4 months,... -
ARCHIVED Over Glutened, Harder To Recover?
ravenwoodglass replied to Ozzy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi and welcome to the boards. Has your doctor told you of the need to check your toiletries and nonfood items? Are you sharing a kitchen with gluten eaters, eating out, consuming questionable alcohols? There is a lot to learn with celiac and you may be more sensitive now than you were when you were constantly consuming gluten. Also are you taking anything... -
ARCHIVED Green Tea
ravenwoodglass replied to Yenni's topic in Gluten-Free Foods, Products, Shopping & Medications
These guys are a great company with a nice selection and as a bonus the ones that are gluten free are labeled as such, do be aware that not all of them are. It is not in real big letters but it is there. My fav is the Indian Spice.