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GFinDC

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Latest Celiac Disease News & Research:

Everything posted by GFinDC

  1. GFinDC
    Gluten makes me bloat from gas. Or it would if I ate any.
  2. GFinDC
    Hi Danzig, I am not sure if that fits DH or not. I believe DH can start small and spread over time though.
  3. GFinDC
    Hi Alessio, Celiac disease can cause 300 different symptoms, so it covers a wide swath. Recovery from, celiac damage can take up to 18 months, or more. It takes a while for the immune system to wind down it's attack on the body. I know thyroid nodules are quite common in people and 90% or more are benign and no problem. But there is a condition...
  4. GFinDC
    Hi pikelakegirl, Adding foods back in after an elimination diet should be done slowly. Add a new food, wait 3 days, add another if there are no problems. That way you know what foods are the problem. Adding foods back in slowly is vital in understanding what foods are an issue. I hope you feel better now!
  5. GFinDC
    Hello Kirsty, welcome to the forum! Tapering off gluten does not work. You have to just quit and never eat it again, if you are a celiac. The celiac reaction is an autoimmune reaction. The immune system doesn't recognize tapering off in either germs or gluten. Instead it attacks full force any germs/gluten that it encounters in order to protect your...
  6. GFinDC
    Hi Dalek, JMG has it right, any food with wheat, rye or barley is a gluten containing food. In addition, watch out for malt, which is sometimes made from barley. That includes the malt in beers.
  7. GFinDC
    Yep. The one that is most relevant I think is the post by Backtalk. Backtalk went back on gluten and have to a colostomy done on an emergency basis. Not fun. She regretted ignoring the gluten-free diet.
  8. GFinDC
    Hi Jennifer, This thread might have some information that would help you. Your doctors are pretty lame IMHO. Perhaps you can find a celiac group in your area that has local meetings for support. They might also suggest a different doctor who knows how to treat celiac patients.
  9. GFinDC
    Open Original Shared Link You can also find lots of information on celiac at the University of Chicago celiac site. One test they suggest is the anti EMA antibodies. I don't see that one listed in her results. Probably because it is more expensive to do. So they may have skipped it. The other test they usually do is the total serum IGA levels, which...
  10. GFinDC
    Open Original Shared Link Open Original Shared Link You can check with these groups to see if they recommend any doctors in Houston.
  11. GFinDC
    I use Pyure brand stevia, and have no problems with it. Kroger store brand sugar seems fine too.
  12. GFinDC
    I moved and merged the threads for you. Welcome to the forum!
  13. GFinDC
    Hi Wendy, I was cured by the Good Lord. I finally gave up on all the alternative treatments and started praying (and believing) about the ulcer pain being gone. I don't know if it is like this for you but my ulcer pain got really old after a while. So I decided to pray and that did it. First time I prayed the pain went away for 15 minutes. So I...
  14. GFinDC
    I get dry eyes from drinking tea. A reaction to it for some reason. Anyway, just thought I'd mention it as in one case at least a food reaction can cause dry eyes.
  15. GFinDC
    Hi Wendy, I hope you get better soon! I had a stomach ulcer for several years. I tried some alternative treatments for it. Mastic gum, DGL, garlic, honey, coconut etc. There are a lot of home treatments for ulcers. Some of these home treatments helped for a while but none of them were a permanent cure for me. I hope you feel better soon!
  16. GFinDC
    I am sorry to hear about the shingles Ravenwood. I don't have much to offer but sympathy. I hope you feel better soon! There is a vaccine for shingles (Zostavax) but it has to be taken before the disease appears. They say it doesn't help after getting shingles. Open Original Shared Link
  17. GFinDC
    Sorry you got hit. Pepto Bismol may help and peppermint tea can help with getting out gas. Aspirin and wine don't hurt either. Some cooking sprays do have flour in them. Why not skip them altogether and use coconut oil or butter instead? they are much healthier alternatives. We all learn as we go.
  18. GFinDC
    B-12 is one of the vitamins that celiacs often have deficiencies in. Many symptoms can be caused by vitamin and mineral deficiencies. I was vitamin D deficient for years. You can get / eat mackeral, sardines, salmon and tuna for vitamin D. I suggest getting tested for all the nutrient deficiencies listed below. Open Original Shared Link What...
  19. GFinDC
    Also, nightshades are known to cause joint pain in some people. So not eating any nightshades (tomatoes, potatoes, peppers, eggplant) for a month or 2 might help.
  20. GFinDC
    Hi EMT and welcome to the forum! I think your dermatologist is right, it sounds like you have (DH) dermatitis herpetiformis. Ladybug Karin was close, the actual gluten challenge for blood antibody testing is 12 weeks, and 2 weeks for the endoscopy. But, and this is a big butt (ha ha), people with DH often fail the blood work and gut biopsy testing...
  21. GFinDC
    Reputation is the green Up arrow bottom right of a post. Unfortunately the cookies for reputation movement hasn't gained enough traction yet in the forum. But we can always hope!
  22. GFinDC
    @PCooley, Another thing that can cause joint pain is nightshades. You could try cutting out nightshades for a month or so and see if it helps.
  23. GFinDC
    20 PPM is what the FDA set as an upper limit for labeling foods gluten-free in the USA. But the research they based it on had some participants drop out due to symptoms at that level. So some people can and do react to lower levels than 20 PPM. Your immune system "sees" microscopic germs and attacks them. You can't see those germs with your naked...
  24. GFinDC
    Hi artistl, If you click the green circle with a plus sign in it near right of the thread title, you can add a follow to the thread. Select the frequency of updates and you will get an email when replies are made to the thread.
  25. GFinDC
    Welcome to the forum Kathouse! I gotta tell you that 6 weeks is early on in the recovery from celiac disease damage to our guts. It can take quite a few months or years to get back to normalcy. But that doesn't mean you won't have improvements along the way. You may have a problem with oats. Some 10% or so of celiacs react to oats like they do...
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