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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi Deb K, It's easy to make mistakes at first. Getting the gluten-free diet down can take months really. What you said about starting small and slowly adding foods is actually a good plan. That's one way to do an elimination diet. The biggest sneaky gluten culprits are usually processed foods and cross contamination. you can eliminate the processed...
  2. GFinDC
    I am sorry you are going through such a tough time FBMB. It's not easy watching loved ones decline, and feeling helpless to do anything about it. My mom died of cancer some years ago. She was told by the doctors she had 6 months to live, but she made it 5 years. Most of that time at home. I don't think its a matter of being tough. Maybe its more important...
  3. GFinDC
    Hmm, It's so nice that you still have your parents (triggers)! It wouldn't be a bad thing to give them both a big hug and shout "I love you" every day. They won't be around forever after all. Some pro-biotics might help your gut a little. Avoiding carbs and sugar is a real good thing also. After a while your gut flora will tend to get better and...
  4. GFinDC
    Hi FBMB, There are several members of the forum who have multiple AI diseases. Probably the longer you have celiac and continue to eat gluten, the more likely it is to get a 2nd AI disease. But probably is all we gots, there aren't any research studies about that I don't think. Those members are posting and helping others live with celiac disease...
  5. GFinDC
    There was a poster some years ago who had an emergency colostomy. She had celiac and decided to skip the whole silly gluten-free diet thing. It didn't work out well for her. She did come by and post about her experience though to warn others. Which was great thing to do.
  6. GFinDC
    Hi Ryacluse, Your doctor is wrongo. A little gluten is not ok. Any amount of gluten could stimulate the immune system to respond. UofChicago Celiac Center has an faq on celiac that is helpful. Maybe your doctor could read it. *********************************************** http://www.cureceliacdisease.org/faqs/ What common nutrient...
  7. GFinDC
    I agree Posterboy that nutrients are very important for our health. IMHO every newly diagnosed celiac should be tested for vitamin and mineral deficiencies. That makes sense because celiac disease damage can cause malabsorption. There is a ton of information on thyroid issues on the internet that is free. A little Google or Dogpile searching will...
  8. GFinDC
    Hi James, The blood pressure problem I was talking about is intermittent, occasional and sudden low blood pressure. It may not be what you have, just a thought. My blood pressure was fine usually, but sometimes would drop very suddenly. It stopped doing that after a I quit eating soy. Food intolerances are not easy to test for doctors. They...
  9. GFinDC
    Hi gigdeb, I've had cataract surgery in both eyes. I have one suggestion that might help you. When your doctor prepares your new lenses, ask them to make one for distance vision and make one for close up vision. That way you can see both close up and far away without glasses. If I had it to do over I would do that myself. As it is I can now see...
  10. GFinDC
    Cook your own food? A crockpot is so easy most people should be able to do it.
  11. GFinDC
    Hi Jm34, I am just guessing, but it you may have low blood pressure. It might be good to have it checked. For eating better, try not to eat anything in a box, or any baked flour type things, like cakes or cookies etc.. Also, try not to eat anything with more than 3 ingredients on the label. Simple foods are easier to understand their effects...
  12. GFinDC
    Hi James, You are the best person to figure out what foods you need to avoid. You had positive blood tests for celiac disease, and that doesn't happen for no reason. The antibodies are supposed to decline after you go gluten-free, so it's not a surprise you didn't test positive for celiac at those times. It is possible to have a problem with the...
  13. GFinDC
    Hi Spencer, I was taking 10,000 IU of D3 weekly until I was retested recently and found to have 30.5 on the Vitamin D result. So now I am taking 5000 IU daily. I also try to eat mackeral, sardines, salmon and tuna more often these days as they have some vitamin D in them. I can't say how much you need to recover your level. I know some people take...
  14. GFinDC
    Hi Ryaculese, No, according to the Mayo site it is a diagnostic test specifically for celiac disease. So you may be bonafide celiac disease patient now. ************************************************************************* http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/83660 Reference Values ...
  15. GFinDC
    Hi Ryaculese, Welcome to the forum! I am curious if the doctors tested your thyroid. The fast pulse and sudden high blood pressure could be thyroid related. The thyroid could even cause digestive symptoms. There is an autoimmune condition called Hashimoto's Thyroiditis that celiacs sometimes get. It is an AI attack on the thyroid and can cause...
  16. GFinDC
    Hi Posterboy, Nutrient deficiencies are a fairly common problem for untreated celiacs. This U of Chicago web site link lists some of the deficiencies that people may have. I think people who are diagnosed with celiac disease should always be tested for nutrient deficiencies. It just makes sense to do that IMHO. http://www.cureceliacdisease.org...
  17. GFinDC

    It seems I can add a cover photo in this new forum software, but haven't done it yet.  Ooops!

  18. GFinDC
    Hi Raspberry, I am sorry about your symptoms. It is up to you, but if you want to be tested for celiac disease, you should do that right away. The celiac disease testing requires active antibodies in the bloodstream to work. After you go gluten-free, the antibodies decline and the tests won't be accurate. Celiac testing is usually a blood test for...
  19. GFinDC
    Hi posterboy, You should be "in remission" as long as you are staying gluten-free. The immune reaction does taper off and subside when we remove the antigen (gluten) from our diets. If your antibody numbers did not decline, it would mean you are not really gluten-free (something slipping into the diet) or you would have refractory celiac disease....
  20. GFinDC
    Hi Kurasz, I don't think they put heavy metals in canned foods. That would be frowned upon by the FDA or someone in the Gov. I think I read about a coating that is sprayed inside cans sometimes with certain foods to keep the acid in the food from reacting with the metal can. So it might be you have a reaction to that sprayed chemical coating, whatever...
  21. GFinDC
    Hi Jerry, You may be low on some vitamins or minerals. Our gut is damaged by celiac disease and that makes it hard to absorb nutrients. The B vitamins are important for nerve operation so is good to take B complex. Vitamin D is also important for many things in the body. Your doctor should be able to run a blood test for vitamin deficiencies.
  22. GFinDC
    Hi Egs1707, It's perfectly possible to live gluten-free successfully. Yeah, we need to learn how to avoid cross contamination, and avoid foods with gluten in them, but we do learn! When I first went gluten-free I was sick very often, due to not understanding the diet well and not understanding the being very well after years of yummy pizza etc. But...
  23. GFinDC
    Congrats on getting through the gluten challenge EGS1707! That's not easy to do! I hope your GI does take biopsy samples for review. Sometimes they don't. You might want to verify they are planning to do 4 to 6 biopsy samples. Some of the damage characteristic of celiac disease is microscopic, so naked eye inspection doesn't always tell the tale.
  24. GFinDC
    Hi, If you have been gluten-free for 4 months there is not much point in doing an endoscopy to check for celiac disease. You really shouldn't stop eating gluten until all the celiac disease testing is completed. I think the minimum that is recommended is 2 weeks of eating gluten prior to an endoscopy for celiac. http://www.cureceliacdisease.org...
  25. GFinDC
    Thanks for sharing EMK. Quite a few people have reports mental/emotional symptoms from gluten exposure. I used to get angry for no apparent reason myself. Trouble sleeping didn't help that either. Anyway, welcome to the forum and I hope things are better for you now.
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