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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi Rebecca, A negative ttg test 15 years ago is out of date today. If your doc won't run a full celiac panel on you, try and find one who will. The ttg-IgA is just one of several antibody tests that should be done. Please find a doctor who know more about celiac disease. What you describe are pretty classic symptoms IMHO. If you search for celiac...
  2. GFinDC
    I've got some nerves that were stretched in my left arm after it twisted during a fall. Lost feeling in my left hand /arm for a couple years after that. After 5 years the feeling was mostly returned although not completely even now. So nerves take a long time to heal.
  3. GFinDC
    Hi Geoff, Welcome to the forum! Your bright objects on the brain-thing are often called UBO's or unidentified bright objects. If you want to read more about them, Type UBO in the search box upper right side of the screen and click the little magnifier. There are quite a few threads about UBO's and gluten ataxia on the forum. Matt is right...
  4. GFinDC
    Not that you were thinking of getting me something anyway, but just in case, please don't get this! https://www.amazon.com/dp/B01HYTW6E2?ref_=pfb_675k6caf0i9e7iken18aimka2gbl&tag=hydfbook0e-20&ascsubtag=pfb-P11-V01-O5-fydp8e-4LJ6TN Eww! Superelead 4PCS Multicolor Wheat Straw Biodegradable 13.5Ooz Unbreakable Drink Cup Tumblers for Water...
  5. GFinDC
    Hi Mystic, Part of your issues may be the normal recovery process. The healing in our guts increases the villi surface area resulting in lots of new territory for bacteria to live. That can be good if you have all beneficial bacteria in your gut. But most of us don't, especially after having a digestive disease for a long time. So lots more bad...
  6. GFinDC
    Hi Rain, I had the flu this year and got by with aspirin, hot tea and fermented grape juice. Some people say echinecea can help and maybe coconut oil or oregano oil. I don't know though, I didn't try them myself. Here is a site with information on gluten-free drugs. http://www.glutenfreedrugs.com/
  7. GFinDC
    Hi Liblue, Welcome to the forum! Now that you are gluten-free, your body can start healing. It will take a while for the antibodies that cause the damage to go down. It may take weeks or months. It depends a lot on how good you are at keeping gluten out of your diet. The Newbie 101 topic in the "Coping with" forum section has getting started...
  8. GFinDC
    Hi Joelle, It's sometimes difficult to be sure what foods are causing us reactions when we first start the gluten-free diet. Our digestive system is out of whack (not a scientific term) and needs time to heal and establish a healthy gut flora. Six months to a 18 months is a possible healing time frame but it can take longer depending on lots of variables...
  9. GFinDC
    Hi Anne, Welcome to the forum! You are catching your daughters illness very early, and that is a great advantage. Many people go a very long time before being diagnosed and the damage tends to build then. But you are helping her get to a beginning recovery stage very early. Plus children tend to heal faster than adults so that's plus too. The...
  10. GFinDC
    Merry Christmas all, and to all a good night!
  11. GFinDC
    Hi Vicki, You may have celaic. You could also have a low thyroid problem or diabetes. It would be a good idea to eliminate those possibilities. Another possibility is to get allergy testing done. Your symptoms do sound like celiac but since you don't want to eat gluten for testing, eliminating some other possible conditions might be a good idea. ...
  12. GFinDC
    Hi Rob, Welcome to the forum! DH is a condition that only people with celiac disease get. So if you have DH you have celiac disease. There is a separate test for DH where they take a skin biopsy from near a lesion. People with DH may not have positive blood tests at first. So a skin biopsy is a better test for them. The gut damage and blood...
  13. GFinDC
    Hi Olivia, Welcome to the forum! You might have celiac disease. The way to find out is to get tested for celiac disease. Don't stop eating gluten though. You need to keep eating gluten until all the testing is competed. The testing checks for antibodies to gliaden, and those antibodies can change if you stop eating gluten. So then the testing...
  14. GFinDC
    Hi TonyG, Check out the info at the vitamin D council site. They ran tests on various vitamin D pills. They are not all the same. Also, oily fish is a good natural source of vitamin D. https://www.vitamindcouncil.org/about-vitamin-d/
  15. GFinDC
    Hi, and welcome! Please read up on (DH) dermatitis herpetiformis. There is a lot of info on DH in the DH section of the forum. It could be you have DH instead.
  16. GFinDC
    Hi FL, Welcome to the forum! Your daughter doesn't need to eat a lot of gluten every day for the antibody reaction to continue. So the first thing I would suggest is limiting the amount of gluten she eats to around a single slice of bread. Her doctor should be able to look up guidelines on this. Also, it is possible some of her symptoms are...
  17. GFinDC
    I don't know beata13, but Altoids peppemints are gluten-free, and most peppermint tea is gluten-free also. I've never found a pure peppermint herbal tea with gluten yet.
  18. GFinDC
    Hi JMG, I've found a little dairy is too much dairy. It just doesn't work well for me. But there are alternatives like almond milk or coconut milk that are available now. But it's kinda like gluten. Once you start hating it you won't miss it anymore. And yep, they put it in a lot of foods too.
  19. GFinDC
    If you sign up for a Foodsaver account, they send out promotional pricing emails once in a while. Also, you can find Foodsaver type bag rolls on Amazon for far less than buying from the Foodsaver company. If you get the Mason jar attachment, you can use Mason jars to vacuum seal things that are fragile. For example, potato chips could be crushed by...
  20. GFinDC
    Hi, It is probably better to eat some fish containing the oils. Oily fish like salmon, mackeral, tuna, and sardines are good to eat because they contain natural vitamin D. Fish oil pills are not something I'd trust anymore.
  21. GFinDC
    Hi Joff, Welcome to the forum! You could have celiac disease, or something else. Nothing in your symptoms descriptions would rule out celiac disease. Celiac disease can cause abnormal liver function tests. The best thing to do is get tested for celiac disease. But to do that you need to keep eating gluten until all testing is done. The testing...
  22. GFinDC
    Hi, the bumps on your face could be a symptom of dermatitis herpetiformis. DH is a rash that only people with celiac disease get/ People with DH sometimes don't pass show up on the usual blood antibody testing. But there is a skin biopsy test they can do instead. They take a small skin sample from next to a lesion and check it for IgA antibodies...
  23. GFinDC
    Hi Lisa, Welcome to the forum! Your symptoms could have a relation to celiac disease. Celiac disease can cause malabsorption of nutrients, so you may be low on some vitamins your body needs to function well. Celiac can also cause a condition called gluten ataxia, which is damage to the brain that results in difficulty walking and controlling muscles...
  24. GFinDC
    A brain lesion not related to MS could be a gluten ataxia issue. Gluten ataxia is when the immune system attacks purkinje cells in the brain as a gluten response. These lesions are sometimes called UBO's which I think is short for unidentified bright object. There are threads on the forum about gluten ataxia and UBO's. Gluten ataxia can make it difficult...
  25. GFinDC
    Hi Arduaine, Welcome to the forum! Glutenings can cause different symptoms in people. When you are new to the gluten-free diet and early in the recovery, they may cause more intense symptoms than later. Most likely because your immune system is already in a heightened state of alert for gluten. So symptoms can last for a variable amount of time...
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