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GFinDC

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Latest Celiac Disease News & Research:

Everything posted by GFinDC

  1. GFinDC
    Usually soy sauce is made with gluten in it. For a buffet you would have to make sure they make all the food with gluten-free soy sauce, which is unlikely. And an awful lot of Chinese food has soy sauce in it.
  2. GFinDC
    You can test yourself without a doctor. You can buy the items you suspect and try them one at a time over a week and see if you react. Or you can order a new set of nerves if you really believe you made yourself sick by worrying. Where you'll get a good deal on a set of nerves I am not sure, though, maybe Dr. Frankensteins store on E-bay.
  3. GFinDC
    Hi HG, The celiac disease blood antibodies panel is usually the first test. Then an endoscopy to check to take villi biopsy samples for review. Four to 6 biopsy samples from different areas are recommended. Sometimes a doctor does only the ttg IgA test at first, but here are also several other antibody tests that can be done. There's more info...
  4. GFinDC
    My hayfever allergy symptoms reduced after going gluten-free. I did develop several food intolerances though. Some persisted, but some did not.
  5. GFinDC
    Hi Plonkers, I know there was a study on children that found a good number, say 20 percent didn't have completely healed guts after 18 months.
  6. GFinDC
    Hi Theri, I never did the gluten challenge, but I did av back pain from celiac symptoms at times. I still do if i get glutened for that matter.
  7. GFinDC
    Hi MM, There is something called low grade fever that can be associated with inflammation in the body. So a person who has this might feel warm or even hot sometimes when others don't. They might also have nightsweats, sweating in bed, possibly in the early hours like 2 or 3 am. The body does some immune housecleaning during the sleep process, and...
  8. GFinDC
    Hi RayB, The gene tests can't tell a person the have celiac disease. Only that they are in the group that might get celiac disease. The genes are actually fairly common, but celiac disease is much less common than the genes presence.
  9. GFinDC
    Hi HersheyGirl, I hope you feel better soon! Not getting a positive on the standard celiac disease tests doesn't mean you are not having symptoms from eating gluten. It could be the antibodies were not detected for some reason, or maybe you have NCGS. There is no testing for NCGS, so the thing to do is trial the gluten-free diet for 6 months after...
  10. GFinDC
    Sounds kinda handy!
  11. GFinDC
    Thanks Ennis!
  12. GFinDC
    Hi MisterV, The risk of cancer from celiac disease is very low. Most people don't get it. I think your spots are probably caused by something else.
  13. GFinDC
    Welcome to the forum Easterlily, If you want to get tested for celiac disease you need to be eating it for 12 weeks for the blood antibodies test and 2 weeks for the endoscopy. (quote) Open Original Shared Link A gluten challenge is the period of time when gluten is added back into a person’s diet to assist in the diagnosis of celiac d...
  14. GFinDC
    I went to University of Maryland to see Dr. A. Fassano, because it was close to my home. So not much more cost than a few hours off work and driving there. Doctors can't do much for celiac patients. The best treatment for celiac disease is the gluten-free diet. And that is the patients own responsibility. Beyond that, there is vitamin deficiency...
  15. GFinDC
    I was totally out for my recent endoscopy + colonoscopy. But for just an endoscopy, I am not sure what they do. Your doctor's office can tell you. If you request it, they may do full anesthesia. But you will probably need someone to drive you home.
  16. GFinDC
    Hi Kathleen, There is a standard called the Marsh Scale that is used to rate the various levels of damage to the gut. While the lighter damage levels might not show up to the naked eye, the worst damage levels are obviously visible. The worst levels result in what they call "scalloping" referring to the appearance of the gut lining. Isn't this...
  17. GFinDC
    I definitely went for the monster roller coaster ride myself. I ended up doing elimination diets multiple times over the years to identify problem foods beyond gluten. And yes, you are a bright and shiny newbie at 5 months! Usually we think of children as healing faster than adults. After all, they do other things faster than adults too, like running...
  18. GFinDC
    If you look into growing your own mushrooms in plastic bags and sawdust. you'll find that they sometimes recommend adding rye or other flour to the sawdust mixture the mushrooms are grown in. That doesn't mean the mushrooms are full of gluten, but could be somewhat contaminated on the ouside. Most likely a simple solution is to rinse the mushrooms before...
  19. GFinDC
    Welcome to the forum KatB! Nuts in the shell are generally safe if they aren't cross contaminated. It isn't a bad idea to rinse them first if you are concerned. There's no need to rinse nuts after you shell them if they aren't gluten contaminated on the outside of the shell. Nuts.com is a good source for gluten-free nuts. There's also a number of...
  20. GFinDC
    Welcome to the forum Betty! You are correct, you have to eat gluten for 12 weeks prior to the blood tests, and 2 weeks prior to the endoscopy. Many people go on the gluten-free diet without testing. Some doctors will tell people to try out the gluten-free diet, and then get tested! Eeeks! There is also a gene test which doesn't prove you have...
  21. GFinDC
    Hi Steve, Welcome to the forum! I don't think you need to worry about gluten from your compost. Even if it was not destroyed in the composting process, it would just be in the soil, not the veggies. You can always rinse the veggies off if you are concerned. Or get a pond and feed the fish bread from now on!
  22. GFinDC
    If you click on the green circle right of the thread title you can follow your thread and get an email when someone replies. Please do that. There is a lot to learn about DH and celiac disease. It's not like a cold or something silly that you get over in a week. They are both lifelong chronic conditions. So it's a real good idea to start reading...
  23. GFinDC
    Hi FBMB, Please join the club of people who didn't recover in 5 minutes. We have a lot of members and they all pay dues! Your dues are an extended course in patience. Dues are paid daily for an indeterminate time. There was a study a while back of children on the gluten-free diet. A good precentage of them had not totally healed after 18 months...
  24. GFinDC
    The red meat allergy from ticks is described in this article. The symptoms described are typical allergic reactions like throat swelling. itching etc. Anti-histamines ought to have some positive affect on symptoms of allergy, so that might be something to try. Open Original Shared Link
  25. GFinDC
    Welcome to the forum Lakme! You can find a lot of good info on celiac testing at this link. Open Original Shared Link You do need to eat gluten for 12 weeks before the blood antibodies test. A single slice of bread is enough gluten. Since you have been avoiding gluten the antibodies in your bloodstream may have dropped to a point they can...
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