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GFinDC

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Latest Celiac Disease News & Research:

Everything posted by GFinDC

  1. GFinDC

    ARCHIVED Help/info!

    GFinDC replied to Megan16's topic in Coping with Celiac Disease

    Hi Megan, Regarding dairy, celiac disease damages the villi that make the lactase enzyme that digests milk sugar (lactose). So sometimes people can't digest dairy well when they first start the gluten-free diet. Over time that may change as you heal. The ability to digest dairy doesn't always come back, but it may. Throwing up can be caused...
  2. GFinDC
    Hi Alok, I suggest not eating any soy. Soy is one of the top 8 food allergens in the USA. Soy has other things about it that are not helpful to us. Plus it is often sprayed with pesticides that are not so great for people. Maybe you can try some other food for a while? Also it might help to wash all your vegetables before using them. Just some...
  3. GFinDC
    Hi Calla, I think the safe answer is 12 weeks on gluten for a blood test. I am pretty sure they say 2 weeks on gluten for the gut endoscopy. But usually people/doctors don't want to do an endoscopy before a positive blood test, so catch 22 there. There's a chance you still have active antibodies in your blood after 3 weeks off gluten. But nobody...
  4. GFinDC

    ARCHIVED Help/info!

    GFinDC replied to Megan16's topic in Coping with Celiac Disease

    That's good Megan, that you were tested. Many people have the genes, but only some develop the disease. Your doctor is right about celiac often appearing after some kind of physical stress or illness. The tricky thing about eliminating one food is that you body may be reacting to multiple foods. So not getting better could mean you just eliminated...
  5. GFinDC
    Hi Michael, That's quite a spike in blood pressure! I haven't tested that myself and don't want to if it means I have to eat gluten. Blood pressure testing to identify food reactions is something that has come up before. It sounds like it might be possible but I don't know how much study has been done on it. Probably not much since it is such a simple...
  6. GFinDC

    ARCHIVED Help/info!

    GFinDC replied to Megan16's topic in Coping with Celiac Disease

    Hi Megan, Did the doctor test you for celiac disease? You really shouldn't go gluten-free until all the testing for celiac disease is completed. It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO. Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can...
  7. GFinDC
    Hi Diane, One condition that causes excessive thyroid hormone production is called Grave's Disease. I suggest you ask for an ultrasound of your thyroid to check for nodules that might be causing problems. They may find a nodule and want to do a fine needle aspiration (FNA). That just a tiny needle they use to take a biopsy sample. Shouldn't hurt...
  8. GFinDC
    Some starting the gluten-free diet tips for the first 6 months: Get tested before starting the gluten-free diet. Get your vitamin/mineral levels tested also. Don't eat in restaurants Eat only whole foods not processed foods. Eat only food you cook yourself, think simple foods, not gourmet meals. Take probiotics. Take gluten-free vitamins...
  9. GFinDC
    I'm not a doctor but it looks like everything is ok. No inflammation, no h-pylori, no this and no that. Nothing sounds bad. You must be doing something right!
  10. GFinDC
    Omission makes me sick. Not that I wanted it too, I kinda liked it. But it didn't like me. I'd avoid it and all gluten reduced beers if I were you. They aren't worth the risk of damage to your body.
  11. GFinDC
    Hi Olivia, If the package label says they have wheat in them that's good enough reason not to eat them, regardless of what other people say about it. Companies don't always use the same ingredients in every country, so the ones you are looking at could be different than ones made in the USA. They could even be different in the USA if they were made...
  12. GFinDC
    Hi MelissaNZ, The test should have a range of acceptable results with each test. Different labs often have varying ranges of acceptable levels, so without the ranges the test result is not easy to interpret. Symptoms can vary all over the place. I had alternating C and D before going gluten-free, and sometimes no digestive symptoms. Celiac is...
  13. GFinDC
    Hi PLB, The safe way to find out about the gluten status of medications is to contact the manufacturer and ask them. Medications don't fall under the same rules of labeling that foods do in the USA. Your pharmacist should be able to answer that question. It's possible a manufacturer could change ingredients in a medication, so static lists shouldn...
  14. GFinDC
    Hi PLB, If he hasn't been gluten-free very long, he might still be able to get blood testing done for the gliaden (gluten) antibodies. More than a couple weeks may be too long tho. As far as recovery, it varies from person to person. The condition associated with celiac that you are thinking of is probably gluten ataxia. Gluten ataxia is an antibody...
  15. GFinDC
    Hi Elle, The celiac testing process usually includes a blood test for gliaden antibodies first, and then an endoscopy to take biopsy samples of the small intestine to check for damage. So while it's good to get the celiac panel done, don't go gluten-free until the whole testing process (including endoscopy) is completed. Vitamin deficits are a...
  16. GFinDC
    You are welcome Chris. The vitamin D council site linked below has info on how much vitamin D we need and how much sun is needed to get it, what foods contain it etc. Around my neck of the woods I can only get UVB rays (needed to make Vitamin D in skin) from 10 am to 2 pm. So a food source or vitamin pill is a good option, Especially in winter when you...
  17. GFinDC
    Pretty sure that's what I had for a while, adrenal fatigue. I started getting some selenium in my diet to fix it. It made a big difference. Brazil nuts are great for selenium, just don't overdo them because selenium isn't eliminated quickly. It can build up to toxic levels if overdone.
  18. GFinDC
    That sounds like a plan JMG. If things aren't working then make a change, hopefully a positive change. It seems to me we have more noticeable symptoms sometimes after being gluten-free a while. I made a mistake last night and ate some tuna canned in water. It definitely wasn't boring. I usually have more sense than to eat tuna canned in water but screwed...
  19. GFinDC
    Jean, Maybe your boss can find you a job in the office for a while? It's worth asking maybe? It's not easy being on constant travel with celiac disease but it can be done. Your effort to find safe food is going to be harder than most but it is not impossible. But if you can't manage it you should really think about getting a non-travel job. ...
  20. GFinDC
    Try searching for casein sensitive enteropathy.
  21. GFinDC
    Hi One, Before I went gluten-free, it seemed like I reacted to some wheat products more than others. I am not sure why, but our guts are so damaged sometimes the symptoms don't really make sense.
  22. GFinDC
    I've never gone fructose free so can't help much with that. But any fruit is probably a problem. If you are serious about avoiding fructose you could do a search and print out a list of foods to avoid. Open Original Shared Link Yes, it very possible to have multiple food intolerance issues. Many people have multiple food intolerances. It might...
  23. GFinDC
    Hi Courtney, You asked about dairy, and RMJ got it right. Celiac disease destroys the villi lining of the small intestine. Those villi make the lactase enzyme we need to digest dairy. Sigmoid colon thickening could be related to diverticulitis. Which according to Wiki is a fairly common condition but doesn't always cause symptoms. Diverticulitis...
  24. GFinDC
    Hi JMG, Since it's easy, and always fun, I'd blame your sister. That's what I do. But seriously, if it's an ongoing problem, rather than an isolated incident stick with your first guess. Then test it. So get rid of the oat bread or the sister (her food) or anything that is a consistent part of your diet and you suspect could be the problem....
  25. GFinDC
    Right, 8 weeks of eating gluten before tests is what they usually say is needed. It's best not to stop eating gluten until all tests are done and test results received.
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