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Latest Celiac Disease News & Research:
Everything posted by GFinDC
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ARCHIVED Today Is The Day...
GFinDC replied to Wi11ow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's great you are feeling better Wi11ow. Just so you know, when we talk about whole foods, we don't usually mean the chain of health food stores by that name. We mean (usually) foods that are not pre-processed and put in a box or can or some other container. Foods in their natural whole state. Not factory foods like cookies, soups, cakes, cereals,... -
ARCHIVED Please Help
GFinDC replied to Wi11ow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi. Hopefully this link will work. But if not just search for the Marsh scale and celiac and you can find info on it. The Marsh scale is how they grade damage to the gut villi. In advanced damage they can physically see the damage, but in more moderate damage cases they need to take biopsy samples for microscopic review. You may even find pics of... -
Good deal! Just keep up your vigilance in avoiding in gluten. It's easy (for some of us ) to slip up and eat things with gluten at the beginning. Hard to believe you had a good time without bringing some peanuts along though.
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ARCHIVED Today Is The Day...
GFinDC replied to Wi11ow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Wi11ow, You should get the blood antibodie tests also. But you need to keep eating gluten until those tests are done. There are a few other conditions that can cause villi flattening in the small intestine, so the blood antibodies are important. The other conditions that cause villi flattening are more rare than celiac though. It sounds like... -
ARCHIVED It Was Supposed To Be Over At Gluten Free! Help :(
GFinDC replied to AnnaChristine18's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi AC18, Here's links to the beginners info threads. Something else people sometimes forget to check is vitamins and medicines they may be taking. They may have gluten also. Maybe if you give us a list of things you eat we can help spot problems. If there are any. Your doctor told you everything looked pretty good right? Well, that's stretching...- 88 replies
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ARCHIVED It Was Supposed To Be Over At Gluten Free! Help :(
GFinDC replied to AnnaChristine18's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi AC18, Welcome to the forum! Whoever told you you would be fine quickly by just stopping gluten is all wrong. Many people have ongoing symptoms for 6 months to 18 months or more after going gluten-free. It's not an instant fix. Your body will continue to make immune cells for possibly several months after an exposure to gluten. So the trouble...- 88 replies
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ARCHIVED Calling In Sick To Work
GFinDC replied to alexandra17's topic in Coping with Celiac Disease
Collen is right. You'll never feel well if you don't stop glutening yourself. That's rule #1 for living well gluten-free. I used to not eat during the day so I wouldn't get sick at work. Better to be sick at home at night IMHO. But the best thing is to not get sick in the first place. And that requires taking control of the situation and making... -
ARCHIVED A Little Input Please
GFinDC replied to beth01's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'd dump the Chex cereal for now. Some people report reactions to it. Instead eat eggs, meat or cooked veggies for breakfast. The simpler your diet is (fewer foods) the better for healing. Some starting the gluten-free diet tips for the first 6 months: Get tested before starting the gluten-free diet. Get your vitamin/mineral levels tested also.... -
ARCHIVED Advice Requested - Now Gluten Free, But No Diagnosis
GFinDC replied to Jmg's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi JMG, Here's a list of the tests for blood antibodies for celiac disease. Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA It doesn't look like you got all those tests done. Have you read about DH (dermatitis herpetiformis... -
ARCHIVED The Molecular Heart Of Celiac Disease Revealed - Medical Xpress
GFinDC replied to Scott Adams's topic in Publications & Publicity
Sure will be interesting to see what develops from the research in Australia. -
Hi JLDurrani, Take a look at the tips for the first 6 months above. Dairy is not workable for many people at the beginning of the gluten-free diet. Really it is best to avoid eating out at all at the beginning. Instead concentrate on whole foods cooked at home. Avoid all processed foods if possible. Processed foods usually have preservatives, food...
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Omission Beer - Ok, I'm Omitting It.
GFinDC replied to C-Girl's topic in Gluten-Free Foods, Products, Shopping & Medications
Here's some information on the Omission beer situation. http://www.celiaccommunity.org/confusion-over-omission/ -
Hi Pr40, Maybe there are different versions of celiac disease. Maybe not. Can you provide any validation for your suggestion? I'd certainly be interested in reading it. You are correct that medical science doesn't know everything about celiac disease yet. They don't know much about NCGI yet either, but there is research being done on it. Some of...
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ARCHIVED Possible Celiac?
GFinDC replied to Fenrir's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I get the Food for Life brown rice tortillas. The are kinda stiff so I run a little water over them on both sides and zap them in the nuker for 15 seconds to soften them. Food for Life tortillas Open Original Shared Link The real gourmet meals are in these threads: Super Easy Meal Ideas Anyone? https://www.celiac.com/forums/topic/97027-super... -
Hi pr40 Hi pr40, I am not sure what you mean about sub-groups of celiac disease patients? There many differences in symptoms that people experience, and some people have mostly non-GI symptoms. Some people appear to have no symptoms and they call that silent celiac. Some people have the skin rash as a prominent symptom that is called dermatitis...
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Hi Colton, If you want notifications via email when someone posts to your thread, you can subscribe to it. There is a green follow button at the top right of the thread page. Sugar reactions could indicate poor blood glucose control. Which could be an early indicator of diabetes developing. Sugar and refined carbs are high glycemic index foods...
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Hi, Maybe you could read these two threads before you make a decision about cheating on the gluten-free diet. Not surprisingly, other people have thought about cheating and some actually did it too. You may as well read about what happened to them so you have an idea what could happen to you. Falling off the gluten-free wagon Post #37 https://www...
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ARCHIVED Gluten Product Mislabeled As Gluten Free
GFinDC replied to T.H.'s topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for the warning TH. It doesn't sound like Green's has a clue what gluten is. Betty Lou's Healthy Snacks Open Original Shared Link Greens Plus gluten-free whey crisp protein bar ingredients. Open Original Shared Link Ingredients: Whey protein krisps (whey protein isolate, whey protein concentrate, tapioca starch, calcium carbonate), organic... -
ARCHIVED Possible Celiac?
GFinDC replied to Fenrir's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's great Fenrir that you found a good bunch of doctors. Maybe you'd consider adding a thread to the Doctor's sub-forum? People go there to look for dr recommendations. Looks like there are a couple threads there already, so maybe adding to one of them is better. Twin Cities (Mn) Recommendations? https://www.celiac.com/forums/topic/103783-twin... -
ARCHIVED Six Months Gluten Free--New Symptoms?
GFinDC replied to Nicole Thomas's topic in Coping with Celiac Disease
Well, that's better than a red meat allergy then! Have you tried eliminating nightshades yet? Peppers, potatoes, tomatoes and eggplant are the common food nightshades. They contain alkaloids that some people can't process well. I had joint pain pop up recently after taking rhodiola for a couple weeks. I suspect the pills I had were contaminated with... -
ARCHIVED Possible Celiac?
GFinDC replied to Fenrir's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow, those were quick test results! So, time to learn how to eat gluten-free then. There is a whole new world of whole foods and gluten-free alternatives to explore. It can be kind of fun to try out new foods that you may not have considered in the past. Welcome to the 1% club Fenrir! -
ARCHIVED Possible Celiac?
GFinDC replied to Fenrir's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I hope they come up with some clear answers for you fenrir. Waiting for test results sure is fun eh? -
ARCHIVED Where In Your Stomach Does It Hurt When You Have Been Glutened?
GFinDC replied to rcheltrvel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
HI, You might want to read about the side affects of prilosec. What's significant in your story to me is that your symptoms changed when you went gluten-free. When a person stops eating gluten there shouldn't be any big change in their digestion unless they are having some kind of response to gluten in the first place. That your symptoms changed... -
ARCHIVED Not Coeliac But My Life Continues To Be Hell. Can Doctor's Get It Wrong?
GFinDC replied to Currantbun's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I suggest you write down your symptoms each day. Take them or send them to the DR. If it's obvious you are being negatively affected by eating gluten, then something is going on medically. The problem is there are not perfect tests for celiac disease. Any of them can be wrong/incorrect. And usually they are right when they are positive but are... -
ARCHIVED Negative Blood Test But Many Symptoms
GFinDC replied to Kat123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, Well, regardless of medical testing, you know your body is reacting to gluten in some way. People without a gluten intolerance shouldn't have any symptom changes on going gluten-free.