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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. It looks like you have a positive blood test for celiac disease: T-Transglutaminase (Ttg) 6 U/mL (Standard Range 0 - 5 U/mL Flag H), and you have both genetic markers for it, and these two things mean that you most likely have celiac disease. Even if your biopsy were negative I think you should still consider going gluten-free. Were you eating 2 slices...
  2. If you were never formally diagnosed by a doctor with celiac disease I would not put "celiac disease" anywhere as part of your health history. The reason I say this is that it may lead to more expensive and harder to get private health and life insurance, so why subject yourself to this if you were not diagnosed with it?
  3. It's doubtful there would be any gluten contained in vape cartridges, whether they are marijuana or tobacco, but have you tried different brands just to see if this still happens? Also, perhaps it's time to just switch to the real thing, or try gluten-free eatables?
  4. Since you had an endoscopy so long ago it sounds like you're aware already that you have an issue with gluten, and it's not fully clear exactly how much gluten you've been consuming over the past 20+ years. It sounds like you eat some gluten, but not much, and may not have been eating it daily before the tests you took back then, and the test you took recently...
  5. I would need to ask him about this to be sure, and hopefully I don't get this wrong, but going from memory of past conversations we had years ago I believe that Dr. Fine believes that nearly everyone with the celiac genetic markers should be gluten-free, and his stool tests in those with the genetic markers who eat gluten are usually positive for anti-gliadin...
  6. He believes that anyone in any of these 3 stages should go gluten-free.
  7. Here is his site...looks the same since the 2000's 🙂 https://enterolab.com/ He also pioneered the concept that the very first place that anti-gliadin antibodies will show up is in the stool, then later the blood, and finally some will get flattened villi. He now does both blood and stool tests so that he can help those in the very first stage, w...
  8. Canker sores are a common symptom of untreated celiac disease, and here are some research articles on this topic: https://www.celiac.com/search/?&q=stomatitis&type=cms_records2&search_and_or=and&search_in=titles
  9. I have sent this question to Dr. Fine, and will share any answer I receive.
  10. I trust Enterolab, which is run by Dr. Kenneth Fine, and if you believe in his approach he's way ahead of everyone, especially with regard to NCGS. This is an older article about him:
  11. Welcome to the forum. Unfortunately eating at restaurants is probably the most common cause of gluten contamination, even if they offer a gluten-free menu. It may be too late, but this may help:
  12. Welcome to the forum. Were you eating gluten daily, at least 2 slices of wheat bread worth, for 6-8 weeks before your blood test for celiac disease? I ask because many doctors don't seem to be properly instructing their patients about this beforehand, which can lead to false-negative results.
  13. This is an interesting new study "Prevalence and Clinical Significance of Helicobacter Pylori-negative Chronic Gastritis in Children" https://journals.lww.com/jpgn/Abstract/2022/05000/Prevalence_and_Clinical_Significance_of.2.aspx
  14. Thanks for sharing this! I've been taking high levels for years, and have had high blood levels for years. I suspect that I still have issues processing it, even though my blood levels are high. The reason I suspect a possible processing issue is because whenever I lower my levels I do encounter more brain fog and memory issues, which go away when I...
  15. Welcome to the forum, and I'm sorry to hear of their ineptness. I'm not sure, in all the years I've been on this forum, of a situation like this. Losing your blood an biopsy results is tantamount to malpractice, and if any additional expenses are incurred from these errors it should be on them. Is there any hope of finding these test results, or have they...
  16. The post I made here today might be helpful to you:
  17. To address low stomach acid some people take HCL supplements, and here is some research on this: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7238915/
  18. It does make me wonder what comes first, the chicken or the egg (at least in celiac disease)? Does celiac disease get triggered by a virus or some other environmental factor in those with the genetic traits that make them susceptible to it, which then causes thiamine deficiency and further gut issues, or does thiamine deficiency, at least in some with the...
  19. Others have reported drinking certain beers that are very low in gluten content and not getting symptoms, however, given that there are now so many gluten-free and gluten-removed beer choices, why not just switch to one of them? If you contact the company of the beer you're drinking now, I doubt they could verify that it's 10ppm, and it's possible it's much...
  20. Welcome to the forum. I'm sorry to hear you're still having issues dealing with the gluten-free diet. Jean Duane PhD has published 5 chapters of her book on the social aspects of celiac disease here on Celiac.com. Below is chapter 5, but you can navigate to the other chapters by the links in and below the article. I think she's done an excellent...
  21. Celiac.com 06/13/2022 - In 1992 Dr. Michael Marsh developed his "Marsh Classification" system to describe the various stages of microscopic damage to the small intestine (histological changes) seen in those with celiac disease. The original...
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