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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Celiac.com reports on stories that are of interest to those with celiac disease or gluten sensitivity, and this story certainly falls under our purview. We're not political, nor have we taken any political position by reporting this story. We've covered many similar stories in the past and will continue to do so.
  2. Scott Adams
    I believe the original poster was diagnosed at some point with celiac disease and are having a hard time with the gluten-free diet, but that isn't 100% clear. Unfortunately these food allergy tests won't help with celiac disease, but may be helpful in discovering food allergies.
  3. Scott Adams
    I agree...it seems like overkill, and I also wonder if any other brands actually contain any gluten?
  4. Scott Adams
    Welcome! Everything does seem overwhelming at first, and it's too bad your doctor wasn't able to guide you more, but at least you found this site, and we'll do our best to help you.
  5. Scott Adams
    Let us know how it turns out, and keep in mind that a negative biopsy won't necessarily 100% rule out celiac disease, given your positive blood test. There is also non-celiac gluten sensitivity, for which there is no test yet, but ~10x more people have it than have celiac disease. In summary, you may want to try the gluten-free diet for a few months even...
  6. Scott Adams
    The simplest explanation is that gliadin, which is in gluten, triggers an autoimmune response in those with celiac disease that causes the body to produce antibodies that can "attack" various parts of the body and trigger inflammation, and the areas of the body that are most susceptible are usually the gut, skin or brain/nervous system, depending on the person...
  7. Scott Adams
    Welcome to the forum! Were you eating around 2 slices of wheat bread daily for at least 6-8 weeks before your blood test? If one of your parents has celiac disease, an Mayo Clinic study indicates that you have a ~44% chance of also having it.
  8. Scott Adams
    Again, I know you believe these ideas, but I've shared with you articles from reputable sites, and within each are many links to other sources, which indicate that science does not support the idea that you can "alter ph of the blood through what we eat/ drink," or that "following a diet with less acids/ man made acids in puts less pressure on our organs...
  9. Scott Adams
    I don't recall ever "distrusting" any cup of coffee...😉 I am not saying that cross-contamination is impossible, but very unlikely, especially for the big coffee companies, as the machinery, processing, where it is grown, etc., have little to do with wheat or wheat products. I prefer Peet's which I get a Costco. For those who want to be sure about no...
  10. Scott Adams
    This article may be helpful:
  11. Scott Adams
    Given your symptoms, family history, and incredibly high ttg score, it’s best to go gluten-free. They are now diagnosing celiac disease with blood tests alone if your score is 5-10x the leve for celiac disease:
  12. Scott Adams
    I realize that you have this belief, but so far I just don’t see much science to support the very broad PH level claims that you often make here. Please see: https://health.ucsd.edu/news/features/Pages/2019-05-06-pHear-pHactor-debunking-the-alkaline-diet.aspx https://www.healthline.com/nutrition/the-alkaline-diet-myth https://www.chatelaine.c...
  13. Scott Adams
    Definitely, even trace amounts of gluten eaten regularly can allow the autoimmune reaction that happens in celiacs to continue, and when that happens any and all of the many disorders, symptoms and risks associated with celiac disease will also not go away.
  14. Scott Adams
    I know that there is something like a fad diet now that is called the "low histamine" diet, but again, you are throwing around too many "what ifs" here. I could make the exact same statement you are making but turn them around and say what if the reason that so many celiacs are not getting better is because they don't have enough enough acid in their stomachs...
  15. Scott Adams
    Welcome! Keep in mind that whey is dairy, and it doesn't contain gluten, so this would not indicate whether or not you are still reacting to gluten. There is a published case in which someone with celiac disease who received a bone marrow transplant for leukemia apparently no longer had celiac disease, however, in the study he was only followed for ...
  16. Scott Adams
    In summary, AN-PEP has been shown in published scientific studies to break down anywhere between 1/8 to 1/3 of a slice of wheat bread! If that is not the most amazing development that has come along in the treatment of celiac disease and/or gluten sensitivity in the past 25 years, what is? How much cross contamination would you likely get in a restaurant...
  17. Scott Adams
    Doctors are now diagnosing celiac disease with blood tests only when someone is 5-10x higher than the cut off range for celiac disease. Your range is 6.5 times higher, so I would assume you have celiac disease. More about this is in this article:
  18. Scott Adams
    Normally once a blood panel and endoscopy for celiac disease are completed, you can go gluten-free. I would still send a note to your doctor letting them know that you intend to do that, just in case. Free free to share your blood test results if you have those, along with the reference ranges. I assume you have symptoms, which likely led to you...
  19. Scott Adams
    For some reason many doctors don't seem to know that celiac disease, in most cases, goes into "remission" when on a gluten-free diet, because the offending gliadin has is no longer present, so the runaway autoimmune reaction ceases. Getting retested for celiac disease, whether a blood test or an endoscopy, would require a gluten challenge, where you'd need...
  20. Scott Adams
    A biopsy is no longer required to diagnose celiac disease, and if you look at the articles linked in this article to the studies regarding diagnosing CD with only blood tests, you will see that it is now becoming much more common when TTG levels are 5x or higher than the marker for CD. Feel free to share your blood test results if you like:
  21. Scott Adams
    Hair loss and thyroid issues have both been linked as symptoms of untreated celiac disease, and for hair loss, here are some articles that discuss it: https://www.celiac.com/search/?&q=Alopecia&type=cms_records2&quick=1&search_and_or=and&sortby=relevancy
  22. Scott Adams
    What kind of "celiac support group" would require this for participation? It does not seem very supportive, but more exclusionary based on an increasingly archaic viewpoint on the traditional way it has been diagnosed. There is a section in this article with links to the latest studies which support the current and future way it will be diagnosed, and...
  23. Scott Adams
    I believe the H. pylori diagnosis in many celiac patients is caused by it's ability to thrive within a damaged gut.
  24. Scott Adams
    I mentioned that around the time of my celiac diagnosis I was also diagnosed with H. pylori and, once again, was given a dose of antibiotics. In fact, I was given several doses of antibiotics during the years leading up to my diagnosis, and each time I had some relief of my celiac symptoms, however, I believe that this did not help things, and ultimately...
  25. Scott Adams
    Yes, welcome! On the positive side, your celiac disease diagnosis would explain many of the symptoms and issues you've been having, and rather than just using prescriptions or over the counter drugs to treat your symptoms, a 100% gluten-free diet will likely provide actual relief. When the time comes, this article will be helpful: Also, you...
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