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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    I recall that I would have a general feeling of being unwell, and my entire gut seemed to be bloated and sometimes painful, but the main area I complained about when I visited my doctor was the center-right to lower-right quadrant. This was also the area the recovered soonest after going gluten-free. I believe that after a few days on a GFD the pain in that...
  2. Scott Adams
    After my diagnosis I also had issues with chicken eggs, but have no issues with duck eggs, which I can find here a local market, or one of our farmer's markets. Asian markets also sometimes carry them, but be sure not to get the ones with a red mark on top, which means it has a developed embryo inside (an Asian food).
  3. Scott Adams
    There seems to be a mix of info about the "alkaline diet," which is what I believe you are referring to here. Some sites have debunked it outright: https://health.ucsd.edu/news/features/Pages/2019-05-06-pHear-pHactor-debunking-the-alkaline-diet.aspx https://www.healthline.com/nutrition/the-alkaline-diet-myth#what-it-is and I did find an old...
  4. Scott Adams
    Yes, and here it is:
  5. Scott Adams
    I recall most of my issues were on my lower-right side, and I did think it was possibly appendicitis at the time.
  6. Scott Adams
    until
    From the Experts: Join Our Virtual Monthly Meeting on "All Things Celiac" Aging Well with Celiac Disease Join the National Celiac Association (NCA) and the Harvard Medical School Celiac Research Program for the...
  7. Scott Adams
    I agree, and the article points out that one patient of his had very high tTG levels, but no genetic markers (at that time anyway, but many new makers have been discovered in the years since it was written), and their symptoms improved dramatically on a gluten-free diet.
  8. Scott Adams
    Here is an older article, but still relevant. It's an excerpt from his book "The Gluten Syndrome."
  9. Scott Adams
    One accident before a test would not likely push your tTG levels this high. Is it possible that you may be getting small amounts of cross contamination? Do you eat out regularly? If so, this is the likely culprit. Studies have shown that cross contamination is common in restaurant foods. Another possibility is casein or cow's milk intolerance:
  10. Scott Adams
    Celiac expert doctors such as Dr. Kenneth Fine, Dr. Rodney Ford, etc., have consistently supported the idea that NCGS is simply the bigger problem, while celiac disease is the smaller one (only 1% get the gut damage). As Dr. Ford has claimed for well over a decade now, NCGS can attack the gut, skin or brain/nervous system, and with NCGS it is still likely...
  11. Scott Adams
    I just want to point out that, so far anyway, all commercial wheat is non-gmo…I believe. The research I did was years ago but I am pretty sure this still holds true. They are currently doing research and using genetic techniques to modify wheat so that it might be safe for celiac’s, but this is not commercially available.
  12. Scott Adams
    Given that your doctor got this wrong, and you do need to be eating ~2 slices of wheat bread per day for 6-8 weeks before blood tests for celiac disease will be accurate, and that they claim now that you don't need further testing, I say just go gluten-free for a few months and see how things go.
  13. Scott Adams
    This article may be helpful:
  14. Scott Adams
    I just want to say that I would describe your results as unequivocally positive, at ~3x the cut off range for celiac disease on your tTG results: tTG IgA of 20 (ref <7).
  15. Scott Adams
    No worries, and it could just take more time for you to heal. Hopefully you are taking vitamin & mineral supplements, many celiacs are deficient in many different nutrients, and this can also help with recovery. @Wheatwacked has posted here extensively on this topic, and this particular post may be helpful:
  16. Scott Adams
    We have a category dedicated to summaries of research done on refractory celiac here: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/refractory-celiac-disease-collagenous-sprue/ There is research to support your doctor on this:
  17. Scott Adams
    Thank you for the clarification, and you did mention in your initial post that you were already diagnosed, so my bad for not catching that. There have been some studies that show that cow's milk can increase tTG levels in some people, so you may want to try eliminating dairy for a while to see if that helps to bring down your levels to normal, however...
  18. Scott Adams
    I just want to mention that Ashwagandha can increase blood pressure, and possibly interact with certain medications. Be sure to check any supplements you take for side effects and drug interactions.
  19. Scott Adams
    I do recall others who have dealt with a hiatal hernia, and sure enough when I did the search I found over 700 results here. Perhaps going through some of these older posts might help? https://www.celiac.com/search/?q=hiatal hernia&quick=1
  20. Scott Adams
    Any time you eat out there is a risk of cross-contamination. I still eat out, but always discuss my order with the server, and sometimes the chef, beforehand. I also take AN-PEP based enzymes (an advertiser here) that may help mitigate small amounts of contamination. I used to have issues from time to time when I ate out, but for the past few years I haven...
  21. Scott Adams
    I'm not sure if you drink beer, but if so:
  22. Scott Adams
    Well, actually there are specialty replacement products that likely fit this bill, for example a soy-based bacon. This vegan bacon might work for you: https://www.walmart.com/ip/Louisville-Vegan-Jerky-Co-Paulette-S-Maple-Bacon-Jerky-3-Oz/167585550 but I'm not sure you can get it in the UK.
  23. Scott Adams
    Welcome to the forum! The article below is older, but still explains the tests well. It looks like you have two positive blood tests for celiac disease, so it is likely that will be your diagnosis. Your doctor may want to do an endoscopy and biopsy to confirm this, and to do that you should still be eating gluten daily for ~2 weeks before the biopsy.
  24. Scott Adams
    Welcome to the forum, and this article might be helpful. Also, most of the risk of associated disorders will decrease dramatically after going gluten-free.
  25. Scott Adams
    I agree, and be sure to drink more water, and also consider eating prunes and drinking prune juice.
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