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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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THOSE SNEAKY GLUTENN INVADERS
Scott Adams replied to Yvonne (Vonnie) Mostat, RN's topic in Coping with Celiac Disease
Great info...I just wanted to clarify that in the USA modified food starch is considered gluten-free: -
Blindsided and confused
Scott Adams replied to Shan-'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I made a small correct to that article to be more clear. The last step in the protocol should have said that if no IGA is detected, not that low IGA. I also added a reference: https://www.mayocliniclabs.com/test-catalog/Overview/89201 -
Top Brands of Gluten-Free Cold Coffee Drinks
Scott Adams commented on Scott Adams's article in Gluten-Free Foods & Beverages
Product made in the USA that use natural flavors are gluten-free: -
I feel so bad
Scott Adams replied to Sergey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, and I'm sorry to hear of your health issues. You mention being gluten-free, but it's not clear if you were ever tested for celiac disease, or if you are self-diagnosed and have gluten sensitivity. Knowing whether or not you have celiac disease or non-celiac gluten sensitivity may affect the replies you get here, so please let us... -
Yes, chips like Pringles may contain wheat starch.
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Scott Adams' Story of His Diagnosis of Celiac Disease
Scott Adams commented on Scott Adams's article in Diagnosis, Testing & Treatment
Locust Bean gum is naturally gluten-free, however, I was reading that there is a milling process involved when they mill the carob beans. I suppose it's possible that it could be contaminated during this process. In general look for brands that have "gluten-free" on the label, but this gum is likely safe unless the manufacturer mills other grains on their...- 173 comments
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Gluten is harmful to anyone with celiac disease or gluten sensitivity. It triggers an immune response in some people where the antibodies can cause gut, nerve, and other damage, but to say gluten isn't harmful isn't correct.
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The focus of the article was a gluten-free beer winning this prestigious contest, and not how the beer is made. Use google to search for more info about that.
- 16 comments
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Celiac or Gluten Intolerance?
Scott Adams replied to Tyee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If the cut off for each test is >15 is positive, and you had these results: Gliadin (DPG) IgG: 65 tTg IgA: 57 tGg IgG: 28 It would seem that you are clearly in the celiac disease category. It's possible they caught this early, but there is no easy way to know this. Within this article is a section on diagnosing celiac disease... -
Waiting for possible diagnosis
Scott Adams replied to Lisacnj3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! Could you please share the reference ranges for each of those tests? This would be the cut off level for positive, and each can vary depending on the lab used. With this extra information we might be able to comment on your results. -
Blindsided and confused
Scott Adams replied to Shan-'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would not refer to results that are 33% higher than the baseline as "low positive," but will admit that we often see much higher numbers here on a regular basis. She may get relief from her eczema after going gluten-free, and I hope this will be the case. -
Blindsided and confused
Scott Adams replied to Shan-'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! I agree with her doctor, and it only takes one positive test to indicate celiac disease, and her doctor may want to do a follow up endoscopy to confirm this. You should discuss this with her doctor, of course, but no matter the outcome of the endoscopy it would likely be wise for your daughter to go gluten-free, as her positive... -
Bloating and Other Issues
Scott Adams replied to Ginger38's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think the amount that would cause intestinal inflammation, damage and positive blood tests would vary a lot from person to person, but to me it seems that you may have crossed this threshold. I was hoping you'd say that what you were eating was a pill that might use wheat starch, as that would contain very small amounts of gluten, and may not trigger a... -
Triple Layer Pretzel Bars
Scott Adams replied to Yvonne (Vonnie) Mostat, RN's topic in Gluten-Free Recipes & Cooking Tips
This looks like another amazing recipe, thank you!! -
Bloating and Other Issues
Scott Adams replied to Ginger38's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
How long were you eating it, and are we talking about large amount of gluten each time? If you've been eating this for a couple of months you could be back to square one, which means it could take you a few months, or even longer to heal and recover. Be sure to take a good multi-vitamin like Geritol (if you can include iron in your supplements) to help... -
Durum Wheat Products- No celiac reaction??!
Scott Adams replied to jaccah's topic in Related Issues & Disorders
We've definitely had people report that certain types of wheat seem to cause less issues, or sometimes no issues, for example einkorn, semolina, etc., but celiac experts do agree that those types of wheat will still cause harm to those with celiac disease. Gut reactions in most people are not a good indicator of what damage may be caused, or what autoimmune... -
Long term use of PPI's can be a concern, as it can cause you not to break down and absorb nutrients in your food. Ironically many people who are prescribed them would actually benefit more by increasing their stomach acid using HCL supplements, but again, I do not want to second guess your doctor. I will assume that you are very careful with your gluten...
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Even if you are as sensitive as you have mentioned, I believe that since you are not eating this that information from Native would be enough for me to think that it is safe. Even if there were a tiny amount of contamination in the very first part of their manufacturing run due to something in the machinery that wasn't cleaned properly (this risk is likely...
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Is celiac testing necessary?
Scott Adams replied to Wise1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There are also other things to consider, for example an official diagnosis would likely lead to increased costs for private life and/or medical insurance--life insurance for sure, but on the medical side it depends a lot on the type of insurance you have, where in the world you live, etc. Most people don't mention this, but it is a fact, so you may want to... -
Wow, welcome back and I'm sorry to hear that you're not doing well. You are correct to question your doctor regarding the number of samples they plan to take during a endoscopy for celiac disease, and you are correct that the recommended amount is at least 4 samples. We had someone post here recently that they spoke to their gastroenterologist (in the...
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It is possible you have both, but I don't want to second guess your doctor. Many people who have eczema have reported improvement of their symptoms on a gluten-free diet, and it would be interesting to see how your symptoms are after a 100% gluten-free diet for a few months. Please let us know how things go.
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Undiagnosed and next step
Scott Adams replied to Lindsaygalaxy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would only add that you've already basically self assessed that you have non-celiac gluten sensitivity, and whether or not you go the route of getting a formal celiac disease diagnosis is up to you--you know that gluten causes your symptoms, and removing it makes them better. A formal diagnosis may give you access to more follow up care, but you may also... -
What does all of this mean????
Scott Adams replied to CLAwesome's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum. If you had a positive blood test for celiac disease, which is the normal first test done before an endoscopy for celiac disease, then those results combined with "focal mild increase intraepithelial lymphocytes" likely means that you have celiac disease. Of course your doctor would need to confirm this, however, there are many doctors...