Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Celiac.com 02/06/2025 - Dining out with celiac disease or gluten sensitivity can be a challenge, but it doesn’t have to be overwhelming. With more restaurants recognizing the importance of offering gluten-free options, people with dietary r...-
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- celiac-friendly
- cross-contamination
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Unless your blood antibody levels are 10x the celiac disease positive level they usually do an endoscopy to confirm the diagnosis. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
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Many super sensitive celiacs do have issues with this, especially if they work in a bakery or area where flour may be in the air. Some even seem to have issues being in areas where bread is being baked. Here are some threads here on this:
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Royal Caribbean Only, Please
Scott Adams replied to AuntieAutoimmune's topic in Traveling with Celiac Disease
I'm not sure if you saw this topic: and this article is about a different cruise line: -
I had a doctor for a few years too long who would always begin any response to nearly any question or comment I had, especially if I requested any type of test, with: "Mr. Adams, it looks like you've been doing some Google searches..." He never took me seriously, even when my total cholesterol levels were routinely over 300 and my father died in his 40's...
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Celiac.com 02/05/2025 - In recent years, the demand for gluten-free products has grown significantly due to the rise in celiac disease diagnoses and increased consumer preference for gluten-free diets. A groundbreaking study has focused... -
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.
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Did I outgrow celiac
Scott Adams replied to Liamclarke's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Celiac disease is a lifelong autoimmune condition. Unlike some food allergies, which children may outgrow, celiac disease does not go away. Even if you don’t experience immediate symptoms after consuming gluten, it doesn’t mean the disease is gone. The absence of symptoms does not equal safety. Gluten can still be causing damage to your small intestine, ev... -
Oats can be problematic for some people with celiac disease due to cross-contamination or sensitivity to avenin. Corn and rice are typically safe but should be checked for cross-contamination if processed in facilities that also handle gluten-containing grains.
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New and Frustrated
Scott Adams replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Tracey Thomas I agree with @trents and this looks like a total IGA result, and not a celiac disease test result. Be sure to discuss this with your doctor. -
Everyone is different, but you may hear a CYA statement like "we don't test for gluten, and can't guarantee our products are gluten-free," which doesn't mean they are likely to contain gluten, only that they want to protect themselves. This is pretty common, and very frustrating for sensitive celiacs.
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Celiac.com 02/04/2025 - Za'alook is a traditional Moroccan salad made with eggplant and tomatoes, seasoned with aromatic spices. It’s a popular mezze served both warm and cold and pairs beautifully with other Moroccan dishes. Historically, ...-
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This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
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Citracal Petite supplements
Scott Adams replied to pplewis3d's topic in Gluten-Free Foods, Products, Shopping & Medications
According to their FAQ page: https://www.citracal.com/faqs they appear to be naturally gluten-free, but throw in the usual CYA statement: -
Of course the best approach would be to avoid eating out if possible, but for those who do choose to eat out using GliadinX may help deal with small amounts of gluten, as you might encounter when eating "gluten-free" options in restaurants. They are a sponsor here, but on their website they have extensive information on studies that have been done which show...
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There are no gluten ingredients that I can see, so they appear to be naturally gluten-free: https://www.braswells.com/category/93 You may want to call the company to verify this info.
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Others here have reported nightmares as a symptom of celiac disease: https://www.celiac.com/search/?&q=Nightmares&type=cms_records2&quick=1&search_and_or=and&sortby=relevancy Since your symptoms are so severe and obvious, how important to you is an official diagnosis? Perhaps you should just stay gluten-free? Approximately...
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Long term recovery
Scott Adams replied to James47's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The... -
This should be a safe level for you once per week, but if you are super sensitive, or have DH, you may want to only partake in the wine (you may also want to ask if you can drink from a separate chalice). You may also find this article of interest:
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This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free...
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New and Frustrated
Scott Adams replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So just to clarify, celiac disease is an autoimmune disease rather than an allergy, and you mentioned that you had allergy tests done. Can you share with us your celiac disease blood test results along with the reference range for a positive test? Also, did you get the results back for your DH biopsy? Approximately 10x more people have non-celiac... -
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
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For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:
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Considering how ill your daughter seems to get from eating gluten you may want to weigh the importance of an official celiac disease diagnosis against the potential health issues she would need to endure to get a formal diagnsis. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test f...
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Celiac.com 02/03/2025 - Bone health is a significant concern for individuals with celiac disease, a condition that extends beyond the digestive system to affect the entire body. This study sheds light on how celiac disease impacts bone...
