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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. I’m so sorry to hear about the challenges you and your daughter are facing. A celiac diagnosis, especially during adolescence, can be overwhelming, and it’s understandable that she’s struggling with the lifestyle changes it requires. Coupled with the complexities of self-medication and signs of an eating disorder, this is undoubtedly a difficult time for y...
  2. Celiac.com 03/01/2025 - Traveling while adhering to a strict gluten-free diet can feel daunting, especially for those with celiac disease or gluten sensitivity. However, the growing awareness and demand for gluten-free options have made...
  3. For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
  4. Yes, if you had symptoms when eating gluten ruling out celiac disease won't necessarily mean you'll be able to eat gluten again, although it might mean that you may be able to be less strict with your gluten-free diet.
  5. Definitely, I have ramen regularly as Costco sells an excellent brown rice & buckwheat gluten-free ramen (just the noodles--they also sell a GF chicken soup stock in jars that works well to make ramen).
  6. Celiac.com 02/28/2025 - Celiac disease, an autoimmune disorder triggered by the ingestion of gluten, is commonly associated with digestive issues such as bloating, diarrhea, and abdominal pain. However, its effects extend far beyond the...
  7. Thank you for sharing your genetic test results and background. Your results indicate you carry one half of the DQ2 heterodimer (DQA1*05), which is associated with a very low celiac disease risk (0.05%). While most celiac patients have either DQ2 or DQ8, these genes are also present in people without celiac disease, so the test alone doesn’t confirm a diagnosis. ...
  8. @cvz Thank you for sharing your daughter’s story. It sounds like she is managing multiple complex conditions with great care and diligence. It’s encouraging to hear that she is compliant with her gluten-free diet and that her Addison’s disease symptoms are under control. The addition of electrolytes seems like a thoughtful suggestion, especially given her f...
  9. In case you decide to go the route of a gluten challenge for a celiac disease blood test or biopsy: Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  10. Celiac.com 02/27/2025 - For people with celiac disease, maintaining a gluten-free diet is essential to managing physical symptoms like gastrointestinal distress, nutrient malabsorption, and chronic inflammation. However, a growing body...
  11. Celiac.com 02/26/2025 - Celiac disease, an autoimmune disorder triggered by gluten consumption, affects millions worldwide. Gluten proteins, particularly gliadin, are central to the inflammation and intestinal damage associated with the...
  12. So the way it should be used is to take it before possible gluten exposure, so right before a meal at a restaurant take 1-2 capsules. Unfortunately taking it 1 hour or more after an exposure is too late.
  13. Welcome to the forum, and thank you for sharing your detailed experience. It sounds like you’ve been through a lot over the past several months, and it’s understandable to feel frustrated after navigating unclear diagnoses and conflicting advice. Since you’ve found relief with a gluten- and corn-free diet, it might be worth continuing that approach for n...
  14. I just want to mention that with gluten we're talking about ppm, or "parts per million," and not parts per billion. Sticking to whole foods and home cooking is the safest way to go, without necessarily replacing all gluten products you might normally eat with gluten-free ones. If you do eat gluten replacements, for example gluten-free bagels or...
  15. Celiac.com 02/25/2025 - Amidst the ongoing conflict in Ukraine, a heartwarming initiative brought joy and relief to children suffering from celiac disease. Thanks to the unwavering support of the AOECS Emergency Fund and the dedication...
  16. I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section....
  17. Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or e...
  18. Steatorrhea (oily or fatty stools) can indeed be a symptom of malabsorption, which is often linked to gluten exposure in individuals with celiac disease. While it’s possible that a single glutening event, like cross-contamination at a restaurant, could trigger temporary steatorrhea, it’s also worth considering whether there’s a more chronic source of glute...
  19. As you noticed, GliadinX is a site sponsor which I use regularly whenever I eat outside my home. There have been multiple studies which have shown that AN-PEP enzymes, used in the product, can break down small amounts of gluten in the stomach, which you can read here: https://www.gliadinx.com/publications
  20. It sounds like you're dealing with a complex situation involving multiple factors, including type 1 diabetes, celiac disease, and potential pancreatic or digestive issues. While your doctor has ruled out pancreatic insufficiency based on one normal elastase result, it’s worth noting that elastase levels can fluctuate, and a single test might not capture t...
  21. Yes, there are blood tests for celiac disease, and feel free to share your son's results here if you have them. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test ...
  22. Unfortunately we're still years away from a prescription drug to treat celiac disease. The FDA approval process can take many years to complete, and some past drug candidates have not worked out. I suspect that some current ones may not make it through the process as well, but hopefully we will see some successful drugs at some point.
  23. This article might be helpful. See this section of the article: Many People Can Be Diagnosed Using Only Blood Tests and No Biopsy
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