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itchygirl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by itchygirl

  1. itchygirl
    Actually, a large number of people find that they lose weight on the gluten free diet. Many people who are celiac and are malnourished due to small intestine damage have gained weight because their body was in "starvation mode" and hanging on to every calorie-as they heal up, they just naturally lose fat and gain muscle mass. Other people still on gluten...
  2. itchygirl
    Open Original Shared Link Their website certainly looks tasty!
  3. itchygirl
    Oh, and you said you asked your doc to check your pancreas? Unless you did a three day stool collection and a bunch of imaging studies that you failed to mention, that did not happen. Just checking the amalyase and lipase is pointless, you can have normal ranges and be dying in the middle of the floor (literally)
  4. itchygirl
    (scratches head and looks stupid) If we buy the product through your link do you make any money from the sale? Not that I'm against anybody making money... (and no,before anybody asks... I don't own any stock in Caphosol ) Interesting company, I'd never heard of it before-looks like they have a money back policy in place now, if you used the product...
  5. itchygirl
    Have you had a chest x-ray and/or lung function test since the wheezing started? Open Original Shared Link Open Original Shared Link
  6. itchygirl
    Humaworm looks just like a herbal digestive preperation from one of my antique medical texts. Except for the Psyllium. Hysop is such a useful herb for stomach complaints. Remember, while parasites are gross, exposing your kids to them does, prehaps, reduce their chances of developing both asthma and crohns disease. Parasites have been a normal part of human...
  7. itchygirl
    Have you been checked for autoimmune disease such as Sjogren's or Lupus? That would explain the exhaustion and dizziness. A neuro really should look at the dizziness (*worry*). You can have those autoimmune illness and celiac as well, I have Sjogren's and celiac and chronic pancreatitis. No restrictions to one disease per customer....unfortunately.
  8. itchygirl
    Enterolab is getting my economic stimulus tax rebate this year. Its very convient that the tax checks we will be getting are just right for their gene and stool test. I'm interested in how their gene test will match up with the one I've already had. Kind of a fun experiment.
  9. itchygirl
    Does it ever go away? Since I had surgery all I can wear are Woman Withnin plus size jumpers, or those huge Just my size lounge shirts-anything with a waistband is out.Everything has to be four sizes too big. I need a small portable tent that I can just stick my head out of
  10. itchygirl

    ARCHIVED Grrr

    itchygirl replied to nikky's topic in Doctors

    Adding my "amen". And after the patient finally manages to get dx'd, after years or decades of agony....dufus doctors, don't just hand them a gluten free diet sheet, kick them out the door and then fail to follow up when the patient continues to suffer long term complications as a result of their delayed diagnosis. Understand that years of celiac disease...
  11. itchygirl

    ARCHIVED Should I Wait For The Test?

    itchygirl replied to DrewMa's topic in Doctors

    The biopsies are real tiny. If you had acne as a kid you probably bled more from a popped zit . We're talking teeny little pinches here.
  12. itchygirl

    ARCHIVED Should I Wait For The Test?

    itchygirl replied to DrewMa's topic in Doctors

    A negative biopsy only means they could not reach a damaged piece. You have postive bloodwork, you have celiac. A biopsy may not pick it up, but its there. The bloodwork may have false negatives, but not false positives. You're postive, you're postive.
  13. itchygirl
    They better not destroy them, they have to keep them for seven years (or longer)
  14. itchygirl
    If you're interested in possible negatives with flaxseed,one place to start researching is the topic of cyanogenic glycosides. Other lists I'm on have argued this to death, back from the dead and to death again Here is a little bit to get you started Open Original Shared Link I will now back carefully away from this topic and go hide in the corner...
  15. itchygirl
    Medical University of South Carolina is where I went. Their website has celiac information Open Original Shared Link Duke just told me I had IBS I don't know why your ped would want to pack you off to Duke when you have a world famous digestive disease center right there. You always have the right to a second opinion on biopsies. And a third opinion...
  16. itchygirl
    My hair never grew back, but I have Alopecia areata-some lucky people have, however, had alopecia clear up on a gluten free diet. I love this prescription stuff for remineralzing teeth. Most doctors have never heard of it Open Original Shared Link Caphosol supersaturated calcium phosphate solution. Its a really weird product, you mix up two vials and...
  17. itchygirl
    Have you looked into other causes of flushing such as my favorite under-diagnosed one here: Open Original Shared Link Open Original Shared Link its not one disease per customer, you can have celiac and something else too. Cheerful thought. Not There are, of course, other causes of flushing and stomach issues but I just wanted to get this one in here...
  18. itchygirl
    As Ursa pointed out, kids often become picky eaters because food causes them pain (I spent nine months of the first year of my life in the hospital for failure to thrive-so lots of first hand experience) once she is no longer in pain from eating, her dietary horizons may expand considerably. I'd like to add ripe avocado to the other suggestions. My friend...
  19. itchygirl
    I just love these docs that have not read a research paper since they graduated in 1972...
  20. itchygirl
    Ursa-Its an insurance company "thing". Because I have to follow the protocol I'm on for my insurance to pay for the shots. And I need the shots. So I do this for a certain amount of time, and it does not work, then I get what I actually needed in the first place. Hoop jumping for the insurance companies is a popular pastime among up ill people in the US...
  21. itchygirl

    ARCHIVED Lemphoma

    itchygirl replied to MELINE's topic in Related Issues & Disorders

    I'm really glad your doctor is being careful! I wish everybody's doc was as good.... Open Original Shared Link
  22. itchygirl
    That is great news.Yay! I'm so annoyed by spelt being labeled "wheat free" and so forth and being with the gluten free products. Maybe this recall cause other companies who to change their labeling?
  23. itchygirl
    Scandipharm's are gluten free. Made out of pork pancreas. So if you can eat pork....they're prescription, though. And they do contain a minimal amount of lactose (which you may or may not consider to be "dairy", since its a simple sugar)
  24. itchygirl
    It would be funny if the vegan part was incidental and the gluten free part was the actual protective factor.
  25. itchygirl
    Has the doctor ruled out a seizure disorder? My niece with diagnosed with everything (anxiety, PTSD...) over the years-and she actually had Temporal-lobe epilepsy Hyperventilating during the shot or blood draw could trigger a seizure. Open Original Shared Link Her seizures always looked like temper tantrums or panic attacks. The hard to reach/can't seem...
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