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cassP

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Everything posted by cassP

  1. cassP
    there are so many things that can go wrong in your body if you continue to eat gluten, and they dont even ever have to manifest in your gut... speaking from my family's relationship to gluten-> you could lose your mind, or your thyroid, or develop heart disease, have miscarriages, or develop fertility issues.
  2. cassP
    i dont think his autism has anything to do with how well you stuck to the gluten free diet while pregnant. imho, he has some of your genetics.. and autism seems to be more common amongst people with autoimmune genetics. there must be some sort of link as most kids with autism improve on a gluten & casein free diet. i know some members may disagree with...
  3. cassP
    your DQ2 gene puts you at risk for developing Celiac Disease. it doesnt mean you have it- it only means you are genetically predisposed to it. your celiac panel is negative- however you were gluten free for so long- that i would completely consider your panel INACCURATE ..completely null and void. the allergy results are seperate from intolerances ...
  4. cassP
    hey- an elevated ANA just indicates that you probably have some autoimmune action going on in your body. it doesnt necessarily pinpoint to any one- altho what the result looks like may be associated with certain diseases. i had an elevated "speckled" ANA at 15 years old- and a "butterfly rash" on my face- so for 2 years they tested me for Lupus, and...
  5. cassP
    i think in some ways- im a very smart person.. but i think its obvious i am not going to become a Geneticist i mean- i can understand all these links & risks & symptoms better than most of my docs- but those dang numbers & letters u guys are posting are hurting my brain my brain just does fine with only the "subtype" numbers
  6. cassP
    thanku! and that sucks
  7. cassP
    i think the reason why Enterolab only tests 1 1/2 of each allelle- is because it's cheaper. i THINK. i also think (altho i could be wrong ) that if you have 2 copies of the same gene- it COULD make that person even more vulnerable? but im just thinking outloud. and i dont doubt at all that your kid had all those autoimmune reactions and reactions to...
  8. cassP
    YES MsCurious- you definitely should always ask for a copy of your test results... i just developed this habit last year- and looking at everything they've missed in the past- i will ALWAYS get copies. in fact- 2 labs ago- i had them mail me my Thyroid results & Vit. D test- thank God i did- because otherwise i wouldnt have known that i was Vitamin D...
  9. cassP
    just got mine tested 6 weeks ago- and im at a "26". completely makes sense now- as im having horrific muscle spasm pain everyday. ive been taking 4,000 to 6,000 iu everyday. ive noticed less pain & spasms. ive just been dosing myself since my doctor neglected to tell me anything. i only knew im deficient cause i always ask them to mail me my results...
  10. cassP
    i had dandruff growing up and in my 20s... it went away when took wheat out of my diet (not even gluten free yet). and now im gluten free- and still dont have it back. past excema & psoraisis also went away going wheat free/ then gluten free
  11. cassP
    this is my favorite yogurt!!! i think it's yummy, and it is Gluten Free! my absolute fave now is the vanilla yogurt Open Original Shared Link
  12. cassP
    Flor: ok, im not a doctor or a scientist- so this explanation is gonna sound elementary & amateurish... but i THINK- for example: your son has 1 DQ2 & 1 DQ6. if these are "allelles".. i believe we only have 2- 1 from the mom and 1 from the dad. enterolab DOES test for the 2 allelles... but ONLY EITHER the "alpha" or the "beta" part of the allelle...
  13. cassP
    sorry to tell u this- but i got mine at whole foods... i wanna say that "Ener G" company made it (dont know if that's their name)... maybe u could find it online? im GUESSING that rice bran might give the mix a LITTLE "stick" MAYBE... because some recipes call for Flax Meal and the flax meal gives it a little stick... but again- i am guessing. if...
  14. cassP
    do u have the receipt? can u return it? i personally would not partake in it. i used to actually take a product called Kyogreen. it also said "gluten free", and had barley & wheat grass.. i used to mix it in my pineapple juice- it was DELISH- it always kind of gave me a little intestinal suspicious behavior- but it could have been the F.O.S. in it...
  15. cassP
    2 cups coffee with sugar free nestle creamer. 1 egg spinach omelette w/ mozzarella & curry powder. 1/2 Redwood hill farms Goat Yogurt Vanilla w/ 1 tbsp. gluten-free rolled oats & 1/5 of a banana. 3 brazil nuts. frozen mocha (& a lactaid ) the last few sips of my green smoothie from yesterday & a couple of rice crackers...
  16. cassP
    ok, it's been awhile since i baked. as far as gluten-free brownies- ive had best luck with betty crocker's gluten-free box. in fact it's the only box that ive actually liked. most of them taste awful- with choco chip cookies- i usually do the tollhouse recipe with gluten-free oat flour & gluten-free soy flour. its delish. i tried coconut flour...
  17. cassP
    r u sure??? about the Crest Pro-rinse ?? i always get their brand that's alcohol free... i actually just tried to find something on their site- and it said that none of the ingredients included gluten, but that they could not guarantee there were not trace amounts... OY VEY :/
  18. cassP
    have you had your Vitamin D levels or your Thyroid checked??? both can lead to getting sick a lot
  19. cassP
    isnt it ground up animal bones?? i'll eat salmon bones... but regular animal bones bothers me- i dont even know WHAT animals they are... i dont eat pig.. and i would be scared of mad cow if they used cow bones would the cake come out that bad without the gelatin?? i know it would probably help give it the structure that gluten normally would- but ive had...
  20. cassP
    hey Strawberry- i dont know if you're talkin to me- but thanks for the info- i dont like peppermint tea- but im tots gonna look for the fennel
  21. cassP
    hey- my lab/docs didnt have the DGP test yet either... it is fairly new. and keep on top of everything till u get the answers you need- also- the hair falling out is more thyroid related (i guess it could be celiac related if you had really bad vitamin deficiencies). and the DH rash only occurs in 20% of Celiacs- so you dont have to have the rash either...
  22. cassP
    no, it's not true. if you have TPO antibodies present- higher than "within range"- you DO have Hashimoto's. and you SHOULD be treated. you need to get yourself a different doctor. it's the Antithyroglobulin Antibodies that can be present in both Hashimoto's and Grave's patients. and then the TSI (Thyroid Stimulating Immunoglobulin Antibodies) are...
  23. cassP
    yes Anne- you do NOT have to have a DQ2 or a DQ8 to have Gluten Intolerance or CELIAC... there are other DQ genes that can MOST DEFINITELY lead to either. do not feel bad or unidentifiable... you're just not "classic" or "textbook". you probably dont want to spend money on the Enterolab gene test after already doing the other test- but they DO test for...
  24. cassP
    im also celiac with hashimoto's and graves. i also have additional intolerances including corn. im trying to avoid the soy- as it aggravates the grave's antibodies. from what i understand- especially from reading on this forum- it is DEFINITELy possible after being gluten free for some time (sometimes at least 5 years)-> to end up lowering your thyroid...
  25. cassP
    i believe Celiac can bring on Hashimoto's ... or even Hashimoto's bringing on Celiac. or just gluten bringing on both of them... for sure they're their own autoimmune diseases- but they sometimes are directly linked. i recently read that the TTG antibodies themselves can stick to the thyroid tissue..
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