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mamaw

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Latest Celiac Disease News & Research:

Everything posted by mamaw

  1. mamaw
    Hi & welcome I know you can buy betterbatter flour in bulk. It is a blend www.betterbatter.org Plus they have loads of recipes on site. Jules flour can also be purchased in bulk. Domata Living Flour as well in bulk. Meister's flour in bulk. These are already blended flours so the guess wrok is taken out... Have you checked out online...
  2. mamaw
    Hello & Welcome I do not follow theSCD diet so no help from me there. But I will tell you I have multiple autoimmune disorders & my list is growing. I only eat grass fed beef, organic free range chicken, wild caught fish ... home grown veggies . I can & freeze most of our food...I'm very sensitve to foods, enviro allergies,perfume, smokes...
  3. mamaw
    Idon'tfairwell with BRM flours either. There are ready made flours that are very good..Jules flour betterbatterflour meister's flour tom sawyer flour authenicflour blend These are all premium blends .... if you don't want to grind your own blend....
  4. mamaw
    Amen !!!! It's a shame one cannot even trust a doctor to insure what they are writng scripts for is safe for the person.The buck in the pocket is more valuable than human ife...very sad...
  5. mamaw
    Tigercat I'm hoping he will consider a med with both T-4 & T-3..And I hope I get to see him... I need a second opinion...... thanks again
  6. mamaw
    We always use the meal plan .. It is the best buy & also for gluten-free.We were never charged more for gluten-free like most places... I think now the tip is not included ... We did plan out what restaurants & lunches we would eat each day... We also called the restaurant a month before going for reservations & each morning we called to tell...
  7. mamaw
    Lisa Tigercat did your internist from Oakland give this to you? I'm caaling to make my appt on Monday with him. I had to make sure he was under my insurance... thanks mamaw...Maybe that will help meas well....
  8. mamaw
    chill I sent you a PM.... mamaw
  9. mamaw
    I just went to a gluten-free drug site & no synthroid is guarenteed to be gluten-free.... & I also found out Diovan can not be guarenteed gluten-free either.URRRRRRGGGGGGHHHHHHHH.....diovan hct is gluten-free! Probably why I'm having a sore tongue& lips........ Chill -----your doctor is not in my insurance plan! But thanks for the name...
  10. mamaw
    Are you sure about the synthroid?I was under the understanding that the 50mcg does not contain gluten ? (Abbott Pharmancy) My insurance had me change to generic synthroid & I've been sick for two months with a swollen mouth , dry cracked lips,& a skin eruption on my forearm.....I just got back the synthroid from Abbott. I honestly think synthroid...
  11. mamaw
    I never use Bob's Red Mill but Many of us use it after the date... Always check the date before buying... But if it was stored in a dry, cool spot it will be fine....I use NOW brand & I don't think it smells so maybe someone who uses BRM will comment about the smell..... I know people on another site tha tuses it indefinitly with no problems....
  12. mamaw
    Hello Judy I wondered where you were! I was in Philly last fall & I tried to call your phone number!!! no wonder Ididn't get you .. How did you make it to Ca? I'm glad you have found some hope in your dx's but I agree you should try the gluten-free to see if it helps.It can only be a win win for you. You already know the ropes & maybe in Ca. you...
  13. mamaw

    ARCHIVED Risking It

    mamaw replied to Googles's topic in Coping with Celiac Disease

    I hope your recovery is quick. Sorry to hear of your accident... Glad you have a friend to help out.... blessings mamaw
  14. mamaw
    the gluten-free rice krispies will have gluten free on the front of the box--any other are not gluten-free!!! Please check the box because the new gluten-free ones are not out as yet!!!!
  15. mamaw
    Maybe your daughter does not have Celiac but gluten sensitivity. There are more gluten sensitive people than full- blown villi damaged celiac people.......The best way to find out is to do a three month gluten challenge. Being very strict...
  16. mamaw
    Before he goes gluten-free why not have the testing done ? He is school age & may need documentation for school. If he goes gluten-free & feels better it will be hard to get a correct dx's. A person needs to be eating wheat & gluten to get a proper , correct dx's. It will make things much better for school if he does testing first.... I don...
  17. mamaw
    Pondy I hope the doc finds something to help you I know how sick this makes you feel. I know X-lax are not good to take or ducolax but maybe you could try them, I would do the full strength for adults.3 pills if you try ducolax. Instead of going back to a hospital stay I broke down & did the ducolax, I had cramps & pain but by morning I was going...
  18. mamaw
    Mushroom ----thanks I too never heard that before... Interesting...soy & I don't get along... as many seminars I've sat in on & never heard that... it just goes to show all of this is a learning process.... Thanks again....
  19. mamaw
    soy would be an allergy to soy not an autoimmune disease as celiac. ... soy is one of the major allergrens...but it will not blunt your villi to my knowledge. But casein (dairy) is also digested at the tips of the villi.. You may want to test for dairy intolerance Also since you are new to the gluten-free diet please understand that healing doesn't happen...
  20. mamaw
    Glad you found a keeper.It isalways a PLUS when a mainstream doc will actually listen... Would you share the doctors name for others who may be interested...as they are hard to find, good ones that is!! thanks mamaw
  21. mamaw
    we like cinnamon& raisins... bananas as well....
  22. mamaw
    I use it at times but was told if you use it constantly the effect will not do the job it was intended to do. So I use it sparingly....and it states right on the box NOT for celiac or gluten problems.( Not exact words) ...
  23. mamaw
    Many will say add more fiber, fruits & veggies. Prune juice& so on. While these are great for most folks - they are some who this just does not work... I was in hospital for five days because of not being able to havea potty call! Believe me when I say they tried everything &some in multiable dosages.... From experience I have not to date...
  24. mamaw
    Juliebove Oh man, you brought back many memories with the water & flour thing!!!!!! It's been many years since I experienced that...And the cookie dough battles. It wasn't always so much fun when cooking class was in early morning. Aprons helped a bit but we always manmaged to cover our hair & clothes..even with the old hair nets we had...
  25. mamaw
    One thing is if he is very sensitive-- you may not want him in the cooking room at all....... kids with flour isn't always a good scene... flour can stay ariborne for hours... We opted to either bake at home with video & take end product to school or to have an extra gym class or library time ....also we use a different room when cooking is not involved...
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