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mamaw

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Latest Celiac Disease News & Research:

Everything posted by mamaw

  1. mamaw
    Mark Dinga is a dietician & he does have celiac.....
  2. mamaw
    we use digestive enzymes before meals & take probiotics at night...
  3. mamaw

    ARCHIVED Just Curious

    mamaw replied to majones's topic in Coping with Celiac Disease

    I think the best thing one can do is before a trip to anywhere is to do research, research research! This way you will be comfortable with where you will dine at ..It makes life so much earier when we know what is ahead of our planned day.This way no getting sick (hopefully) no anxiety about dining & you can enjoy your trip. As for recipes there are...
  4. mamaw
    Udi's is a favorite of most. But some other good ones are canyon bakehouse, Rudi's, & if you live near Rochester,NY go to nicks deli & pizza, his wife makes great bread.....Some likeSchar too...
  5. mamaw
    Emma-Lee You are very welcome. ......don't forget to hug yourself! mamaw
  6. mamaw
    what exactly are you doing? I can say with detox one usually feels worse at first because you are ridding your body of toxic junk.It can cause physcial, emotional feelings... until all the poision is out of your system. blessings mamaw
  7. mamaw
    You are doing well for the short time you have been gluten-free. It's odd to find out we all thought nothing was wrong with us & then something happens & our bodies go haywire ..It's almost like the devil was waiting to snatch us up & make us miserable! You are thinking ahead by taking you own gluten-free food to a party , work, trip just anywhere...
  8. mamaw
    I know I'm late on sending birthday wishes but I wish you a big happy birthday. Hang in htere it will get better... Go & buy a gluten-free cake mix & eat the whole thing yourself !!!!!. Most of all you are on your way to better health , healing takes time & I don't think any of us are patient.. BUt never let anyone talk or take you away from...
  9. mamaw
    Bertille buns are the best!..Of course now Udi's & Rudi's plus canyon bakehouse all have gluten-free buns. Many choices ....When I crave or used to crave something it was a sweet thing so I went for nuts & M&M's. And Idon't likechocolate!!!!! Peanut butter & nutrella..... Also there are many bakeries that you can find cupcakes,cookies...
  10. mamaw
    I love sorghum but usually replace white rice or brown rice with some sorghum but I never replaced it for sweet rice flour...could that have been the problem? Also I never replace all the flour for sorghum. I think millet flour has an after taste so I sparingly use it. Plus its hard to get millet that is not contaminated...Some of us are not big fans...
  11. mamaw
    I've been gluten-free a longtime & I think there are so many gluten-free books available... I'm not sure i fwe are allowed to mention the name but it begins with A-- - - - -6 letters (river) has a big listing of gluten-free cookbooks. I like annalise roberts Baking Classic, Robin Ryberg's has several cookbooks, Elizabeth Barbone is very good. Carol...
  12. mamaw
    sandwich petals are wonderful & come in three flavors. even my gluten eaters love these. another is Maria & ricardo's gfwraps. also excellent.
  13. mamaw
    lack of funding......
  14. mamaw
    Go_picnic has things sorta like lunchables that are shelf stable & boxed.canned tuna, chicken, protein bars,jerky, nutrella,boxed mac& cheese,,,,rice cakes popcorn, rice bowls. Trader Joe's has rice bowls for $.99 very cheap & tasty our kids love them....raisins,dried beef, granola are things that come to mind.... Have a wondrful trip...
  15. mamaw
    I like to check B-12, B-6 Vit D,calicum,magnesium ferritin to name a few.
  16. mamaw
    You need to be100% , 365 days a year, no exceptions.......unless you are able to look inside your small intestin to see if any damage is taking place you may never know until its toooooo late. For many of usits just not worth the risk....you can buy packets of gluten-free soysauce & carry them with you.....plus gluten-free foods can be expensiveso...
  17. mamaw
    Sounds like another mainstream doctor who knows nothing about celiac or gluten sensitivity... there are tons of these . type doctors running loose & getting paid big bucks.......sorry ....I would not subject myself to scopes even monthly...I would either go gluten-free on my own or else find a doctor who knows about celiac... If you let us know where...
  18. mamaw
    Dr.Alessio Fasano is doing a study on this ..He has clients /patients that are not giving their children any gluten for the first two years of life. The study is new so h ecan't make a judgement call at present but down the road this study will make a difference.He's not sure if it will keep or help a child from developing celiac or if it will only prolong...
  19. mamaw
    Etta I posted info on starting up a group back on Oct 2,2010, I think if you go back to page 3 on that date you will find info. It may not be what you are looking for but I've had a group for many years now.I run it independently . I agree the GIG is a great group & if I ever decide to join up with a national group it will be GIG> When you go...
  20. mamaw
    Irishheart Remember we are given adversities to deal with in life that will make us stronger...or beat us down. I'm a fighter & so are you .....I still have moments/days when I don't do well but I push on ... It seems life is just this way anymore...I have at least four autoimmune disorders &they just keep coming but I deal with them as they come...
  21. mamaw
    Hello & Welcome I'm an old-timer! In a nutshell I had just about every health issue one can think of...I'm allergic to just about everything on this planet. I was dx'd years ago with ALS , I should have been gone a longtime ago with the ALS Dx's! I went gluten-free a few months later & I've been walking & talking ever since. Expected life span...
  22. mamaw
    Open Original Shared Link, Every state is listed if they have gluten-free.
  23. mamaw
    You could be gluten sensitive & not have celiac, damage to your intestinal villi. Many of us have been dx'd with IBS before a celiac dx's or gluten sensitive ... One usually needs at least three biopsies to get a good check. Also have you had bloodwork done yet? Any genetic testing? Being celiac or gluten sensitive has the same outcome,,,, follow...
  24. mamaw
    You need to dispose of any used teflon, any scratched or pitted pots & pans, any porous surface things that were used with wheat . Rubber or plastic cooking utensils. Toaster or purchase toasta bags. Bread maker, hand mixer, griddle , cutting board, plastic strainer, food mill. plastic food storage that has used in a micro with wheat products heated...
  25. mamaw

    ARCHIVED Overwhelmed

    mamaw replied to lexusca's topic in Coping with Celiac Disease

    Being gluten-free is a learning process that will take time in learning but you need to go gluten-free totally like STOP all at once. The learning process will not happen overnight, I've been gluten-free for years & I learn something new everyday...New products , new research & so on ,its an ongoing process. It is very natural to mourn your loss...
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