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Latest Celiac Disease News & Research:
Everything posted by kareng
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ARCHIVED Poop
kareng replied to Kaleab's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Gluten doesn't linger in your body waiting to be pooped out. It can takes months or longer to heal your intestines. You also have to consider that you are eating differently - maybe more fiber? Or less fiber? Or more fat? etc. Even if your body has healed, the whole system may still be off and probiotics may help that. -
ARCHIVED Celiac Parent And Celiac Child Research Study
kareng posted a topic in Related Issues & Disorders
Open Original Shared Link - A one-time blood donation Participation requirements for families: - A parent and a child with a diagnosis of celiac disease made by a physician - A parent and a child without a diagnosis of celiac disease -
ARCHIVED What To Do While Waiting For Endoscopy
kareng replied to aliciahere's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sound like you have time to crochet a Bed spread for a King size bed! Sorry....just wanted to answer the title like that. If you are going to get an endo, keep eating gluten. You might actually talk with the GI group and see if it is really going to be " months and months". -
Gluten Free Teriyaki Sauce
kareng commented on MycasMommy's blog entry in Brynja's Grain Free Kitchen
You should be able to find San J. Another thought is if you are ordering from Amazon, order some. We tend to save up on items & buy several things so we get free shipping. -
I have heard - When Did they start adding gluten to bread?
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ARCHIVED Major <3 For Andalou Naturals
kareng replied to Serielda's topic in Gluten-Free Foods, Products, Shopping & Medications
I looked that product up and it says " verified gluten free" but does not say who did that. Companies can send thier products to different universities to be tested for gluten. I usually just avoid things with obvious gluten ingredients. Edit: found this on their site: Q. Is this product Gluten Free? A. Yes. All Andalou products have been tested by... -
ARCHIVED Major <3 For Andalou Naturals
kareng replied to Serielda's topic in Gluten-Free Foods, Products, Shopping & Medications
We are not a certifying agency. Could you link to those claims? I will let Scott know someone is illegally using our name. They could advertise on here, but I don't think they have to prove anything to advertise. -
Please cite your sources when talking about or quoting someone or research. But your quote doesn't mention gluten or cross reactivity? Perhaps if you had linked to it first, we could have discussed the correct issue? I thought we were talking about something else - not a chemical that might be in INSTANT coffee You didn't even mention instant coffee in...
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Coffee is very acidic. I find it's better with a little milk or food.
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And I found this same nutrition info for coffee on several different sites: "Protein & Amino Acids Amounts Per Selected Serving%DV Protein0.3g" Open Original Shared Link So a cup of coffee has 0.3 g of protein per cup. Not much. Not exactly a good source of protein.
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Actually.... If you have new and reliable research about coffee... We should consider it. Please post it - but someone's blog or a company that just wants to sell you some supplements or tests isn't reliable in my mind.
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Here is what I have found, this season at the Royals games - Topsy's popcorn - all flavors, probably safer than from the concession stands as they only deal with popcorn and limeade Topsy's Limeade - regular and with a shot, candy like M&Ms, Skittles, Sour Patch Kids red Bridge beer at some locations - always at the drinks only concessions on the...
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Here is the annual list for Major League Baseball stadiums. I would use this as a starting point. I know Royals Stadium ( Kauffman) has more things then are on this list. Some stadiums will let you bring food in with no special permission, too. Others, you would need to get a note from guest services to bring in food. Open Original Shared Link
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ARCHIVED Barbecue Sauce Ingredients And Worcestershire Sauce
kareng replied to abenedum's topic in Gluten-Free Foods, Products, Shopping & Medications
All parts of the Mustard seed is gluten free by itself. -
At ICDS 2013, we are all sitting there drinking delicious coffee supplied by the hotel. That myth came up and we all just had to laugh! Another thing - brewed coffee has almost no protein in it from what I understand, making these people's arguments even more rediculous. In fact, when pressed , I got the company that pushes this " cross- reactivity...
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My husband actually goes on the back deck to pour out the pancake mix. I always had to come back a while later and re- wipe the counters from the dust. He uses the old pancake griddle we always used for the gluten pancakes. If you think your griddle can be cleaned well, it should be fine for gluten and gluten-free things.
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ARCHIVED Artificial Sweetener
kareng replied to mandigirl1's topic in Gluten-Free Foods, Products, Shopping & Medications
This whole thread is 10 years old! Until it was bumped up yesterday. Most, if not all of those original poster's aren't still around. So....um...don't expect a response from them? -
ARCHIVED Colonoscopy Question
kareng replied to dopaminegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Are they doing this to check for Celiac disease? Because a colonoscopy usually doesn't go up high enough to do that. Are they doing an endoscopy, too? -
ARCHIVED Positive Wheat Allergy But Negative Celiac Disease- Blood Test
kareng replied to lev30ro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"Is an IgA result of 39, where normal is 81-463, considered deficient and could it invalidate anti-IgA tests? Any level of IgA above 20 mg/dl should make the tTG-IgA test valid, regardless of age." Open Original Shared Link Open Original Shared Link "If you are attempting to get an accurate diagnosis for celiac disease and you know you’re IgA deficient, ... -
ARCHIVED Positive Wheat Allergy But Negative Celiac Disease- Blood Test
kareng replied to lev30ro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That makes sense. They may not have even given you a legitimate allergy or Celiac test. I suggest that you keep eating gluten and go to an MD for Celiac blood tests and maybe an endoscopy. I think you have enough symptoms to go to a GI if you don't have a regular MD that could order the blood work. If you really have an IGA deficiency, there are IGG... -
ARCHIVED Negative Results At 20 Months, Retesting At 4 Y/o?
kareng replied to Capegin's topic in Parents, Friends and Loved Ones of Celiacs
And they are working on better tests that require less days of eating gluten or maybe no gluten consumption. So maybe in 10 years, when she might rebel, she could get tested easily. -
ARCHIVED Positive Wheat Allergy But Negative Celiac Disease- Blood Test
kareng replied to lev30ro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Did you go to an actual MD for these tests? I ask because " gluten allergy" isn't something medical doctors usually buy into. And you can have a wheat allergy without having Celiac. But your symptoms don't sound like normal allergy symptoms. For example, my BIL has a wheat allergy. He isn't anaphaltic but he gets stuffy nose, runny eyes if he eats wheat... -
ARCHIVED Gluten-Zyme For Accidental Glutening
kareng replied to badcasper's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
And.... Food doesn't sit in the stomach or small intestine for days.... So something taken the next day or even a few hours later, even if it could break down gluten or lactose or whatever, would have nothing to work on. -
ARCHIVED Gluten-Zyme For Accidental Glutening
kareng replied to badcasper's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The way the Celiac researchers explained it to us at the Celiac Symposium was - the drug they are developing ( not a currently available one) will help break down a very small amount of gluten in the stomach, before it reaches the small intestine. Food is in the stomach for a very very short amount of tim, so you would need to take the study/ in development... -
You will find very few people on here that will tell you it's Ok to cheat or not be as careful as you can. This is from the Univ of Chicago Celiac Center site: " The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do...