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kareng

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Everything posted by kareng

  1. kareng
    Actually, gluten isn't hiding somewhere to be washed out. It goes out of the digestive system in a few days, just like any other food. What takes time to go down are the antibody levels. It appears that we may actually continue to make them for a few weeks after we stop eating gluten.
  2. kareng
    2 weeks isn't that long. It can take months to years to fully heal. IN 2 weeks she has eaten out 3 times? You might want to stop eating out for a few months. Just because ingredients are gluten-free, doesn't mean the kitchen practices keep them gluten-free. For example - fries should be gluten-free - oil, potatoes, salt. However, due to kitchen...
  3. kareng
    After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac. Perhaps you need to find out what is really causing your issues? Dairy/ lactose is an obvious first place to look.
  4. kareng
    Do you want to tell us the name of it ans where it is located. maybe someone else will be looking for a restaurant there. Also, it is very helpful if you go to Find me Gluten Free and review it.
  5. kareng
    Yes. And wouldn't it have been nice if your doctor had tested you for Celiac disease before you went gluten free? Then you would know if your issues are Celiac or not. That would help you know how careful you need to be, what other illnesses and problems to look for, whether you might be passing a genetic disease on to your children, if you should look...
  6. kareng
    After I posted , I looked it up. I LOVE to see a place with great reviews from a few years back up to current! Makes me feel confident in their ability to be gluten-free.
  7. kareng
    Would you review this on Find Me Gluten free? You can use the app or just go to it on line. If the restaurant isn't listed, there is a way to suggest it. I have done that and it works. Many of us look at that site/ app
  8. kareng

    ARCHIVED Iodine test

    kareng replied to ccrew99's topic in Dermatitis Herpetiformis

    What's an " iodine test"? Haven't heard doctors doing that to diagnose DH.
  9. kareng
    Ok guys! The original post was 3 years ago! Ingredients, manufacturing methods, labeling, etc. may have changed during that time. A lot of companies have really come a long way on gluten-free in the last 3-4 years.
  10. kareng
    The tests test for the antibodies in the blood stream. It can take a while to build up enough antibodies in the blood to register on a test.
  11. kareng
    If you eat Cheerios, then you might be getting a small dose of gluten. It will depend on if you get one of the boxes with a lot of gluten or are lucky and get one that is <20 ppm.
  12. kareng
    Never had an issue with Kraft cheeses. Maybe she shouldn't eat diary for a while? Celiac disease damages the part of the intestines that digest the lactose in cheese/dairy. It can take several months to get that ability back. Also, when you are new, it really could be anything. It could just be that she isn't digesting much of anything well...
  13. kareng
    I get it. `Nevermind. There isn't anything I can help you with. I am not starting that up again! Of course we never said you should breathe in visible wheat flour! That could certainly be ingested. You were talking about a store down the street glutening you if you went our your door. That is different. I hope you figure out a way to live...
  14. kareng
    I agree with Gemini. I think you need to see a doctor and find out what is really wrong with you. I doubt, even if you have celiac, that that is what is causing all these issues.
  15. kareng
    People with Hashi's might have a slightly elevated level. This is off the charts elevated. Looks like about 4-6 % of people with Hashi's have Celiac Open Original Shared Link
  16. kareng
    I wouldn't worry about that ingredient as the product is so highly refined (as the article states) and such a tiny percentage of the product. I think you are worrying about the wrong things. Hand sanitizers and wipes are an unlikely place to get any gluten into your GI tract. With a kid this age, her real gluten challenges will be from friends or...
  17. kareng
    That's a husband job! Lol I usually grate but sometimes it's nice to have the convience.
  18. kareng
    I think a lot of comments were about getting gluten off of hands. Maybe people misunderstood. A hand sanitizer won't remove any dirt or gluten, but it might kill some of the "germs" that are present.
  19. kareng
    And, to be technical - cellulose is not the protein in the seed of the plant. For our purposes, gluten is the protein found in the seed of wheat, rye or barley.
  20. kareng
    But what I am trying to say is - rye is in almost nothing. And you wouldn't give it to her because it's wheat based bread. And they legally have to list ingredients, anyway. Barley will be listed , because they are proud of it and it's an ingredient. Honestly, companies, especially the big companies like Kraft, will clearly label ingredients. Chemicals...
  21. kareng
    Something I just caught - why does she need to wash her hands between each class? Is this just your own personal " germ" issue? She shouldn't be getting gluten on her hands in every class.
  22. kareng
    Shredded cellulose isn't gluten. In the US, if it is made from wheat, it must be labelled in food. Rye is rare and will be an ingredient in crackers or bread you wouldn't have anyway, because of the wheat in them. Barley is an ingredient they love to call out in food but may be listed as " malt" usually " barley malt". Reqd ad the Newbie...
  23. kareng
    What are the ingredients? Last I read them, there was no wheat germ oil or anything like that. If The Patient Celiac uses it, I would, too. Many companies do not want to take the expense of testing products. They will not " guarantee" it is gluten free because thier lawyers tell them not to. That does not mean it is not gluten-free.
  24. kareng
    Just got an email about the free screening and education day. If you are in the Chicago area, you might find this helpful & fun! Links might not work because I am just copying my email. Just copy and paste the link to the U of C's site to register. I am in Chicago for a wedding , so I might pop over. Please join us at our Annual...
  25. kareng
    I addressed the problem with popcorn before. That doesn't mean some corn might not be OK. And Xanthum gum is a sugar excreted by a microorganism - it is not corn protein.
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