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Latest Celiac Disease News & Research:
Everything posted by kareng
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This does say it is for NCGS....so not for Celiacs. There is a drug being developed that may actually break down the gluten in the stomach before it hits the intestines. However, that is still in clinical trials.
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ARCHIVED Gluten free vitamin or supplement shake
kareng replied to AbuBakar's topic in Gluten-Free Foods, Products, Shopping & Medications
Do you mean something like a protein powder you could mix up? A lot of them in the US seem to be gluten free. Maybe just go to your local store and read all the labels? -
ARCHIVED Do cigarettes with flavour contain gluten?
kareng replied to Re-Gi's topic in Gluten-Free Foods, Products, Shopping & Medications
I doubt it. I would think that would be a questions for the company that make them. But if smoking makes you feel bad....and you are able to quit for several weeks at a time....why go back to it? -
ARCHIVED Henry's Hard Orange Soda
kareng replied to Cjplmon's topic in Gluten-Free Foods, Products, Shopping & Medications
when they first came out, I read the ingredients on them, and they don't seem to contain malt. But the company, at that time specifically posted on the website that they are not gluten-free. So I don't drink them. -
ARCHIVED Stool Testing
kareng replied to KerryO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think the gene tests are accurate. Not sure if thier interpretation of them is. If you actually think have Celiac, you need to know that. You need to know how careful you must be. You need a diagnosis to get gluten-free food in hospitals or nursing homes (if you can find one that does gluten-free food). Because thsese "stool tests" are not medically... -
ARCHIVED Stool Testing
kareng replied to KerryO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Tell your medical doctor that you want a full Celiac panel before you go gluten-free. A family history of Celiac should be enough reason to run one every couple of years. The stool tests aren't considered medically valid, so they probably won't accept those. It would be good to know if you actually have Celiac. That would tell you how careful you have... -
ARCHIVED Severe heartburn - gluten withdrawal?
kareng replied to auroracase's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sure, if you are feeling better from the Celiac, now you might notice other things you didn't before. a very real possibility is that you have changed your diet and are now eating something you didn't eat much of before. Or you are eating larger or smaller amounts of protein or fiber....that sort of thing -
ARCHIVED Day 2 gluten free diet (testing), diarrhea and pain normal?
kareng replied to Mileenabug's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
First thing - if you want to continue testing for Celiac disease, you need to be eating a regular gluten containing diet. That said, any dietary change can get your system in a funk. -
They are big on selling books -. They try to spam a lot forums and FB groups. why can't you eat nuts, nut flours, quinoa, hummus and beans? I think I missed that. Those are a good source of protein. If you can't digest lactose look for a lactose free cheese - like one made from yogurt. at first,I thought life was over. But with a few years of...
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ARCHIVED Results
kareng replied to Kelly4270's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Not sure what tests you are talking about? Maybe you could post the names of the tests and the ranges. Ranges seem to vary...occasionally by lab .. And often by country because of different measurement systems. -
ARCHIVED tissue transglutaminase igg is 15 from enterolab
kareng replied to vickyloveaimee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There are no scientifically proven tests for gluten intolerance. That sounds like a slightly elevated test. You should consult a doctor because a slightly elevated tTg could be due to other issues. You might want to get a full Celiac panel and, based on that, an endoscopy. -
ARCHIVED Cerave
kareng replied to akcooper's topic in Gluten-Free Foods, Products, Shopping & Medications
I use it all the time - every day! I don't eat it, so I guess, if someone was going to eat it, that might be an issue. -
Tarte Makeup
kareng replied to akcooper's topic in Gluten-Free Foods, Products, Shopping & Medications
I would use it. The amount of cc of 1 ingredient that is 1% of the total product, its starts to get a bit silly. Now, I wouldn't put it in my mouth, but its not a product that goes in your mouth. -
The info on this thread is 6 years old. Lots of products change ingredients during that time.
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ARCHIVED Gluten free diet = worsened stools, now total D!
kareng replied to mark johnson's topic in Coping with Celiac Disease
Stuff & gluten aren't " caked" onto the walls of your intestines. Bodies just don't work like that. -
ARCHIVED extreme muscle wasting
kareng replied to carle's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You should make sure you are getting enough fats, proteins, carbs & calories. -
ARCHIVED Gluten free diet = worsened stools, now total D!
kareng replied to mark johnson's topic in Coping with Celiac Disease
Actually, going gluten-free could make things worse, even with Celiac. Because you have changed what you eat. Your fiber content may be different, you may have started eating a new food that your body finds hard to digest, more or less sugars/carbs ( even naturally occurring ones), etc. So, assuming a damaged system, it may take weeks or... -
Methadone
kareng replied to razzle5150's topic in Gluten-Free Foods, Products, Shopping & Medications
Sorry. I don't have the time to link to the study. It was posted here. They did a review of about 800 medicines and only about 10-15 actually had any gluten in them. So it likely gluten-free. There should be an insert sheet so you could read ingredients. You could call or email the manufacturer. If you get a statement like " no gluten ingredients but... -
ARCHIVED Hidden gluten
kareng replied to Froggymom3's topic in Gluten-Free Foods, Products, Shopping & Medications
I use old El Paso sauces. Just read the labels and they have been fine. Not my favorite. Breathing and swallowing the flour would be enough to gluten me! I wouldn't be looking for a tiny, maybe , amount in the seeds. You actually swallowed wheat flour.- 13 replies
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- pumpkin seeds
- taco sauce
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(and 1 more)
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ARCHIVED Platelets
kareng replied to andersonfdbn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
To add more - I had extra platelets and oddly shaped ones. When you are severely anemic, your body tries to make more platelets and different shaped ones to move oxygen. When I was able to absorb iron, B12, etc they went back to normal numbers and shapes. -
ARCHIVED Platelets
kareng replied to andersonfdbn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had all those things before I was diagnosed with Celiac . -
ARCHIVED Help, blood work, false negative?
kareng replied to Porrin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If a person with Celiac is eating gluten-free, then the antibodies should be negative. It sounds like you were gluten-free, so you wouldn't expect to have any antibodies. Open Original Shared Link Prior to blood testing we recommend 12 weeks of eating gluten." -
I suppose it is possible, if your flour got wet. But it would have to sit around at room temp for a while to grow the mold.
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Exactly
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ARCHIVED peanut and nut butters? suggestions?
kareng replied to Mnoosh's topic in Gluten-Free Foods, Products, Shopping & Medications
Maltodextrin shouldn't be a gluten concern in the US.