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Skylark

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Everything posted by Skylark

  1. Skylark
    Mom's is positive. It has made her very sun sensitive so that's something to watch for. She hasn't developed any other autoimmunity so you can have ANA and be OK.
  2. Skylark
    Thanks! Maybe Mom can check the brands she usually buys or switch to a brand without plumping solution. I wonder where else rosemary is lurking that we never thought of???
  3. Skylark

    ARCHIVED Diagnosed...now What?

    Skylark replied to Bubba's Mom's topic in Doctors

    You're welcome. Hey - you should look at this thread. We all put our top couple pieces of advice for new celiacs. Everyone's healing process is different. It seems like a lot of people start feeling better after maybe four months on the diet. Don't panic about your villi. I know this sounds a little cavalier but you've lived this long without...
  4. Skylark

    ARCHIVED Diagnosed...now What?

    Skylark replied to Bubba's Mom's topic in Doctors

    Welcome to the pool. Don't panic. We're experts in providing life preservers and trust me, the water is fine. I like to tell my friends that I eat just fine since champagne and caviar are gluten-free. Yes, it's typical for your Dr. to not do much besides diagnose celiac. Doctors are scared to death of telling people that they have to change their lifestyles...
  5. Skylark
    I think you'd get turpentine if you tried to distil juniper berries. Gin has always been grain neutral spirits flavored with juniper berries and other botanicals. Try Hendrick's gin. It's really good.
  6. Skylark
    I usually refrigerate mine. Homemade bread goes bad too fast for me if I don't refrigerate or freze it.
  7. Skylark
    Maybe it's a mild effect from the opioid peptides in milk. Some people are more sensitive to it than others. Open Original Shared Link
  8. Skylark
    Rosemary? Please, can you link where you found that? I have a family member allergic to rosemary and this may explain some reactions if it's true! Thanks!
  9. Skylark
    Pepto Bismol works pretty well for me. Sorry you're feeling poorly.
  10. Skylark
    That's really odd. Did you ask someone for the gluten-free section? My Whole Foods has a couple big sections in the freezer with all the gluten-free baked goods.
  11. Skylark
    I'm not in hypothyroid ornery mode today. I do have to see if I can track down millet couscous in the US. Thanks for comments on the Lundberg stuff. I'll save my $$.
  12. Skylark
    Wheatgrass is theoretically gluten-free. I won't touch the stuff.
  13. Skylark
    Luv, you might just have a bout of stomach flu. Remember that not everything is gluten. Feel better!!!
  14. Skylark
    He needs a couple slices of bread worth of gluten a day for around three months. (Adults require 3-4 slices of bread a day.) He will have to eat sandwiches, pasta, gluten-containing cereal, and so forth. If you are only introducing traces of gluten like regular soy sauce or oatmeal, he won't reliably relapse by three months and you will need to feed him...
  15. Skylark
    Did you even take the time to look? There is gluten-free couscous. Open Original Shared Link There is also a millet version that has been eaten in the Middle East for as long as wheat couscous. Open Original Shared Link I would have asked what the couscous was made of before I ordered it, though.
  16. Skylark
    Gluten is found in rye and barley as well as wheat. She is ONLY tested for wheat, not gluten, and the reaction the RAST test is measuring is almost certainly not to gluten but to another protein in wheat. If I were her, I would eliminate rye and barley as well for a few months. Then try eating them again and see if the acne returns. Alternatively, you...
  17. Skylark
    I'm not a doctor, but common sense suggests that if you feel basically normal you are not in immediate danger. Some insurance programs have "ask a nurse" phone lines where you might be able to call for reassurance. I'm sure your GP will get back to you as well. You probably need the tests repeated and a referral to a hematologist if they come up the same...
  18. Skylark
    I would be very concerned about the deamidated gliadin IgG, particularly since it's a marker your wife had too. It's a pretty sensitive test and the only way there could be deamidated gliadin for her to develop antibodies is if there is at least mild intestinal damage and release of TTG. There may not be enough damage to see on biopsy yet (the negative TTG...
  19. Skylark
    OMG me too! Like you, I have times when I make mistakes and have no reaction and then I have D out of nowhere when I eat specialty gluten-free foods at home. I have to wonder whether my reactions to gluten are really that wildly variable, or if I'm sensitive to something else I haven't figured out. Do you think all your reactions are definitely gluten...
  20. Skylark
    Unfortunately, it was bound to happen in our litigation-happy society with gluten-free as the current diet fad. There are too many people who think gluten-free simply means no bread or pasta and don't understand how the medical diet works. There are also too many celiacs who have unrealistic expectations about restaurants and CC. It's a bad mix.
  21. Skylark
    Like Coinkey I have a bunch of phrases. I ate some gluten and I don't feel good. I've been gluten poisoned. I'm having a gluten reaction. My food was cross-contaminated with gluten. Uh oh, I think there was wheat in that ____. I must have eaten something that doesn't agree with me. ...and if I'm in a foul mood becasue someone lied to me about ingredients...
  22. Skylark
    I can never tell whether "Atomic gut" (LOL!... awesome description) is gluten or mild food poisoning when it's after I've eaten out. I have to treat my stomach kindly either way. I usually assume it's gluten and avoid whatever triggered it in the future.
  23. Skylark
    That's total IgA, not IgA that is specific to certain proteins like gliadin or TTG. I don't see your total IgA result in the ones you listed. If the IgG test is deamidated gliadin, it's really sensitive and it's not surprising other tests didn't come up positive but deamidated gliadin did. It sounds like your body has given you a clearcut answer anyway...
  24. Skylark
    There are very different levels of sensitivity among celiacs. The "boardthink" here is that nobody with celiac can tolerate any gluten at all, but that is far more black and white than a lot of papers I've read. Challenge studies have been done and there are definitely celiacs who can tolerate small amounts of gluten without relapse. There are even celiacs...
  25. Skylark
    What is RABST? Is it the same as RAST? Wheat allergy is not the same as gluten-free, although products that are labeled gluten-free will also be wheat-free. She would need to be tested separately for barley and rye in order to know whether she has to avoid those as well. I hope going off wheat helps her skin. Also, remember that a result on RAST...
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