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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Skylark
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ARCHIVED Very Different Side Effects From Getting Glutened
Skylark replied to Harley9999's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi. Glad to see you post. It would be so much easier if it were only a few hours of D, wouldn't it? I get the canker sores in my mouth sometimes, anxiety, and a couple days of extreme lethargy. I can get a lingering nausea/stomachache too that's very unpleasant. It's like I lose a day or two of my life to fatigue and malaise if I get into gluten... -
ARCHIVED People With Poor Timing
Skylark replied to GlutenFreeManna's topic in Coping with Celiac Disease
OMG isn't it? I get anxiety attacks and want to hide my head under a pillow. I second the idea of inviting them over and doing the cooking. These sound like nice, if slightly flaky, people. -
ARCHIVED Surviving A Hospital Stay
Skylark replied to mushroom's topic in Coping with Celiac Disease
Oh hell yes. Problem is, the mental impairment from the elevated glucose messed with her clinical judgment. The bigger thing I had to slap her for was not teaching her very sweet but non-medical husband the signs of trouble. He could have prevented it had he known that her growing fatigue and lethargy was a sign of the diabetes going out of control.... -
Diuretics can absolutely throw your potassium out of whack. Hypokalemia is a classic side effect of hydrochlorothiazide. There are combinations of diuretics designed to spare potassium. You might want to talk to your new cardiologist about changing the drugs you're on a little.
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ARCHIVED Surviving A Hospital Stay
Skylark replied to mushroom's topic in Coping with Celiac Disease
I had a friend who was admitted to the hospital in diabetic coma. She is an MD, had patients in crisis, and just got too busy to manage her own type II diabetes properly. Once she woke up and was able to eat the next day, she just about lost her mind when she saw the foods provided on the "diabetic" diet. She is almost totally insulin resistant and mostly... -
ARCHIVED Waking Up Every Hour To Pee
Skylark replied to wilbragirl's topic in Related Issues & Disorders
I sometimes wonder whether the foods even have what they used to. How can foods grown in depleted soil on chemical fertilizers possibly have the same nutritional value as what our great-grandparents ate? -
ARCHIVED Vent - My Turn - Tired From Thyroid Disease
Skylark replied to Skylark's topic in Coping with Celiac Disease
Thanks for the tips and hugs. Sounds like I'll be toughing it out for a little while longer. Tmbarke - I looked at SCD. I might give it a try someday though my GI stuff is actually really well under control. As long as I don't eat a lot of refined sugar or starchy foods without some fat/protein my blood sugar seems stable enough. With me it's mostly... -
That's a hair-raising story. I'd be mad as hell at that P.A., and you might have the makings of a lawsuit for the amount of money your insurance doesn't cover from the ICU bills. If you had gotten through to your Dr. you could have avoided the hospitalization. I'm so glad you got supplements sorted out. I'm really glad you found a good cardiologist...
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ARCHIVED Vent - My Turn - Tired From Thyroid Disease
Skylark posted a topic in Coping with Celiac Disease
My turn to vent a little. I'm sitting here soooo sleepy and I napped half the afternoon. I've been run down the past couple months, brain fogged and gradually losing motivation. I haven't wanted to do things I usually like. I gained some weight, blamed it on sitting still too much because I got bronchitis twice this spring. I finally got a lump in my... -
ARCHIVED Waking Up Every Hour To Pee
Skylark replied to wilbragirl's topic in Related Issues & Disorders
Here's a weird one. I had bladder pain and urinary frequency. Doctors looked for interstitial cystitis and did an IVP. All negative and I just learned to live with it. I got better all of a sudden when tried a Candida cleanse product and took Threelac when I started on my vitamin supplements. I don't even BELIEVE in "candidiasis" but my stupid bladder... -
That happened to me as well. Overall, I'm OK without the obsessiveness though.
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ARCHIVED Is This Gluten
Skylark replied to hercules25's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm in! -
ARCHIVED Would It Be Beneficial For Me To Go gluten-free?
Skylark replied to kimann79's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, you're assuming malabsorption, which may not be the case with your negative blood tests. It's not clear how gluten makes people who are not celiac sick. To be honest, waiting a month or two to see if your stomach settles won't change much either way. You could grab a sublingual B12 supplement to start on now. A lot of people really like them. -
Atrial fib? Wow, shroomie. I'm scared for you. I'm awfully glad you came out of the hospital OK. I hope you got onto some meds that have your heart rhythm under control.
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Isn't it funny how different people seem to respond to different probiotics? Threelac worked wonders for me. I wonder if people are missing different sets of bacteria.
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ARCHIVED Going Out To Eat With Friends
Skylark replied to Googles's topic in Coping with Celiac Disease
That's exactly what I do when I go out with friends. I suggest a few different places that have something I know I can eat and let them choose. -
ARCHIVED James' Salt Water Taffy
Skylark replied to jjc's topic in Gluten-Free Foods, Products, Shopping & Medications
Oh, yum! I miss that stuff from when I lived back east! Here's the corporate site. There shouldn't be gluten in the taffy itself but you could call or write to be sure about the flavorings. Open Original Shared Link (Personally, I'd just eat it but I don't know how sensitive you are.) -
ARCHIVED Is This Gluten
Skylark replied to hercules25's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, it is quite a learning a process. So you know, gluten comes from wheat, rye, and barley. You should also avoid oats as there is often wheat growing in the oat fields. Once you're well you can try specially grown gluten-free oats. Processed foods are hardest until you learn to read labels because of all the various processed ingredients and flavorings... -
ARCHIVED Betty Crocker
Skylark replied to Becksabec's topic in Gluten-Free Foods, Products, Shopping & Medications
I've tried both cakes and the brownies. I really liked the Devil's Food cake. My cake didn't come out dry at all. Maybe I was lucky. -
ARCHIVED Dedicated gluten-free Brands?
Skylark replied to Becksabec's topic in Gluten-Free Foods, Products, Shopping & Medications
Glutino, Kinnikinnick, and the Whole Foods gluten-free bakery are dedicated facilities and most people around here eat them fine. I don't know whether Udi's bread is from a dedicated facility, but people do really well with that one too. There is still a small chance of CC in most gluten-free flours and grains because there is so much wheat in fields... -
ARCHIVED Is This Gluten
Skylark replied to hercules25's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Anything made from wheat has gluten. Here's a list of gluten containing ingredients. /celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/ -
ARCHIVED Blood Test Accuracy
Skylark replied to angiegoo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I do hope you try the diet at least. If it turns you you feel better gluten-free, it's easy to justify. "No, I don't have celiac but I sure am happier without these minor health problems." If it makes no difference, you probably don't need to be strictly gluten free. The celiac experts at the conference I saw think folks with "latent celiac" (this is... -
ARCHIVED Would It Be Beneficial For Me To Go gluten-free?
Skylark replied to kimann79's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You are NOT a hypochondriac! You have a whole list of problems that are associated with gluten intolerance. Try the diet, see if it works. Also, you might want to pick up some B-complex and calcium & D along with the magnesium. Low B vitamins can really make you feel rotten. Like you, I had a lifetime of stomach aches and digestive problems. The... -
ARCHIVED Casein Intolerance Or Glutening?
Skylark replied to Tigercat17's topic in Coping with Celiac Disease
Don't give up your calcium and D. Osteoporosis is a serious problem with celiac disease. You might try Citracal. It's gluten-free and supposed to be really good. I find that taking vitamins and minerals with a meal really helps, plus you're supposed to absorb them better with food. Open Original Shared Link If you just cant find a calcium pill you... -
ARCHIVED Is It All In My Head?
Skylark replied to torimuse's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Telling a GOOD doctor that you are completely gluten-intolerant should be enough to get your kids screened. All bets are off with bad doctors. For yourself, it's a question of comfort. I declined a gluten challenge with the understanding that I would have to eat a celiac diet in case I am actually celiac. Gluten makes me sick enough that eating a truly...