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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I have a friend with a 22-month old who is working hard to find apple juice for her son that only uses US apples because of this article. She's buying Tree Top brand. That's how I happened to know about it.
  2. Skylark
    You've got your facts all wrong. Ocean Spray wasn't even one of the brands named in the study and nobody has been arsenic poisoned. The low levels of arsenic were in apple and grape juice. Most of the apple juice concentrate comes from China, so it's partly another big Chinese food safety issue. (surprise, surprise) There is also natural arsenic in the...
  3. Skylark
    I'm so sorry to hear that you might have to move your store! That's terrible news. It's definitely a bad time to try a big change when you're under that sort of stress. Here's the deal. You have to promise us that you'll pick another day when things settle down and try again! You get a pass this time, but you don't get to keep smoking forever.
  4. Skylark
    Regulation isn't really the issue. As far as I'm aware, dogs don't get celiac to begin with. They arguably shouldn't be eating grains in the first place. The only reason to label animal food gluten-free is for the owner. Nylabone probably thinks of it as a clever marketing ploy and hasn't the foggiest idea that there are people with celiac disease who...
  5. Skylark
    Hi and welcome to the board. Sounds like gluten-free might help you a lot since cereal makes you so ill. You do have to be pretty strict on the diet to get it to work. You can't do gluten-free halfway. Before you start the diet, check for a celiac center in your city. Some offer free testing but you have to be eating gluten for the tests to work. Rice...
  6. Skylark
    I thought celiac was a pain until my Hashimoto's got bad. Celiac has an off/on switch, and though I don't much like cooking everything that goes into my mouth and hardly ever eating out, at least I can control it. I feel helpless with the thyroid autoimmunity.
  7. Skylark
    Neuro symptoms are usually casein, not lactose. Lactose gives gas, diarrhea, and other purely GI issues because it gets broken down by bacteria and/or pulls excess water into your intestines. Casein causes allergic and intolerance reactions that affect your whole body. Raw milk will still cause you trouble with casein issues. It's also not particularly...
  8. Skylark
    99.9% gluten-free? That's not gluten-free at all. That's 1000 ppm gluten. If I were you, I'd write back to Nylabone, complain, and return them to the store! We really need laws about gluten-free labeling in this country.
  9. Skylark
    You can't assume your husband is not celiac based only on genetics. There are people with DQ1 and biopsy-confirmed celiac disease.
  10. Skylark
    Does your daughter have normal total IgA, or is she IgA deficient?
  11. Skylark
    Sorry but there are no celiac tests in that list. As your doctor says, the high total IgA may just be that you had a virus. It can also indicate autoimmunity, but total IgA doesn't give any indication of what sort of autoimmunity you have. ANA is an autoimmune antibody. A low amount of ANA shows up in a fair number of healthy people, but it is...
  12. Skylark
    Is this the point at which I remind you that wheat is also a grass?
  13. Skylark
    Agreed that correct reading of biopsies is an issue in published research. In fairness, the full text papers usually state the diagnostic criteria for biopsies. You need to look up Fasano's stuff, though. He makes a big distinction between gluten intolerance and celiac disease.
  14. Skylark
    Great news! Your doctor sounds good. I have to take my multi with food. If I try on an empty stomach it makes me queasy. Broth is very healing. Eating homemade food like beef stew with lots of veggies is definitely the way to feel better!
  15. Skylark
    I'm so glad you're feeling better! You are probably non-celiac gluten intolerant, although with the false negatives on celiac blood tests it's always good to stay 100% off gluten if the diet really helps you. I hope you continue to feel better.
  16. Skylark
    Not super-sensitive but I'm off grains for now, which is where most of the CC creeps in. I usually have an egg or two, fruit, and coffee sweetened with honey. Sometimes I make coconut flour bread and have a slice of that.
  17. Skylark
    In the US, shared facility and equipment labeling is voluntary. Read items 16-18. Open Original Shared Link Perhaps in Canada. In the US, "gluten-free" has no legal meaning. The proposed legislation would make it illegal to label naturally gluten-free foods but until that passes you can put a gluten-free sticker on a bag of potatoes or a banana...
  18. Skylark
    Yeah, that's Maki's big prospective study I keep mentioning when people who have antibodies and a negative biopsy want to ignore it and keep eating gluten. There was a pretty convincing metabolomics study published after that article was written that also supports the hypothesis that people who are EMA-positive with negative biopsy are still celiac. Unfortunately...
  19. Skylark
    Beats me. You might write the company and ask.
  20. Skylark
    My asthma didn't go away gluten-free. The rest of your list can definitely be caused by celiac/gluten intolerance, including weight gain. No, you do not always have to have diarrhea or constipation to have issues with gluten.
  21. Skylark
    No, the test doesn't necessarily read a higher number for more damage.
  22. Skylark
    Thanks for sharing the good news!
  23. Skylark
    What do you mean "total IgA was negative for celiac?" Was it normal? You could try the salivary testing but it's not as well validated for celiac as blood tests. You can get a similar answer by trying the diet.
  24. Skylark
    An immunologist should be able to make sense of the results, although he won't be able to move forward with an endoscopy and biopsy. It's likely you had positive TTG because that's the most common celiac screen. Since you had the microscopic colitis on biopsy, you will need celiac-specific tests to differentiate between autoimmune colitis/Crohn's and celiac...
  25. Skylark
    It sure sounds like gluten! Welcome to the club. Keep eating your normal diet until you're finished with celiac testing. The tests don't work gluten-free. Then you can stop eating the nasty stuff. Good luck with your new GI.
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