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Coolclimates

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Everything posted by Coolclimates

  1. thanks for your clarifications. I will be retested in a few weeks and really hope my antibodies are lower.
  2. Good experiences. I've eaten at one in Chicago and one in Knoxville, TN and both were really good. I had Mongolian beef. The lemon chicken is also very good. However, I don't get sick if I get glutened, so I can't really be of help for that.
  3. I've eaten their baked potatoes and chili; they were brought to one of my group meetings. They are pretty good. Other than that, I have not eaten there.
  4. I'm wondering if there is a difference between refractory and non responsive Celiac Disease. Or are they the same thing? I'm really hoping that I don't have this...
  5. I've heard of refractory and non responsive Celiac Disease. Are they the same thing or different things? I don't know what the difference is between them.
  6. well it's been over a year since I made this post and needless to say, I never saw that doctor again. At this point, I'm not concerned about dropping names, as I've spoken to another Celiac in my town who thought this doctor was useless. Her name is Dr Nugent at Christie Clinic. Since then, I've been going up to the Chicago Celiac center. They are tons more...
  7. so is there anyone else around here? Or is it just me and my Celiac group?
  8. thanks so much for all of your suggestions...very helpful!
  9. does anyone else have any ideas of how to help hellopixies90?
  10. Oh, man, I'm so sorry to hear about all the troubles you are going through. It's bad enough to be sick and have to be on a very difficult diet, but even worse when family is not supportive, bordering on being hostile. How old are you? If you are old enough, you should GET OUT of your parents house and live somewhere that is safer. If your mom is so unsupportive...
  11. about 2 weeks after I wrote my post, I got an MRI and it showed that I had a herniated disc in my lower back. The pain just kept getting worse and I was getting bad sciatica, too. I got an epidural and shortly after that, things improved a lot. I was on the mend and over a month later I started to get physical therapy. The first therapist was fine. The second...
  12. I will be going to Atlanta from Sept 25-29 and am looking for some gluten-free food options. I seem to have problems with cross contamination, so I am preferably looking for places that are entirely gluten free or places that have strict regulations about avoiding cross contamination. I will be staying downtown. I have never been into the city before and...
  13. Posana Cafe in Asheville, NC and Rose's Wheat Free Bakery in Evanston, IL 100% gluten free facility and food!
  14. these last few months have been strange for me. My periods are almost always very regular but a couple of months ago, I got one and kept bleeding for well over 2 weeks. I wasn't bleeding very hard but it went on and on. My gyn seemed to think that it was due to not ovulating. Then my last period came early but other than that, there was no problem. This period...
  15. these last few months have been strange for me. My periods are almost always very regular but a couple of months ago, I got one and kept bleeding for well over 2 weeks. I wasn't bleeding very hard but it went on and on. My gyn seemed to think that it was due to not ovulating. Then my last period came early but other than that, there was no problem. This period...
  16. these last few months have been strange for me. My periods are almost always very regular but a couple of months ago, I got one and kept bleeding for well over 2 weeks. I wasn't bleeding very hard but it went on and on. My gyn seemed to think that it was due to not ovulating. Then my last period came early but other than that, there was no problem. This period...
  17. shame on you, Hersheys! I'm gonna have more honest chocolates that don't play all of these guessing games....seriously.
  18. I'm so glad to have found this out before buying these books and then getting all paranoid. Not that I have anything against Australia (I'd love to go there someday!) but it does sound like they have really different rules.
  19. My dietician whom I see in Chicago, Lori Rowell, said that Jaqui Karr's books are Australian and that Australia has very different standards about gluten-free than the US does. So that probably explains why some of her information doesn't seem to gel with the info that I've gotten. I do have Shelley Case's book. It's a very good book, but quite technical...
  20. thanks for all your comments so far...has anyone read these books at all?
  21. Sigh. That's why I'm so conflicted I don't get any symptoms if I'm glutened so I can't tell whether I'm continuing to accidentally consume small amounts of gluten. And I really don't know how sensitive I am to minute amounts of gluten because of the lack of a reaction. the only way that I have been able to measure my progress with with blood tests to check...
  22. I guess I should stop drinking it, then. Since I do not get a reaction if I get glutened, I can't tell if this is continuing to make me ill or not. But I'm not gonna risk it anymore. I can switch to something else.
  23. Coolclimates

    ARCHIVED Frustrated With Drs

    I would seriously look for a different doctor. You do not deserve to be treated with disrespect. I saw a doctor in January 2011 at the University of Chicago who was very rude to me and chewed me out because I had some blood work done in another lab instead of their own. Then when I told her my concerns about cross contamination, she told me that I was "paranoid...
  24. I saw Dr. Semrad again in January 2011 but was taken aback by how rude and brusk she was with me. She told me I was wasting her time with some results I got from another clinic (she was mad because I didn't get tested at her clinic first). When I told her my concerns about cross contamination, she accused me of being "paranoid" and that I needed "psychiatric...
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