Jump to content

bartfull

Advanced Members
 View Profile  See their activity

  • Posts

    3,056

  • Joined

  • Last visited

  • Days Won

    75

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by bartfull

  1. bartfull
    It's been really warm here (50's) for the past couple of weeks, but tomorrow night it's supposed to go down to 6 below with a 20 below wind chill. But by Friday it'll be back in the 50's. Shadow usually get's nearly the same weather we do. I haven't seen her here in a while. Hey Shadow, are you OK?
  2. bartfull
    From what I have read, a lot of folks who have DH get negative results on the biopsy. If you feel you absolutely must have a diagnosis, you should get a skin biopsy. They need to take the sample on CLEAR skin right next to an ACTIVE lesion. You also said it looks like your uncle's rash. Has HE been diagnosed with DH? Because DH DOES mean celiac, and celiac...
  3. bartfull
    Some Catholic churches insist the Host has to have wheat to be valid, and some are more lenient. As it is, the "low" gluten Host WILL hurt you.
  4. bartfull
    Maybe you should get your own antibodies checked. If yours are high too, you'll know it something in the house or a food that you are both eating. If not, you'll know he is getting it from somewhere else. Double and triple check all supplements and medications. (Something that was fine might now contain gluten. They change ingredients based on price and...
  5. bartfull
    Were your numbers down at your one year checkup? If so, he must be getting gluten outside of the home. PLEASE don't take this the wrong way, but are you sure he isn't cheating on the diet when you're not around?
  6. bartfull
    Nobdy can make you stop. You know that's what you need to do and until you make the decision there is nothing any of us can say. Eventually you will either decide you are tired of feeling lousy, and you will realize that you need to stay healthy for your kid's sake if not your own, or you will sink further and further into the gluten hell you have found yourself...
  7. bartfull
    Well, first of all, the gluten thing is not an allergy. If you have celiac, that is an autoimmune disease. And if you don't have celiac, but a sensitivity to gluten, that is called non-celiac gluten intolerance. The difference is that with celiac there is intestinal damage, and with NCGI, there isn't. It seems obvious to me based on your response to the diet...
  8. bartfull
    Best parents in the world, and yes, they were both musical. And no matter what, that trumps any intolerances or allergies.
  9. bartfull
    It sounds to me like your Dad is clueless about gluten, and your brother is actually "anti-gluten-free". With your brother's attitude, do you think it's possible he is deliberately sabotaging you? I agree with the others that the cap dropping on the floor shouldn't gluten you, but if your brother is annoyed by having to eat gluten-free in the house, maybe...
  10. bartfull
    I have an actual allergy to aspirin. That means I can't take aspirin, ibuprofen, or naproxin, even if they don't have corn in them. Can't even take willow bark. I get the intolerances from my mother's side of the family and the allergies from my father's side. Lucky me.
  11. bartfull
    Hello Tifftiff, why don't you start a new thread, introduce yourself, tell us about your testing and symptoms, and then everyone will chime in with suggestions. My first suggestion is to read the Newbie 101 thread in the coping section. And welcome!
  12. bartfull
    Just a shot in the dark, but have you been to the Mast Cell Activation Syndrome thread?
  13. bartfull
    That WOULD be my first choice too if I weren't allergic to it. I try to be VERY careful with my Tylenol. Lately there have been several reports saying that just taking a little more Tylenol than the recommended daily dosage can cause liver damage. So I only take it when the pain is severe, and even then I only take one capsule (325 mg.) instead of the two...
  14. bartfull
    Frosty, Frosty, Frosty. You are as bad as I am! Doctor says, "You need this" and I say, "Um, no!" So HAVE you had bloody or very dark stools? If so you MAY be losing blood. Yes, anemia can be related to celiac, but it COULD also be related to something else. If they wanted you to go to the hospital and get a transfusion it must be pretty serious. How...
  15. bartfull
    I think the chances of CC are greater from other sources. Like maybe someone in the house spread butter or mayo on some gluten bread and then dipped the knife again. If you use that jar or tub or stick, you have just contaminated yourself. Or maybe some gluten crumbs got into the silverware drawer. Or maybe someone in the house baked something with gluten...
  16. bartfull
    Also, there is a very nasty stomach bug going around right now that includes "double you over" pains.
  17. bartfull
    I just read my last post and want to clarify. After the surgery Mom WAS fine, but she still had celiac of course.
  18. bartfull
    Hyperparathyroidism can be caused by low levels of calcium and vitamin D. Because you had celiac for a long time, you haven't been absorbing nutrients from your food the way you should. My Mom, who also had celiac had hyperparathyroidism and had surgery for it. After that she was OK. But you should ask your doctor to test all your vitamin and mineral...
  19. bartfull
    I apologize. I knew the troop only kept a small percentage but I assumed it was like a lot of the school fundraisers where a COMPANY kept most of the profits. Now I know better. Thank you. I was a 4-H girl when I was young. And whether it be 4-H, Scouting, Boys and Girl's Clubs, or other kid's organizations, there is no doubt in my mind these things are...
  20. bartfull
    I just looked up Pamela's cookies and I didn't see a thin mint, but their double chocolate mini cookies are really good. I haven't tried all the flavors because a lot of them have corn (which I am intolerant to), but if the rest of their stuff is as good as these chocolate mini's, I bet you'll be delighted. Maybe you could make some sort of mint "dip" to...
  21. bartfull
    I never bought girlscout cookies even before I went gluten-free. Too expensive, and hardly any of the money raised actually goes to the girl scouts.
  22. bartfull

    ARCHIVED 7 Months

    bartfull replied to w8in4dave's topic in Coping with Celiac Disease

    Wow! Thanks SO MUCH! This really confirms that I have MCAS. I had been eating sweet potatoes every single day, usually for both lunch and dinner. I was also eating Udi's chocolate muffins, one a day, for the past three weeks. Well, I am SO SICK OF SWEET POTATOES, so I switched to white rice last week, but still ate a muffin each afternoon. And NOW I am...
  23. bartfull

    ARCHIVED 7 Months

    bartfull replied to w8in4dave's topic in Coping with Celiac Disease

    Yeah, corn makes things so hard! The worst part for me is finding medications and supplements that don't have corn. I DID find a vitamin I can take, FINALLY! (Lifetime Iron-free Soft Gels. They don't say gluten-free, but I called the company and it was your basic CYA statement, so I started taking them and have had no problems.) I have to get my Tylenol made...
  24. bartfull
    It's not cold here (high of 42, low of 19), but it's so WINDY!!! Steady wind in the 30 MPH range and gusts up to 60 MPH! Tree limbs down everywhere! Supposed to die down tonight, and temps in the forseeable future are again in the 50's.
  25. bartfull
    EVERYTHING has corn in it! I have to have my Tylenol made at a compounding pharmacy.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.