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AVR1962

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AVR1962

  1. AVR1962
    Yes, importance to have methyl when taking B vits for proper absorbtion. There's tabs inside the link where you can subscribe to get emails with info about neuropathy. I have been finding the reading material interesting. The advertised product is expensive but I can vouche that it does work, it actually has been a life saver for me. I am sure there...
  2. AVR1962
    Depending on the cheese you are eating, it could be that there is little lactose left in the cheese. Aged cheeses lose their lactose. Lactose free milk have things like carrageenan, xanthan gum and guar gum which don't always set with with the stomach.
  3. AVR1962
    Good! This will help ALOT but it does take time. Do protect your stomach and allow for the mending process. Meantimes take evry step to safeguard yourself from gluten.
  4. AVR1962
    Here is a link that you might find helpful. If you subscribe they will send up informative tidbits about neuropathy. Open Original Shared Link
  5. AVR1962
    I was even reading this morning how salt can damage the nerves.
  6. AVR1962
    I wonder if you may be lacking some nutrients. Twitches and spasms could benefit from more magnesium and potassium. System sounds very sensative yet and more healing needs to take place. There's several reasons why a person become dizzy but if it is gluten ataxia you have to strictly stay away from glutens to get it to go away. Other food sensativties can...
  7. AVR1962
    Body is more than likely suffering form lack of nutrients. I too had hair loss. I started taking an extra zinc along with my multi and BioSil drops and my hair stopped falling out. I know someone that used Primrose tabs and that helped her.
  8. AVR1962
    I had an incident like you are describing with burning skin from using an herbal supplement with kelp.
  9. AVR1962

    ARCHIVED No Fair!

    AVR1962 replied to luvs2eat's topic in Coping with Celiac Disease

    Have you tried aged cheese? Or lactose enzymes? Dairy was my hard one too, subs just do not work as they have too much other stuff in them that I react to. I hear you with the alcohol. I have had to stay away from it myself and I used to dearly love cooking dinner, munching on some wonderful cheese while sipping on wine. I have had to limit myself one glass...
  10. AVR1962
    I do understand.....I have been gluten-free since April, have been married 19 years. I have to always ask questions about my food when we go out. I am always reminding my husband of the things I can't eat if he tries to cook for me and I too feel bad. I even asked my husband just this past weekend if he was tired of me always having to be so careful. He was...
  11. AVR1962
    Having to always ask questions, read labels and being so careful. I miss being able to eat anything I wanted without thinking about it!!
  12. AVR1962
    If it is neuropathy the symptoms can be relieved by taking in more B12.
  13. AVR1962
    Definately sounds like your mom is reacting to something she is eating, or perhaps touching.....plants even. Is she eating spices like cajun salt? This broke my hands out with raised red bumps under the skin. All I did was boil crab legs in the water with the salt. I had what I thought were moles on my back that would come and go which have completely left...
  14. AVR1962
    I make my cookies without the xanthan gum, stomach does not like it. 3/4 of flour amount I use a multi purpose gluten-free flour, 1/4 of recipe I use almond flour and then I add approx 1/4 c. corn starch, and many times I'll grind gluten-free oats in with it. The corn starch helps the cookie dough to not be as runny. I heard of others using gelatin but I...
  15. AVR1962
    I find it interested that your endo put you on L-Glutamine. Every doc has a different take and there been debate on glutamine, my doc feels like it is a waste of money and suggested I not take it. Try taking your iron with a meal. Infact all your vits mentioned should be taken with a meal and I think you might have less stomach upset.
  16. AVR1962

    ARCHIVED My Mother

    AVR1962 replied to jswog's topic in Coping with Celiac Disease

    Goodness, does this sound familiar! It was my daughter who convinced me to go gluten-free and I made the same comments and mistakes that your mom did at first. Maybe it takes some of us a little longer for reality to dawn on us. I am glad you trying to help your mother, she probably doesn't fully grasp this yet. I know it took me a while to get my head wrapped...
  17. AVR1962
    After much debate on having people over, spending the day cooking and cleaning up, we decided to go out this year. We live in Germany and there's a few of the local restaurants that actually serve a buffet for the iholiday. So we going to do this with friends. Always feels a bit disconnected from the holidays without family to share it with but then again...
  18. AVR1962
    Ginny, do you have any pets? I am a big animal lover and seemed to be fine til my system became so sensative and I was having the same issue. Thought it might have been my make-up so I switched that. Then BINGO a light went off one day. I realized that on the nights my newest family member, a short haired little kitten, would join me in bed and I would pet...
  19. AVR1962
    Very interesting.
  20. AVR1962
    Wonderful news!
  21. AVR1962
    Off subject here, but where in Ireland do you like to visit? We are a bit particial to the Dingle Pennisula ourselves.
  22. AVR1962
    That had to be heart-wrenching to witness. Two of my three children are on gluten-free diets. It was an issue and they didn't go thru the testing and do not care to go back on gluten to have the tests done. They know they can't eat gluten no matter the test results. Sorry your daughter had to go thru all that. I do wish her the best on her gluten-free diet...
  23. AVR1962
    I use and and like it just fine.
  24. AVR1962
    There's alot of emotions that come out whn you learn you have celiac. It changes the way you look at the past, the way you look at your future. It's one of those things where you ask yourself too many questions that you may never have an answer for. You wonder who you should say anything to and wonder how to condcut yourself outside of the home. However,...
  25. AVR1962
    Stay on gluten until your tests are done but realize that testing is not accurate. It does sound to me that you have found your answer and that's what's most important. It is possible to be gluten-free in a household with gluten eaters, everyone has to become really of the rules you set.....like, once a knif touches bread it doiesn't go back in the jelly...
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