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Latest Celiac Disease News & Research:
Everything posted by pricklypear1971
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ARCHIVED 49 Yo Bodybuilder Needing Advice.
pricklypear1971 replied to charlesalyea's topic in Sports and Fitness
I have luck with adding blanched vegetables to nut or coconut water based smoothies. Zero to very little fruit. You may try adding bean powder or cooked beans to smoothies? Or, make bean cakes? Lots of recipes out there. What about squash/pumpkin? I could see both in smoothies or a "pattie". I use leftover squash to make a pan fried pattie to lay fried... -
ARCHIVED Specialty Grill Has Chef Asking For Help
pricklypear1971 replied to Colleeney's topic in Gluten-Free Foods, Products, Shopping & Medications
I am extremely jealous of your behind the scenes experience! However, I think it's imperative you tell the chef you got sick. He needs to know his methodology doesn't work. -
ARCHIVED So Questions
pricklypear1971 replied to Momma22js's topic in Parents, Friends and Loved Ones of Celiacs
My son isn't gluten-free but since ism the while house is... Anyway, in the beginning everyone will notice the difference in texture between glutenous breads and gluten-free. It helps to toast it, I think. Eventually he will acclimate. Keep alternatives on hand - fruit, veggies, crackers, potato chips...so he doesn't feel deprived and can form a taste for... -
ARCHIVED So Glad I Found This Forum! New Here :)
pricklypear1971 replied to CrazyCandleLady's topic in Introduce Yourself / Share Stuff
Good news is if your allergies (not sure how they were dx'ed) are intolerances and you have a leaky gut (celiac?) that heals, perhaps you'll get some of those foods back....which will make life easier. Welcome! -
ARCHIVED Bread Crumb Substitute?
pricklypear1971 replied to gringa-lg's topic in Gluten-Free Recipes & Cooking Tips
I collect the heels from my udi/Rudi's loaves. Toast and or let sit out a while then grind them up and stick in a bag in the freezer. I just use them as needed. -
ARCHIVED Table Service Options
pricklypear1971 replied to Kelleybean's topic in Gluten-Free Restaurants
In n out burger has always been great - only gluten there are the buns. Fries, shakes. BJ's has great pizzas. -
ARCHIVED Casein Intolerance
pricklypear1971 replied to peeptoad's topic in Related Issues & Disorders
Phlegm/post nasal drip. Have you tried allergy meds? It is allergy season and they can literally give me a fever (cedar). -
ARCHIVED Gluten Free For 6 Years, Symptoms Back
pricklypear1971 replied to Katharine25's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Or, you have become more sensitive to gluten...you are now out of that teenage honeymoon period when it tends to go dormant. You may have to readjust your food to stricter guidelines (some people must drop processed foods or foods that aren't tested, etc.). You also may have gotten a bad glutening and are taking a long time to heal. Some people develop... -
ARCHIVED Will Dapsone Help Dh Before Going Gluten Free?
pricklypear1971 replied to SeekingSarah's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If your doc will listen, give her a list of celiac blood tests and she can order them. As far as biopsying your skin she may be able to do that if she has the equipment; otherwise, you need a dermatologist. You can also order celiac blood tests from online labs. -
ARCHIVED 18M Old - With Genetics Against Her
pricklypear1971 replied to Aprilelayne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I swear this is "can't see the forest for the trees", regarding your doctors. I hope you have better luck with this new doctor. Remember what you've learned. Go in prepared and firm. -
ARCHIVED Female Cramping...men Read At Your Own Risk :)
pricklypear1971 replied to powerofpositivethinking's topic in Coping with Celiac Disease
One thing to remember is that hormone levels normally change over time...so, women may experience different hormonal symptoms over the course of life - and I don't just mean menopause. Second, autoimmune diseases can affect your hormone balance. Everything is intertwined - your vitamin levels affect how your body functions. Hormone levels are affected by... -
ARCHIVED 80's Fancy Dress ...... Ideas Anyone?
pricklypear1971 replied to VeggieGal's topic in Introduce Yourself / Share Stuff
Leggings/stirrup pants and an oversized geometric print (or polo button down) shirt with shoulder pads. And flat shoes - plain and pointy toes. Big dangly earrings and huge puffy curly hair. -
ARCHIVED Can Celiac Symptoms Come And Go
pricklypear1971 replied to LT1313's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Over a year into gluten-free/celiac and my mother finally pops "you had so many stomach issues when you were a baby" into a conversation. That was followed by "you had the worst rashes"; however, I do think she disclosed the rashes when my son was a baby. Seriously. After my son had stomach issues (10 years ago), and everything that has happened with... -
ARCHIVED Major Stomach Acid Gastritis, Feel Like I Could Die!
pricklypear1971 replied to bekkaz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think you need to come up with a strict elimination diet to eliminate the foods or groups you suspect and stick with it for at least a month. And you've got to find some way to reduce your stress. And eat. Having a constantly empty stomach from fear of eating will just make it worse if its acid. And finally, too many stomach meds can actually cause... -
ARCHIVED Major Stomach Acid Gastritis, Feel Like I Could Die!
pricklypear1971 replied to bekkaz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, gluten can cause this type of pain. So could other intolerances and probably many other things. I had this. I was on antacids, Zantac, etc. and some other med that did really bad things to my body so had to stop it. None of them really helped. What did help, while I was still on gluten, was teaching myself self hypnosis or meditation...I literally... -
ARCHIVED Hashimoto's Testing While Gluten-Free?
pricklypear1971 replied to Irishgirl76's topic in Related Issues & Disorders
Again, haven't backtracked.... Your rt3 is more likely to be higher the longer you're on replacement therapy. That said, I have no studies etc. about that - just by reading about rt3 resistance and anecdotal statements . And that to reduce rt3 you stop t4 or lower it - taking only t3 or less t3/t4. And you get your vit d and iron up, and straighten out... -
ARCHIVED Between A Rock And A Hard Place
pricklypear1971 replied to pretty in paleo's topic in Gluten-Free Restaurants
I think I've used every option mentioned above. I also will eat before, or drive myself to the restaurant - stopping to get something "safe" I can gulp down - and then order a drink and socialize with friends. There can be distinct differences between eating and socializing, I've learned. You can do both at once, or just one at a time. -
ARCHIVED Hashimoto's Testing While Gluten-Free?
pricklypear1971 replied to Irishgirl76's topic in Related Issues & Disorders
I always test fasting, first thing in the am, with a zillion other tests demanded by docs...and am well bled by various vampires. Variance is variance. The number always varies. I tested once during an AI flare (I'd been glutened, exhausted, allergies, headaches, had recently had the flu...). Sky high. Inflammation markers were also high. Tested when... -
ARCHIVED 18M Old - With Genetics Against Her
pricklypear1971 replied to Aprilelayne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
We didn't always have bread at dinner - because I was (still am) picky about my bread. It needs to be very good to go on my table; however, I did feel like there was "empty space" at special events or when my FIL came to dinner. We got over it. And mashed potatoes are pretty carby, tell him to have two helpings. Or not...he'll get used to it . ... -
ARCHIVED Hashimoto's Testing While Gluten-Free?
pricklypear1971 replied to Irishgirl76's topic in Related Issues & Disorders
I haven't attempted to backtrack...but is your reverse t3 high? I cut my meds in half without negative effect...my rt3 was high. I could have tripled my NatureThroid and had no change. My doc says it proved at the moment my symptoms were not thyroid but adrenals (what I feel). I never feel up/down like some people talk about re:Hashis. She again says... -
Perhaps you need to eat more often at home, and your body is responding positively to mire frequent meals while on the road?
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I don't have experience with your type of medical issues but I'll give it a whirl. 1) you could be altering your diet in some way when on the road that is not obvious to you. Try a food diary next time. 2) you could be drinking less/more without realizing it. 3) you could be skipping meds or taking them at different times. 4) altitude? 5) environmental...
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ARCHIVED 18M Old - With Genetics Against Her
pricklypear1971 replied to Aprilelayne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yep. I finally gave up buying packaged stuff at that point. I did find some cookies that were sf/df...of course they weren't gluten-free but that wasn't an issue at the time. There are so many more options now in the specialty market; however, mainstream foods are still a nightmare (I notice soy all the time when I screen for gluten). Ironically I found... -
ARCHIVED 18M Old - With Genetics Against Her
pricklypear1971 replied to Aprilelayne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Screening out soy is worse, IMO, than gluten. When my son was an infant he seemed to have issues with milk and soy formulas so I dropped both from my diet. Painful. I feel for you, but I'm glad you're getting somewhere. -
ARCHIVED Intolerances And Blood Sugar Issues , A Connection Beyond Diabetes?
pricklypear1971 replied to cahill's topic in Related Issues & Disorders
I find that some foods must be eaten in combination with others to stabilize or maintain blood sugar. Is this because I'm "hungry" and my body needs a "complete" meal or because an individual food causes glucose to go wonky? I don't know, excellent question. I do know as I get healthier (including exercise) my glucose is more stable regardless of what I...